F.E.A.S.T's Around The Dinner Table forum

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CED123
Has anyone from the UK done the UCSD or UCSF one week intensive programme? And is it cripplingly expensive? we don't have health insurance of any sort.

Thanks
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tina72
I would contact them directly and ask for the costs. I heard they are very nice there and I am sure you will get proper answer. Call them.
Keep feeding. There is light at the end of the tunnel.
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CED123
I have emailed them but presume they won't reply till Monday.  Will call next week too.  Just wondering if there was any UK experience on here.
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tina72
As Cahms treatment is for free in UK I think there will be not much people have gone there.
I would have done that 3 years ago with the wisdom of today. I would have put here into the next plane 🙂.

I hope someone will come around with an answer soon.

How are you doing?
Keep feeding. There is light at the end of the tunnel.
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sandie
Hi CED, someone on this forum told me the other day that they are doing a 4 day programme with other families this summer in the UK through cahms in their area. We have nothing like that where I am but maybe there is potential to access nhs funded programme like this in another part of uk if you can make case that your D needs it.
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CED123
thanks @sandie - do you know who?

@Tina - badly.  refusing more and more..
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tina72
I also heard from that one week program at a cahms. I know it is a family that is with Dr. Sonia Bues. Maybe worth a try to contact her?
http://willowtreepsychology.com/

So sorry to hear that you are having such a hard time. Can we help with anything but virtual hugs?
Keep feeding. There is light at the end of the tunnel.
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sandie
Hi CED. I emailed you with geographical info re course. X
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CED123
hugs help! don't think there is anything else at the moment. will see how today goes - hopefully the shake refusal is just a threat today.  the gym joining turned into empty threat luckily.
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scaredmom
CED123, I think this a great idea!! 
I know toothfairy has always said she would have gone from the UK to the states for this program had she known earlier. I don’t know if anyone  from the forum offhand that has gone from the UK.
i am glad you have emailed them.
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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sk8r31
Not sure about any families traveling to the 5 Day program at either UCSD or UCSF; however, there was a family from Hong Kong in our session, and another that split their time between China & the U.S.  Recently, there was a family from NZ who went to the program, and I know another family from Mexico. 
Cost of the one week program is approx. $6K USD.  You would also have travel expenses, which I imagine would be fairly high to travel to the west coast of the U.S.  
You should have an email response by tomorrow (Monday)  I expect, but the best bet may be to call and speak with a therapist or intake specialist.
Sending warm support,
sk8r31
It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
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Foodsupport_AUS
There have been a few families who have gone from Australia / New Zealand. I remember one of the NZ mum's posting that they had gone from NZ and their D had been in the PHP program also at UCSD. I can't quite recall who. The other parent is someone who was not on the forum who took his daughter to the 5 day program. Of some benefit for them. 
I also considered this program for my daughter, I decided against it because I felt that it was unlikely I was going to gain enough from a single 5 day course that was going to keep us going when we headed back home. I still think I was right. 
D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
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CED123
Thanks all.  TBH $6k is better than I thought it would be.  Flights alone are ~£4.5k if we all go, but given the higher chance of siblings also suffering if we do do this I think we should all go. still, at least it would be sunny.  I do also wonder how it would work with jet lag.  when I've been to SF/SD previously with work I couldn't get any further than a 5am-9pm day before I came home again. I guess that's another Q to ask them next week.
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tina72
Maybe you can add 2-3 days before to cope with jet lag.
If you can afford it, I think it will help you. They are very good in getting the families on the same page. I heard only positive experiences from those who have been there.
Keep feeding. There is light at the end of the tunnel.
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CED123
Thank you all. 

More Qs: is there any difference between the SF and SD programmes? They look basically the same but I hear UCSD mentioned mostly not UCSF. But UCSF has sooner dates.

And logistically is one easier than the other? - eg finding accommodation and getting to and from the place?
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scaredmom
I think they were founded by the same people. I think the SF one is a bit younger, as they used the model at SD? 
I would take anyone that came first and I could get in. 
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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sk8r31
Yes, both programs are similar; though the UCSF one is newer, it is founded by the same team.  I am not as familiar with housing options for San Francisco, and can only speak about the UCSF program.  In San Diego, we did appreciate being able to get to the beach and tour around the beautiful area, though we were pretty exhausted emotionally at the end of each day.
As scaredmom says, whichever one has soonest availability might be the best bet, if you decide to go.
It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
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CED123
Looking at the housing info it seems easier to get self catering/apartment type places at SD rather than san fran.  A hotel would just be a complete nightmare...
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mtkmbc4
There are hotels that have partial kitchens in each room (stove top, microwave and full refrigerator), so if you decide to come, hotels might not be as bad as it might seem. 
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scaredmom
Hmmm would you consider an Airbnb? A home to stay in? 
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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CED123
yes Airbnb would be fine.  I need to do some searching.
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CED123
lordy! not Airbnb SF - too expensive! £1000/night!
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sk8r31
Housing would typically be higher in SF than SD.  However, I expect that UCSF would have a list of decent housing options.  There may be a 'Ronald McDonald' House nearby which offers low-cost housing for those who have a kid/family member in hospital.  Speaking with an intake specialist at both places will help with options and availability.
It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
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CED123
Yes - time difference makes it hard to speak away from wagging ears (we're currently 7? hours ahead)  but H is away this week so he has been tasked with the phone call. there isn't much difference I don't think in the dates we might do really - end sept vs start oct - so we'll maybe just aim for UCSD.
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CED123
For anyone else who is interested, out of pocket cost (perhaps different to insurance cost?) is $5000.
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