F.E.A.S.T's Around The Dinner Table forum

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KLB
Normally S hovers around 54/55 but yesterday and today his resting heart rate has dropped to around 51/52. I know hospital is advised if it's below 50 but I'm not sure if I need to be concerned or not? Can't get hold of Uncle to ask as he's at work. Am I over reacting here? 
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Enn
I don’t think you are overreacting. And the team did say to watch if below 50. For me that is close enough. Can you get him assessed?
how is he feeling otherwise? Dizzy when he stands? Then needs an assessment.
Do you do his BP at home too? If so if there is a drop please get him assessed today.
i tend to ‘overcall’ things so I don’t miss anything. Others may have a differing approach.
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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KLB
Thankyou. He says he feels fine, no dizziness. Blood pressure is fine. He's been eating. I think I'll try and get him in to the GP tomorrow. 
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deenl
Hi KLB,

When our son was very ill like yours we had to do blood pressure, heart rate and temperature at home too. There were a couple of scarey moments.

At one of them his BP dropped below the measurements we had been given by our doctor, but only just. As going to hospital would have freaked him out totally and he had PTSD symptoms from the previous horrific trip, I rang the hospital to see if we really, truely needed to go down. Our doctor had already briefed them on our son's case and had instructions on his file. After some consultation behind the scenes, they rang us back to say that we did not need to go down. This was based not only on the one scarey measurement but on the daily measurements that I emailed to the doctor, together with the amounts eaten and a weekly check-up with the doctor. Of course, it goes without saying that each case will be different and if in doubt better to be cautious and go to ER.

Another incident happened when our son was working in the workshop and accidently got too cold. He temperature at the time was always under normal due to malnutrition but it dipped even lower while he was occupied with his craftwork. He came to me complaining of feeling unwell so we took his measurements and his heart rate had dipped severely with the cold. We got him a hot water bottle, a blanket (actually a mountain of blankets!) and a warm drink. We took his vitals again after 10 minutes and I did not contact the hospital because they were returning to normal. I continued to monitor his vital signs every ten minutes until they were normal and every half hour after that for a number of hours. We would have made different decisions if the hospital was not a relaxed 5 minutes from the house and much less if we were driving because of an emergency.

We were lucky that the heart films that he has had have all shown no permanent damage. But I get the impressions that it varies a great deal among individuals.

I hope that all is well again there. I will be thinking of you.

Wishing you continued strength and courage,

D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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Enn
KLB 
I think it is reassuring  that he feels well and BP fine.
and for sure if there is a change or you are concerned, you can reach out for help.
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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jcutch
I also remember in the beginning my son’s HR dropping at a point to 48. Seen by doctor in office but Doctor did not admit because his other vitals were ok and was not having “symptoms”. (Should have been admitted) I would warm him up too. Low heart rate is serious. Recheck him and his vitals frequently. Below 50, I would have him admitted to monitor.
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deenl
Our doctor told us to make sure that our son's bedroom was warmer than normal, around 20/21 degrees. 

D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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Enn
KLB,

http://cedd.org.au/wordpress/wp-content/uploads/2014/09/Guidelines-for-the-admission-of-children-and-young-people-with-an-eating-disorder.pdf
https://higherlogicdownload.s3.amazonaws.com/AEDWEB/05656ea0-59c9-4dd4-b832-07a3fea58f4c/UploadedImages/AED_Medical_Care_Guidelines_English_04_03_18_a.pdf

Please note there are many guidelines for admission criteria for eating disorders. They are very similar though.
Just wished you to have this. I am sure you have seen some of these before.
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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KLB
He likes it cold as he gets night sweats from the hypermetabolism but I'll keep an eye on his temperature too. Thanks everyone. 
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ValentinaGermania
KLB, I was off some days, how is your son?
Keep feeding. There is light at the end of the tunnel.
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KLB
tina72 wrote:
KLB, I was off some days, how is your son?


Hes ok thanks tina. Seems to have just been a blip. Back up to his normal now. Perhaps it was temperature related. Don't know. Thanks for thinking of him. I hope you and your d are well. 
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ValentinaGermania
We are, thanks for asking. We have been to a short holiday trip (just me and hubby) and my d was on a field trip with University (successfully eating all alone there for 5 days).
Good to hear that it was only a blip. We always freak out if something strange happens, aren´t we? 😓
Keep feeding. There is light at the end of the tunnel.
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krae
KLB I'm glad that all is good with S resting heart rate, I know that my d fluctuates and it causes me great concern. Apparently she is ok medically, going from advice I have had from her nurse, although her heart rate does dip at times. D has a low heart rate and also low blood  pressure. All within normal range but on the low side.
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