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Scarlett81 Show full post »
Scarlett81
One step forward, 2 steps back...

Quick update... pushing hard to get out of a stuck position. No weight gain for 2 months, he's 84% WFH.  Refusing snacks apart from a fruit smoothie after school, which I make sure is 900 cal.  

Tiny positives, like this weekend was the first weekend he didn't get up and want to go on a bike ride... but then he told me it's because he read that biking gives you muscles and they weigh more so no more biking.  

Anxiety still high.  BUT he's eating 3 main meals with not much fuss.  

Sibling starting CAMHS therapy for anxiety, H started on anti depressants... UGH this is a rubbish journey!!! 😡
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Foodsupport_AUS
It is a long journey and that backwards and forwards can really make it take longer. 

I would take it as a positive about the not going biking even if it was ED driven in the first place. The more concerning thing is the lack of progress when you have so far to go, as he should be growing even standing still is going backwards. 

What can be done to get things moving again - you had stopped meals at school ? Should he still be in school if there is no progress.? How sure are you there is no exercise in school. 
What can be done to get snacks in preferrably but if not make those meals bigger? That may mean making slightly larger portions getting two smoothies in a day or something else. 

He may be eating OK for what he is eating but it sounds to me like ED is not being challenged. He knows he is not gaining weight and is quite happy with the status quo. 
D diagnosed restrictive AN June 2010 age 13. Initially weight restored 2012. Relapse and continuously edging towards recovery. Treatment: multiple hospitalisations and individual and family therapy.
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Scarlett81
Hi Foodsupport.
I totally agree, we hit a wall with everyone else's mental health and for a few weeks we have stood still and not challenged ED.  I just found it impossible to do that, support S through it and deal with everyone else's meltdowns when they couldn't cope with the fallout.

Hopefully now we have done a bit of a reset. H has finally agreed to come to camhs appointments to get some support with coping with ED and sibling feels like she's being listened to.  Have pulled s out of school for lunch for past two weeks as I think he wasn't eating everything I gave him.

Camhs appointment on 25th and I am determined weight will go up this time!!!  My granola making skills are getting impressive... 
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Torie
Scarlett81 wrote:
Have pulled s out of school for lunch for past two weeks as I think he wasn't eating everything I gave him. 

I bet you are right that he wasn't eating all his lunch, so I'm glad you have taken this step.  So he is now eating lunch with you?  

It is hard - so very hard, I know - but it is really worth it to push for more calories at every opportunity because it really DOES get easier when they have been wr for a while.  Can you add a little more each meal? xx

-Torie
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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Scarlett81
Hi torie,
Thanks for the encouragement.  Yes, he's home with me now and will eat what I put in front of him, as long as it's off the safe list.  So big white bread roll, lots of butter, double ham, dried fruit.  We're slowly increasing portion sizes.  I reckon we're at about 3000 calories now.  He actually ate dried apricots last night for evening snack, which is a time he often refuses, so I will not let that go now, and will gradually try to build it up.

I know part of this is my own fear of the self harming that follows when I really challenge the ED.  But we'll never get out of the cycle if I don't tackle it.  Have to push through...
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ValentinaGermania
We also had problems with self harm here and a punching bag helped a lot (I must confess I used it quite often too). I do not remember if there was overexercising with your son at the moment but if not that might be worth a try. We did hang it off in the nights so she could not lose energy there without our control. It helped her to put all that anger and rage not against herself.
Keep feeding. There is light at the end of the tunnel.
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Torie
Scarlett81 wrote:
I know part of this is my own fear of the self harming that follows when I really challenge the ED.  But we'll never get out of the cycle if I don't tackle it.  Have to push through...

Oh dang we had SH too.  Wish I had known about Tina's idea of a punching bag. xx

-Torie
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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Scarlett81
Thanks Tina,
Punch bag already in use and we're on our second pair of gloves!!! It helps with controlling the urge to run but we have to be very strict and supervise with a v short time limit.
My goal this week: buy electronic kitchen scales which I will hide from view.  Prep meals when no one else is in the house (H's own anxiety is being triggered by the high fat content and fears of high cholesterol!)  Aim to add 500 calories to daily plan.  Camhs on 25th and will see if weight goes up. If not, add another 500 cals.  

Did manage to boost breakfast this morning with extra 10ml double cream and extra 10g homemade granola.  Homemade bread cooking now for lunch.  Dragging energy and determination from a very deep place today...
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ValentinaGermania
Sounds like a great plan. When you cook, cook double portions and freeze the rest in. So you will earn some days with no cooking needed!
Keep feeding. There is light at the end of the tunnel.
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Foodsupport_AUS
It is hard to dig deep when this journey is so long and exhausting. Well done, one day at a time. 
D diagnosed restrictive AN June 2010 age 13. Initially weight restored 2012. Relapse and continuously edging towards recovery. Treatment: multiple hospitalisations and individual and family therapy.
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Torie
Scarlett81 wrote:
Did manage to boost breakfast this morning with extra 10ml double cream and extra 10g homemade granola.  Homemade bread cooking now for lunch. 

Yay, you!

Scarlett: 1
Ed: 0

Keep swimming. xx

-Torie
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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