F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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Hope44
Good morning,

This is my first post on this forum.  I have a 15 year old daughter with anorexia.  She is currently inpatient at Sheppard Pratt.  Does anyone have experience with the program there?  She has been there approximately 2 weeks.  She said some of the kids there have been there months.  Does anyone have any information they can provide about how long inpatient lasts, we are hoping to get her to step down to partial hospital soon.  Can anyone recommend any support groups in the the area?  I'm struggling as well and want to make sure I'm supporting her in the best way possible.

Thanks so much!
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ValentinaGermania
Hi Hope44 and a very warm welcome from Germany! I am sorry that you need to be here in that forum nobody wants to be member of.
I can give you no recommendations on Sheppard Pratt or the Maryland area. But I am sure someone else will be here to help with that soon.
I can help a bit with your other questions:
How long IP stays last depends on the severity of the case. The more weight they need to regain, the more fear food needs to be tackled, the more bad ED behaviours like purging and over exercising must we worked on the longer it will last. Some are IP for weeks and some really hard cases for more than a year. Here in Germany the everage IP stay ist about 4-5 months but that is not common for US standards I think. I am sure someone will help with that too.
How to support her in the best way: learn all you need to know about ED and learn how to refeed her. There is excellent information on Feast webside (did you already see the FEAST family guides?) and you can learn a lot here in the forum. Here are a lot of old rabbits that are now on the other side of that tunnel and that can help you. Ask, ask, ask.
A good start is Eva Musbys book and her webside https://anorexiafamily.com/ and her youtube videos.

To give you some hope, I was where you are 2 1/2 years ago. My d was 17 at diagnose and IP for 3 months. We did FBT at home then and it took another 3 months to get her weight restorated. She is now in year 3 of recovery, did finish school and is off to University since last October and she is doing very well. Recovery from AN is possible.
Keep feeding. There is light at the end of the tunnel.
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ValentinaGermania
The maudsley parents webside lists these treatment providers in Maryland:

MARYLAND

Center for Eating Disorders
Sheppard Pratt
Physicians Pavilion North, Suite 300
6535 North Charles Street
Baltimore, MD 21204
(410) 938-5252
http://www.eatingdisorder.org

 Dina Wientge, LCSW-C

Johns Hopkins Eating Disorders Program


600 N. Wolfe Street, Meyer 101


Baltimore, MD 21287


(410) 955-3863

http://www.hopkinsmedicine.org/eatingdisorders

 

Laura K. Ratner, LCSW-C, BCD
4701 Willard Avenue, Suite 230
Chevy Chase, MD 20815
(301) 652-0695
LKRatner@aol.com

Psychotherapist who has used individually tailored family-based interventions to treat children, adolescents and adults with eating disorders. Utilizes family member in a focused way with the primary goal of symptom resolution. Coordinates treatment with nutritionists, primary care physicians and psychiatrists as needed.

Ann Jacob Smith, Ph.D., LCPC, NCC
5480 Wisconsin Ave., Suite 204
Chevy Chase, MD 20815
240-753-3775
Attended training workshop with Drs. Lock and le Grange. "I view parents as essential members of the treatment team. My role is to mobilize the family around helping their child deal with a deadly disease.  If there are difficulties that keep the parents from being able to help their children, I help the parents to figure out how to work through those difficulties."

Washington Center for Eating Disorders and Adolescent Obesity
6410 Rockledge Drive, Ste. 412
Bethesda, MD 20817
(301) 530-0676
http://www.washingtoncenteronline.com
Formerly Suburban Hospital Center for Eating Disorders.

Keep feeding. There is light at the end of the tunnel.
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Enn
Welcome to the forum Hope44,
I do hope you find the support and information you need.
I am not sure we can really tell you how long IP  stays are . It is so individual. My d was admitted for 3.5 weeks others longer and others had shorter stays. They should be assessing your child's needs regularly.  I would consider asking the team what they feel is required and what their thoughts are about her admission and their plans for discharge.
Do you feel she is being supported and cared for?

I know others will be here soon to give you more specifics on the program your d has been admitted to and their opinions.

As for support groups, there is the ATDT Facebook page and there are "coffee breaks" where you may find others to connect with in real life in your area. 
It is a closed group the Facebook page and you can join as a carer. 

Please ask all the questions you have. We all wish to help.
 I hope while your d is IP, that you take time for yourself. 
Sending kind thoughts and greetings.
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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mtkmbc4
I will say this as gently as possible so as to not worry you, but our family has experience with Sheppard Pratt and I would never recommend it. Parents were not involved in care, there was no parent support/training for feeding at home and no discussion or help with step down of care. It is possible that they have improved since we had our experience three years ago.
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Hope44
Thank you so much to everyone for all the good information and support.  Mtkmbc4, thank you for the feedback on Sheppard Pratt.  Are there other treatment centers you have found that you would recommend?  So far, we are having an okay time at SP but would love additional information about options in the area if we need to try something else in the future.  Unfortunately, my daughter is still in denial that she has an issue.  So I worry this will be a long road. 
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Foodsupport_AUS
Welcome to the forum. I can offer no personal feedback on Sheppard Pratt, however if you go to the provider's forum  - via categories - you can do a search for feedback. There has been a lot of negative feedback on Sheppard Pratt in the past. 

