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mbond69

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Reply with quote  #1 
Looking for impatient hospital private or nhs that most closely follows Maudsley model . Involve family more . One that isn’t solely based on terrorising them to eat . Which just isn’t working for our daughter .
melstevUK

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Reply with quote  #2 
mbond69,

Can you tell us exactly where you are in the UK because it will be easier for us to make suggestions.
Thanks.



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qwpo10

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Reply with quote  #3 
Our experience of The Priory in Altrincham, Manchester has been the opposite. They havebeen fantastic with her. The atmosphere on the unit is relaxed but firm. The staff are lovely, always happy to talk. There are 2 consultants. The one we have been under is also very caring and committed. It is an adolescent unit, so the atmosphere can be a bit like a boarding school at times. In our experience the patients have been very supportive of each other. There is family therapy and parents are observed and encouraged to supervise their child's meals (when out on leave).
mbond69

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Reply with quote  #4 
Thank you that’s good to know .
We are in London
hertsmum

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Reply with quote  #5 
We were happy overall with Rhodes Wood, just outside of London, and our daughter made good progress there. We were encouraged to get involved in family therapy, meal supervision and given support when planning her discharge. Interestingly she would recommend it to other girls (she was just turning 16) in her situation. I’m happy to chat to you about it if you want to get in touch
qwpo10

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Reply with quote  #6 
Have you looked into the intensive treatment programme at the Maudsley? I have no direct experience, but it sounds great. I have seen some very positive posts about it on this forum.
melstevUK

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Reply with quote  #7 
mbond69,

I assume that d's consultant psychiatrist from your local ed service made the referral to the IP unit where your d is placed.

This is the person to whom you should complain and ask for a transfer to a place of your choice.  I have heard good things about Rhodes Farm and there is also the Huntercombe Hospital in Maidenhead which is in the South East as well, although you would need to check on what age group they take.

What is happening to your d is totally unacceptable, falls far short of best practice and the psychiatrist needs to know this so that they do not waste any more time or money purchasing inadequate care for patients.   If the placement is used by the ed service and is within the same health authority, this presumably is the IP facility that they routinely use.   However I am sure he/she will be sympathetic to your request if you raise your concerns.  If it is a general psychiatric unit, it would appear that there is no clinical lead or expertise for treating eating disorder patients and this needs to change.  



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mbond69

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Reply with quote  #8 
Thank you so much for your feedback . Afraid over last month things are not much better .
We did try getting in contact with psychiatrist at outpatient unit but he really didn’t seem to want to know until our daughter was off the ng tube
mbond69

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Reply with quote  #9 
Wonder if Maudsley day unit would consider with ng tube in place ?
I also see Vincent Square is now talking young people Anybody have an Information about this ?
After our experience we sort of feel that we would like to be back in an nhs run hospital as one of the concerns we have is that there see very little safeguarding in place and the unit seems a bit of a law unto itself . In the last 3 weeks there’s been one escape - helicopter , police dogs all involved and one serous suicide attempt - just in my daughters small ward of about 10 girls . Both incidents terribly traumatic and I think avoidable . Never mind any psychological help I don’t even feel
melstevUK

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Reply with quote  #10 
mbond69,

If your d is on an ng tube I assume she is at a very low weight and is quite ill, too ill to travel from what you are saying.

I don't know where your d is based but I would write to the director of the hospital to make your concerns heard.  You can do it in a diplomatic way which will probably be better than going in all guns blazing.  How is your d's weight gain going?  Ultimately that is the most important aspect right now - but if the unit feels chaotic rather than calm, then I would raise your concerns about that.  It sounds as if staff training has not been very good.  Is your d on a general psych ward rather than a specialist ed unit?  This brings its own challenges.

Ultimately it is your d's weight gain that you need to be tracking, because this is an indicator of how much success they are having with her.  

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Believe you can and you're halfway there.
Theodore Roosevelt.
Alethea

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Reply with quote  #11 
Dear mbond69, We went through similar scenario in London ED unit 18 months ago. You need to act fast. PALS and then go higher.I kept a record of everything that was frighteningly lacking and shared it with her team, PALS and Assistant Clinical Director.He acted fast and asked if we wanted to hold an official enquiry!  I photographed her ridiculous meal plan (they were starving her) and kept a record of her weight loss (!!) Everything got much better with her care after that. Email me if you would like to know anything. The trauma was so great, we have all done everything in our power to keep her outpatient in a different unit.
myson

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Posts: 16
Reply with quote  #12 
Hi my s is on his third inpatient admission. They have all been London hospitals. The one he’s currently in is the worst.
I haven’t experienced nhs inpatient but from others I have heard that there’s more regulations etc.
My s has experienced watching people try to kill themselves up to 5/6 times a day.
There are too many agency’s staff being put into look after our vulnerable children.
coconut

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Reply with quote  #13 
My d was admitted to Ellern Mede four months ago. It was quite nurturing but firm. They encourage family to be involved as much as possible with daily visits and almost all day at weekends. This was really helpful for both of us. Communication from the team was also excellent. We are still plodding and praying for recovery....
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