F.E.A.S.T's Around The Dinner Table forum

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cm72
Hello all.
Positive news: my 12 year old daughter is doing incredible after being diagnosed at the age of 10. She's gained all the weight back, grown several inches and started her period. Her anxiety and personality will be something to continue to work on  but at least she's eating great.
Her 14 year old sister has always complained about feeling a lump in her throat sometimes when she eats and I wondered if anyone has ever heard of that. We had a bunch of tests done a couple of years ago including a camera down her esophagus but didn't see anything. Recently she lost 5 pounds and seeing that she is already skinny, she looks even skinnier now. If I take her to fast food places, she happily eats. Or if there's junk food in the house, she's fine eating it. But eating at home, she's not too good at (perhaps a typical teenager?)
She has complained about this lump in the throat for years so I don't think it's a eating disorder. But i'm terrified it can turn into one if she continues to lose weight. 
Just putting it out there to see if anyone has any thoughts.
Thanks.
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Enn
When there is the sensation of a "lump in the throat " when swallowing. That can be so  many things.
I would urge you to take her to the doctor again if you feel she is having significant symptoms. 
Does she get it when she is anxious or upset? Globus pharyngeus is another thing I just thought of https://www.medicalnewstoday.com/articles/318633#What-is-the-globus-sensation

The way to figure if there is truly a motility issue or localized external pressure on the lower pharynx is to do a swallowing study. The esophageal scope looks at the area past the pharynx and may miss any upper pathology.
https://www.radiologyinfo.org/en/info.cfm?pg=modbariumswallow

Have you tried to get her weight up? Have you weighed her? I think that would be my first task. If she can eat different foods, it is unlikely that the swallowing issue is significantly bothering her.,
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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cm72
She does have a esophagram scheduled next week. This is her second one (last one was a year or two ago). I
I've never heard of Globus sensation. How interesting!! I often wondered if this was due to stress or anxiety.
She was weighed at the doctor's office and that's when I found out about the five pound weight loss. I need to start giving her shakes (she loves those) to try to get that weight back up.  She can eat all kinds of things with no problem. She just asked for some ice cream. 
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Enn
Here is a chart I found 
https://www.wellspan.org/media/4111/mbs-vs-esophagram-r3-28-2012.pdf

are her symptoms above the collar bone or below? Different tests for different issues. The chart is quite nice.
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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atdt31_US
A thyroid module can feel like that (assuming your are saying the sensation is always there as opposed to comes and goes).  Very often palpable by good examiner from the outside. Thyroid tests often normal. 
Mom of either pre-diagnosis or non-ed underweight 12 yoa (as of March 2018) kid here to learn how to achieve weight gain.  BMI steadily in the mid 12's for nearly her entire life.  Born 2006. UPDATE:  April 2018 diagnosed ARFID, based solely on weight being less than 75% of Ideal Body Weight.  Mildly picky, but mostly the problem is a volume/early satiety issue, along with abdominal discomfort and chronic constipation, all present since birth.  UPDATE:  July 2019 diagnosed with PANS. Dr. said likely started first PANS episode at less than 1 or 2 years of age.  On long-term daily prophylactic antibiotics. BMI now about 16 after period of intense refeeding prior to PANS dx,  followed by stagnation as we sort out what is next. FWIW ED-D is a fraternal twin and we have no other kids.
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cm72
Erin-what a great chart. Thanks!
atd31_US  This is definitely not thyroid. The sensation does come and go. Not always there. 
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deenl
Hi cm72,

I wonder if you keep a diary of when she mentions it, what she is eating, whether she is anxious about anything and any other details you find relevant. It might help any patterns to show up.

Shakes sound like a super idea.

Wonderful to hear that your other daughter is doing well.

Warm wishes,

D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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