F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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Stubby_USA
First - Hello to all the "veteran" members. I haven't posted in quite a while since our daughter lost her battle with ED. We continue to monitor and fight the fight by educating people about ED and providing what help we can to local (Southern Wisconsin) families fighting the battle. http://projectmaria.org for more information about that. But that's not why I'm posting today.

<Insurance Rant> So frustrating how some things not only never change, but seem to get worse. A nearby family has been bravely fighting with ARFID using home-based methods for 2 years, but finally their D (16) requested a residential stay (a very hopeful sign!). At 28 days the report is not good - only 2 new foods added to her list of 5 (Apples and apple juice) and "nowhere near ready to come home". But the insurance company has denied all appeals for any extension to the 30-day limit on residential treatment. So Mom is on her way to pick her up and move her to Partial. If she "fails" at partial (whatever that means) they will consider another 30 days.

This is so frustrating to us as we fought the same battle with the same insurance company and won - based on parity laws. They offered 120 days of residential treatment for AODA treatment and orthopedics, but only 30 for psych, and we were able to threaten lawsuits and drop the name Kantor and Kantor and they caved pretty quickly. Their response was to, the very next year, cut all residential treatment for all issues, including orthopedics, to 30 days. Now they won't budge. The research is so abundant that 30 days is so inadequate for these cases. It is like only giving 3 doses of chemo when 12 are what is needed to attack the cancer. But they'd rather incur more expenses long-term by not addressing the problem than by just helping people recover right away. <end rant>

So - I'm looking for advice to pass on. I'm sure you all have faced this many times as well and I'd love to learn from more recent experiences.

...and know that you all are in our prayers daily.
----    "Parenting is not for cowards."
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tina72
I cannot help with the insurance problem but I just wanted to say that I really love the line beneath your text....
Keep feeding. There is light at the end of the tunnel.
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Foodsupport_AUS
Stubby, thank you so much for continuing to fight for other parents in memory of your daughter. It seems to be one thing then another with insurance companies trying to save money in the short term but not looking at the big picture or what is really needed. Disappointing also that one month of treatment has yielded two foods added. 

I don't live in the US so can't really make some comments about how the insurance system works. 
D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
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sk8r31
Thanks so much for posting Stubby, and for continuing to advocate and support other families in memory of your daughter.  You have sadly had a lot of experience fighting with insurance companies, and the changes you mention are woefully inadequate.  I don't really have anything of value to add, other than our family was able to get coverage for treatment by using a case manager with our insurance company, and negotiating a 'single case' agreement.  It is a ton of work but documenting how the company can save money in the long run by providing coverage for the program we felt was the best fit did work for our family.  That was over 8 years ago though, so it may be increasingly difficult to go this route.

I wonder if there would be any value for your neighbor in contacting the Kartini Clinic in Oregon?  They do work very successfully with ARFID patients.  At the very least, they may be able to point you in the direction of better care in your area.

Thanks again for all you are doing to help support your neighbor.
It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
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Stubby_USA
Thanks, sk8r31, for the thought on Kartini.     I'll keep that one in my hip pocket for now.     The "single case agreement" is something the insurance company is just unwilling to discuss.    For now they are unwilling to authorize anything "out of network" until the provider they use declares they can no longer treat them (which is what  happened with our case when our D was medically evacuated from their facility and she was told she was unwelcome to return).    They just point to their policy and say "this is what you bought" (as if they offer anything else....), seemingly unconcerned about any actual patient recovery.    A sad testament to the state of healthcare.......
----    "Parenting is not for cowards."
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tina72
I remember that someone talked about a program, I think it was around NY, that was for free. Does anybody know what I mean?
Keep feeding. There is light at the end of the tunnel.
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kazi67
Dear Stubby_USA
i have no idea of the insurance but just I wanted to say I’m so very sorry to hear of the loss of your beautiful d 
my heart aches for you 💔
and bless you for helping/advocating for others, what truly inspiring people you are!!!
❤️❤️
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joysomeday
The program I think referred to is out of Columbia Presbyterian Hospital in NYC. Best of luck. 
Thank you for continuing to advocate in honor of your daughter. My deepest sympathy. 
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