F.E.A.S.T's Around The Dinner Table forum

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Mcmum
Looking for reassurance. My s is 9, diagnosed an in August and finally making good progress. He came down with a really bad cold this week. Off school with high temperature and all the rest of the usual symptoms.
Well, of course, his appetite fell off a cliff and as of yesterday we're right back in ed land. The voice, the jerking limbs, the foul mood, the avoidance at any cost of eating, the pressing desire to play football and the "it's not me, it's you".
insisting that he stay off school today was a catalyst for ww3 as is any mention of food or the fact that he is ill. 
It's food right???
i just feed and it will recede?? I know the answer and I knew this would happen. A lot. It's just slightly scary when it does! 
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Foodsupport_AUS
Yes it is likely to be the lower intake with his illness rather than anything new. Feed him up, insist that you do know what he needs and see how it goes. Yes it really sucks that they can go backwards so fast. We worry for so long after they are going well. 
D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
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Mcmum
Thanks. It was the speed that got me!
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Ellesmum
Hi Mcmum,

yes its it’s frightening how quickly progress can become undone, we were doing great until flu struck at the end of last year, that coupled with Christmas and the slight change in routine sent us plunging back down the rabbit hole.

It was a tough lesson learned for me, so yes feed him up as much as possible x
Ellesmum
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Mcmum
Ah, I remember now! Terrifying isn't it?? Hope your refeeding goes well today. I sometimes think that I get the theory but the reality is another prospect altogether 😳
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Ellesmum
Mcmum wrote:
Ah, I remember now! Terrifying isn't it?? Hope your refeeding goes well today. I sometimes think that I get the theory but the reality is another prospect altogether 😳


Its astonishing how a little too much activity or a dip in calories has such a catastrophic effect.  It amazed me. Good luck today and going forward x
Ellesmum
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tina72
It is hard when they are sick but he must eat, no matter what happens. Try to get in as much as possible and maybe change to more ice-cream or milkshakes if he has a soar throat. Drinking calories is often more easy when they are sick.
It is terrifying how fast it goes back with one or two days not fully nurished but once you got him on a good weight for some time x that gets better. When I was in ER with my d in November and we had to eat from that snack automate for 12 hours and she did not eat enough that day it was no problem any more and she had no setback (1,5 years after WR). It gets better.
Keep feeding. There is light at the end of the tunnel.
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Mcmum
Thanks Tina. Good idea about liquids.  Might have to resurrect the smoothie.  Finding stashed food around the house 😥
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tina72
Try to get through it. When he is better you will get him back. It is just an episode. Feed, feed, feed. You know what to do. One step after the other. One meal at a time.
Keep feeding. There is light at the end of the tunnel.
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keeptrukin
I think these times when kids get sick are good teaching moments. When my S was in treatment he got some tummy bug and the message was ok, plain things for now, but next morning get back on the horse, no excuses. It's a good way to set them up with patterns for how you and they will handle future illness. Also, the higher the weight the less susceptible he may be to future plunges. It's hard to get a safety net while growing though...  
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Mcmum
We'll definitely up the calories from now on.  He seems to grow taller every day and so quantities are pretty huge compared to the rest of us. All fine , but yes ,more weight as a buffer would be good 
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scaredmom
McMum, 
I really wish this illness had a nice straight line for recovery! But you are doing so well! These episodes in the journey are, like keeptrukin says are teachable moments. We do learn a lot going through them. 
You are on top of this and it will be short lived. Just a question, you said that that there is stashed food in the house, do you think he has just been doing this in the last few days while sick? Or do you think it might have been going on for awhile and then  he got sick which allowed ED out of the bag? So now you see the all out resistance to eat? Just thinking if, when he is not sick, that maybe some holes need to be plugged (extra supervision to ensure that there is no more stashing) until he and you are back on track.

Not wishing to alarm you. It is stressful already the day to day care, and I  just want to make sure there is no way for ED to hide and hijack him again.
XXX
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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Mcmum
Good thinking.  We supervise all meals and snacks but he does like to hoard sweets. So sweets from Christmas and Halloween and birthday parties.  Normal kids don't do this so i'll put a stop to that and be even more hawk like around other food.  100% agree with the principle that if you don't see it go in, it hasn't gone in. Thanks all!
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tina72
To hoard sweets is a common ED behaviour. ED only allows him to look at them and he feels proud NOT to eat them. I stopped that and took all hoarded sweets to the family box and we all ate them. Now she only keeps little amounts that she uses for snacks during the week.
Keep feeding. There is light at the end of the tunnel.
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Mcmum
Wise words, as always Tina. 😀
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