F.E.A.S.T's Around The Dinner Table forum

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deenl
Hi all,

I just posted on the Treatment providers forum. Can anyone let me know the good, bad and ugly in any of these countries. The ED is getting worse and I need Plans A-Z researched.

Cheers,
D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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deenl
Thanks toothfairy
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
Quote
mjkz
Read the thread entitled "options" for bird eye view of the state of treatment in Ireland.  Not good.

If you have private insurance there are some good options in the US but it really depends on if you have the insurance coverage or can pay the fees.
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Sotired
There was a lady on here at one point from Germany, their system treated the child by residential was my understanding.the U.S. probably is your best bet if you can afford it.hopefully you hear from others soon.but don't do Ireland,their system makes NZ look amazing and it's not.
Sotired42
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Torie
Dee, I have gone back and re-read many of your threads. It seems that we always tell you exactly what you don't want to hear. It also seems that the system in your beautiful country stacks the dice badly against you and your precious son. 

Once again, I'm sorry to tell you what you don't want to hear: I can't remember anyone with a good experience with ED treatment in the countries you list and especially not Ireland. I hope someone else will be able to think of an answer that is more long the lines of what you want to hear.

As someone already asked, is there a chance you might go to London or (especially) the U.S? 

In any case, I think it would be worth calling Kartini Clinic here in the U.S. I think they would know who are the best providers in your part of the world. They may have good suggestions for you in other ways, too. They have a lot of experience with younger sufferers and also boys. And ARFID. If I were in your shoes and they thought they were a good fit, I would move heaven and earth to get him there. I'm sure that is nearly impossible to imagine with all the expense and your other kids who need you. But even so.

It's always a superhuman struggle to deal with Ed, but your challenge is even bigger than many here have faced: 1) The awful laws in your country 2) You seem to have a persistent feeling that your s is ... what? Something akin to ASD? Other mental health issues lurking in the corners? I don't know ... it seems you are sensing something in addition to ED 3) Extremely low weight 4) History of suicidal intent. Any one of those is enough to add to the level of expertise needed.

Please call Kartini Clinic. I think they will give you good advice. If you prefer, I'll call them for you, but I would need more information to have a meaningful conversation with them.

I'm so sorry for this post. It's not what you want to hear, and it's not what I want to write. Sigh. Wish I had a magic wand. xx

-Torie


"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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deenl
mjkz and sotired, that's pretty much what I was thinking myself so thanks for the synergy.

Torie, what I want to hear is the truth even if that's what I don't want to hear (if you get what I mean, ha,ha)

We are not quite done with the options here and there are some very good members on the team but I really want to have my homework done ahead of time so we are not taking decisions in a blind panic. Possibly wishful thinking but ya gotta try.

Thanks as usual, guys

D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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Winnipuh
Hi!

In Germany there are a lot of residential facilities treating different mental illnesses. Most of them admit patients above 16 years.

Bc of the grown number of younger patients, some of these facilities have special wards for younger ones.
I will link below the ones that use to be the famoust and "best" within Germany.

But every single works with voluntariness of the patient. They are no closed wards. Food intake and gain will be supervised, there are mealplans and rules, but if a patient refuses to cooperate, they won`t be able to offer treatment.

For mental ill children until 18 there also are psychiatric wards. They use to be strict, use tube feeding even against the will of the patient. Its the parents choice that matters. (or the one of a court)

Severe underweight patients will either be treated at hospital wards/PICU or psychiatric wards.
 If you have any questions or if i can be supportive in the contact to a certain facility, just ask.

http://www.schoen-kliniken.de/ptp/

http://www.seepark-klinik.de/

http://klinik-lueneburger-heide.de/
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deenl
Thanks for the summary of treatment in Germany. I will review the sites you suggest.

Cheers,
D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
Quote
IrishUp
Hi deenl

Toronto CA also has a good evidence based program @ Hospital for Sick Children

http://www.sickkids.ca/adolescentmedicine/what-we-do/programs/eating%20disorders%20program/index.html

IrishUp
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