Reading as much as you can about eating disorders is really helpful to understand more of what your daughter is going to. A really comprehensive book about eating disorders is When your teen has an eating disorder

It gives lots of strategies for support. It is common for someone with an eating disorder to deny either the severity or the existence at all. A condition called anosognosia. 
D diagnosed restrictive AN June 2010 age 13. Initially weight restored 2012. Relapse and continuously edging towards recovery. Treatment: multiple hospitalisations and individual and family therapy.
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ValentinaGermania
What about the 5 day intense family programs? At UCSD or UCSF? Would that be an option to you? Looking back I would have taken all money and go with my d to these programs very early. It is quick help, it is intense and you learn all you need to know about refeeding in a very short time. It is highly recommended here.
Keep feeding. There is light at the end of the tunnel.
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mtkmbc4
Yes, I second Tina’s idea. There are no published upcoming dates for UCSD’s 5 day intensive family program but it’s worth it to keep checking back for next availability. UCSF is a sister program.

https://eatingdisorders.ucsf.edu/intensive-family-treatment-program


http://eatingdisorders.ucsd.edu/treatment/oneweek-intensive-treatment-programs.html

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tryingmom
Hi.  This will be a long post, so bear with me.  My daughter was at SP about ten years ago. She is now healthy, married, and successful in her career.  We had a very long road.  I'll give you my reviews of Maryland, D.C. and Virginia facilities and what I would do now if we were just starting out.
Sheppard Pratt - I thought it was remarkably parent un-friendly.  Parents met with their child in the dining room/common room area.  I still remember walking down to the nurse's station to ask a question and being shooed back.  I went to one parent support group meeting and the therapist literally said "don't be the food police" which is pretty incompatible with Maudsley.  My husband and I met with the psychiatrist only twice over the course of many weeks.  There was no education on how to help our daughter at home.  We also did the partial hospitalization.  I found evidence that my daughter was self-harming, called the unit, and was given no help or concern.

I called a doctor at  Dominion Hospital in Virginia and she was admitted.  They were helpful on the depression side, not so much on eating.  They have since established a more formal ED unit.  I don't know how good it is.  We never found a place that was good at both Eds and depression.

Hopkins - My daughter was there twice, plus we did the partial hospitalization program and she and I lived in a Hopkins townhouse rental while she was there.  Again, very little parent support/involvement.  They were good at strictness, i.e., patients were in the lounge under observation all day.  I have no sense of how effective their approach was.  It didn't seem to help her.  The meal plan at the time was very cafeteria/fast food oriented, not particularly helpful for home cooking.  And it didn't have a calcium component, which I found strange.  Her second time there, she was there for several months, ostensibly for medication management.  Nothing was changing, her sophomore year was disappearing, and her outpatient psychiatrist agreed that we should get her discharged.  All in all, however, I thought Hopkins was better than SP.  I'm not sure if they still take minors, though.

National Children's Hospital, D.C. - The psych unit is pretty bad.  I pulled her out of there Against Medical Advice.  I've since met another parent who did the same thing.  Dr. Silber (not sure if he's stlll practicing) was in charge of the outpatient ED program in Spring Valley, D.C.  I like him and he was pretty current with treatment approaches.  The outpatient program itself was a mixed bag, but good for medical monitoring.

We did not find a therapist that my d would connect with, and tried many, as well as several psychiatrists.  The only one she liked was Dr. Steven Polakoff in Chevy Chase.  He did the best job with meds.  Also, he provided ECT treatments to her at Sibley Hospital.  She had researched ECT and really wanted to try it.  She says it was the most helpful thing of all the many approaches we tried.  It was very scary for me, but I think it was the right thing.  If you search for my earlier posts, you can read more details.  She made multiple suicide attempts, so we really needed something for depression.  

Outside of this area, she also spent several months at Laureate in Tulsa, OK.  That was far superior to any of the local hospitals.  The staff were truly caring and supportive. She was fully weight restored (I think this was in 8th grade).  Some of the doctors have since gone to Denver, so I'm not up to date on how good the program is now.

If I were doing this today, these are some of the things I'd try.
1. Go to Children's Hospital of Philadelphia, Dr. Peebles.  They seems to be the best in the mid-Atlantic area.
2. Do the UCSD five day intensive program if it is available.
3. Look into Woodland Forge in Valley Forge, PA.  I never talked to them, but the website looked very promising.
4. I'd look at the Kartini Clinic.

My overall feeling is that the most important thing is that your family learn how to manage her eating at home and be prepared for intense pushback from your daughter.  I think that, if she feels that she has no choice except to eat, and that it is your decision, not hers, it's much easier for her to do it.  I think that there is a voice in their head which punishes them for eating.  If you are in charge, they can tell the voice it's not their fault.   If whatever treatment program she is in is not fully preparing you to do this, then it's not going to help her in the long run.

Please don't be discouraged.  I think the key is to get the best treatment and advice early on.  The longer she is ill, the longer it takes to recover.
Best,
Tryingmom
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ValentinaGermania
tryingmom wrote:
She is now healthy, married, and successful in her career.  We had a very long road.


So great to hear that!!! It is so encouraging to hear from others that are on the other side.

tryingmom wrote:
My overall feeling is that the most important thing is that your family learn how to manage her eating at home and be prepared for intense pushback from your daughter.  I think that, if she feels that she has no choice except to eat, and that it is your decision, not hers, it's much easier for her to do it.  I think that there is a voice in their head which punishes them for eating.  If you are in charge, they can tell the voice it's not their fault.   If whatever treatment program she is in is not fully preparing you to do this, then it's not going to help her in the long run.


Nothing to add. That is what it is all about. If they do not help you to learn how to get the food in you cannot help them.
Keep feeding. There is light at the end of the tunnel.
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mtkmbc4
I want to add that Woodland Forge in Philadelphia suburbs no longer has an intensive family program. Their website has not been updated to reflect that change. They (husband and wife team who practice out of their home) do FBT weekly and other psychiatric care. They don’t participate with insurance companies although you can submit itemized receipts to your insurance company if you get reimbursed partially for out of network care.
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