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atdt31_US

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Reply with quote  #1 
Hi all -- long story short, there is some evidence of my d restricting (pitching lunch at school) and her meals have gotten progressively smaller and less varied at home.  No huge weight loss as yet but the subtle changes are starting to be undeniable.  But I am pretty good at denial, so ask me again in three minutes.  Local doctors are wanting to start meds (unclear what exactly but SSRI has been mentioned) and I am wary of starting them AND wary of starting them prior to an actual ED eval by someone qualified.  

My question is -- For any of you who have done the UCSD One-Week Program:  would you think it an advisable FIRST STEP in treatment.  For that matter, we are as yet undiagnosed (but my guess is ARFID or RAN with high anxiety and OCD) (the anxiety and OCD are diagnosed).

OR, is that program more useful once treatment has been in place for a time ....

Thanks in advance for any info.  



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Mom of either pre-diagnosis or non-ed underweight 12 yoa (as of March 2018) kid here to learn how to achieve weight gain.  BMI steadily in the mid 12's for nearly her entire life.  Born 2006. UPDATE:  April 2018 diagnosed ARFID, based solely on weight being less than 75% of Ideal Body Weight.  Mildly picky, but mostly the problem is a volume/early satiety issue, along with abdominal discomfort and chronic constipation, all present since birth. FWIW ED-D is a fraternal twin and we have no other kids.
Foodsupport_AUS

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Reply with quote  #2 
Sorry that it appears that things have taken a turn for the worse with your D. I know that you have been very concerned for some time.

I have not used the program at UCSD however as leaders in care and management of eating disorders in this age group they would be good for both diagnosis and getting treatment started. There have been a few parents here who have had diagnoses changed after going to the program, for example switching AN diagnosis to ARFID. I do know they take phone enquiries and many have got good information about where to move next so perhaps start there. 



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D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
sk8r31

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Reply with quote  #3 
I would definitely call and speak to an intake coordinator or a treatment provider.  I have found they are very generous with their time, in order to help you make a decision about whether the 5 Day Multi-Family program would be a good fit for your d and your family.

The other thing I can tell you is that the week will be tailored as much as possible for your family's individual situation.  The team will be prepared to 'hit the ground running' with a plan, which may be tweaked as the week goes on.  

I found it enormously helpful that our therapist was in touch with treatment providers both before and after the program so that coordination and follow up was as seamless as possible.

Warmly,
sk8r31

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It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
atdt31_US

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Reply with quote  #4 
I will give them a call.  It dawned me as I tossed and turned last night that going there as a first step might make it more difficult to get any of it covered by insurance.  Hopefully Intake will have guidance on that as well.
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Mom of either pre-diagnosis or non-ed underweight 12 yoa (as of March 2018) kid here to learn how to achieve weight gain.  BMI steadily in the mid 12's for nearly her entire life.  Born 2006. UPDATE:  April 2018 diagnosed ARFID, based solely on weight being less than 75% of Ideal Body Weight.  Mildly picky, but mostly the problem is a volume/early satiety issue, along with abdominal discomfort and chronic constipation, all present since birth. FWIW ED-D is a fraternal twin and we have no other kids.
sk8r31

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Reply with quote  #5 
The UCSD program does have someone who helps with insurance.  Initially, when we signed up for the week, our insurance was only going to pay 60%.  We ended up getting 100% coverage.

  

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It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
sunnyakela

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Reply with quote  #6 
Our UCSD group had four families at different stages of treatment. Three counselors are with your family the entire time, so you get plenty of individualized attention. You will also leave with a detailed behavior contract and recommendations for further treatment that are tailored to your family. I don't know details about different insurance plans, but since you are only there 5 days, you will have the cost in writing before you commit. It is absolutely worth calling them to discuss. We were pleased with the program.
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