F.E.A.S.T's Around The Dinner Table forum

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krae

Tina72 you have previously said that there is a close corellation to the genes (genetically) for schizophrenia and the genetic gene for AN lies very close to that. Can you please point me to a web site that can I can read (non scientific) as I'm really struggling with D at the moment.

I need to understand more of her make up to make her get well.

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Mcmum
Me too please. If anyone has any substantial links I'd be interested. My dad had schizophrenia, I had epilepsy and so on. Lots of brain disorders in our family.
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tina72
Here you are, krae:

https://www.kcl.ac.uk/ioppn/news/records/2017/may/researchers-identify-first-genetic-variant-for-anorexia-nervosa.aspx

https://medicalxpress.com/news/2017-06-anorexia-nervosa-genetic-basis.html

You will find more links if you google "anorexia" and "shizophrenia" and "diabetes".

What helped me a lot to understand the biochemical prozesses in her brain was Carrie Arnolds book "Decoding anorexia". Did you already read that?

Can we help you with the struggle? What are your problems at the moment?

Tina72

Keep feeding. There is light at the end of the tunnel.
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krae
Thanks Tina - my struggle is LIFE at the moment but it will get better - We can do this as parents. even tho they will hate us as we are doing it to save their life!
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tina72
Oh, LIFE is a common problem here [wink]. Yes, it will get better, but it is also o.k. to come here and vent. What is worst at the moment?
Keep feeding. There is light at the end of the tunnel.
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deenl
Schizophrenia, bipolar, personality disorders, high intelligence, depression, anxiety, cPTSD, ARFID, ADHD, dyslexia all in our gene pool. My gut feeling is that many of the genes are on the same bundle and the environment switches different combos on and off which causes the differing illnesses.

The family member who has schizophrenia has had multiple periods of severe malnourishment over the years. It is possible that the food restrictions are a manifestation of the delusions for example a fear that the food has been poisoned. It is also possible to have comorbid ED and schizophrenia. It's probably no coincidence that olanzapine, an anti psychotic medication, has been found to be helpful to some in refeeding.

I would always caution against giving too much weight to extreme symptoms while undernourished unless they are preventing nutritional rehabilitation. I believe that I have read somewhere that severe malnutrition can cause psychotic episodes although it is relatively rare. Making it all the more confusing and difficult is of course the fact that both ED and schizophrenia both generally develop in the teens and there are the few who will have both. I guess I'm saying to just keep an open mind and not to consider any diagnosis final. My son had a provisional diagnosis of ASD while ill that professionals have later acknowledged to be incorrect.

For anyone wishing to read more on schizophrenia 'Surviving Schizophrenia' is very good although there is no discussion about co-morbids. I love the Appendix A: An annoted List of the Best and the Worst Books on Schizophrenia. His reviews of the worst books is comedy gold; he is absolutely scathing.

And, of course, the classic 'I am not sick,I don't need help' on working with ADULT people suffering from anosognosia with the aim of maintaining their treatment. I think this book is incredibly useful also for families where a member has long term, treatment resistant ED but it is NOT at all suitable for families of children.

It's great that you are gathering lots of information. It is one of the most important tools we have.


Warm wishes

D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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krae
What is worst, I can't get her to eat enough to be WR. She fights all the time about what she has to eat. I'm now in a position I have never wanted to be in that she will eat certain foods only and when wants.

Fighting is sooo hard but with these young people it is nesesssary.

On saying that, D doesn't always completely eat everything that has been given to her.

Sorry Tina I have to go to bed , need sleep, emotionally not well at the moment. I'll be back tho and "WHEN ARE YOU COMING TO AUSTRALIA" ?
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tina72
So I hope you will find your big girl pants tomorrow after a hopefully good sleep, Krae. There are times when it is harder and WR is such a thing. I did not get her over the target weight before I was able to do blind weighing and not without secret adding and smoothies.

Are you still with phase 1? I think so. What do you do when she refuses food or portion sizes? You say she does not always completely eat what you serve. What consequences does that have? If she eats certain food only when she wants, what food is that? The typical fear foods or something else?
Maybe we can help you with ideas when you tell us more detailed where you struggle...

I would so love to come to you at the moment. I feel so for you. It is so hard to have that power for a long time. It sucks, really.
Please feel hugged and try to have some sleep. Tomorrow is another day for a new fight. Rome was not built in one day we say here. One step after another.

Tina72
Keep feeding. There is light at the end of the tunnel.
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krae
Thanks deenl for the info, I don't really don't think D is schizophrenic but ED certainly presents in that manner at times.

Tina yes we are still in phase 1. It's just going on 6 months and it feels like we've been here forever. If D doesn't complete her meal she has to lay on the sofa and not do anything until the next meal.  I'm completely baffled with 'fear food' as she will eat pasta willingly but can only approach rice when it is in sushi!

I can see she is really struggling with the change to her body as she has gained 5 kg but will not talk to me about how she feels. I never comment on how she looks, or her clothes, unless she asks  - does this top look ok with this?

I have just gotten up today and am off to the shower shortly - And will definitely put on my BIG GIRL PANTS today!!! [smile]

Thanks Tina for your hugs they are always greatly appreciated, you are such a compassionate person, as all are on here. xx





























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