F.E.A.S.T's Around The Dinner Table forum

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catbells
My d is currently in hospital and is waiting for an IP bed. CAHMs rang me today to say that there is a bed likely to be available in 2-3 weeks at the PRiory in Manchester.
I looked on here but can't see if anyone has any experience of it. However I looked wider online and the reviews I found have scared me. Stories of bullying staff, inexperienced agency staff, weight loss etc
I don't know what to do. I'm assuming you can't refuse a place until another one comes along when we have been desperate for help? I feel sick at the thought of my d going somewhere that could potentially make her worse. Or am I overreacting? I'm hoping someone on here has a good experience to tell me

Mum to 17y/o D living in England. RAN since Sept 2015. Refed at home but after getting within 3kg of WR D relapsed July 2016. hospital twice and then IP  Sept 2016 - Jan 2018. Now continuing the battle at home...
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PhysMum_UK

catsbells, If the reviews you saw inline were on the NHS choices website I would advise you take them with a pinch of salt. They are often written by ex-patients who are still unwell. The Quality Care Commission visited the Manchester Priory in January this year and rated it Good across the board. The staff especially were said to be supportive. I've attached a link to their very thorough report. They are unbiased and talk to patients, staff etc. I hope this eases your mind (our local ED unit did not do well at all...)

http://www.cqc.org.uk/location/1-127132097/reports

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catbells
Thankyou PhysMum. I did wonder if it may have been something like that. I'll have a good read but I've just scanned the summary and feel better already. The worry just never ends does it?
Mum to 17y/o D living in England. RAN since Sept 2015. Refed at home but after getting within 3kg of WR D relapsed July 2016. hospital twice and then IP  Sept 2016 - Jan 2018. Now continuing the battle at home...
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NellyMac_UK
I have sent you an email - I think! Haven't tried to do it before so let me know if you don't get it x
Diagnosed RAN October 2013, w/r but struggling with depression and anxiety.
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catbells
Thanks Nelly. I've messaged you back. I'm much more relaxed now. So Thankyou! x
Mum to 17y/o D living in England. RAN since Sept 2015. Refed at home but after getting within 3kg of WR D relapsed July 2016. hospital twice and then IP  Sept 2016 - Jan 2018. Now continuing the battle at home...
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pipes2406
Hi Catbells - my d has spent 6 months at the Altrincham Priory and is making wonderful progress - we are so proud of her bravery and fighting spirit! She is nearly WR and has in the last few weeks started the process of moving from NG feeding to oral feeds. The two hospitals are linked - she goes to Cheadle 3 times a week for education during term time. Her journey hasn't been without issues and inexperienced agency staff has been a big part of that, but I found that they listen when we feed back and have actually changed the agency they use as a result of a couple of the parents feedback. I don't know how the Cheadle site is set up for EDs but Altrincham have a lovely unit with 15 beds and the staff are very supportive in general and good at keeping us informed. Good luck to you and your d in the next stage of her recovery journey. X
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catbells
Hi Pipes - thanks so much for the reply and sorry for the delay in getting back to you. Great news on your d - it fills me with hope. Good that they listen and take feedback. That is very encouraging.
My d is currently struggling so mainly on NG feeds at the moment on the childrens' ward that she is on.
We have a doctor coming from the Priory tomorrow to assess her - I'm hoping and praying that they will agree to take her and give her a date for admission.

Wishing your d continued recovery x
Mum to 17y/o D living in England. RAN since Sept 2015. Refed at home but after getting within 3kg of WR D relapsed July 2016. hospital twice and then IP  Sept 2016 - Jan 2018. Now continuing the battle at home...
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ooKoo

Catbells,  good luck for tomorrow.  I hope the Dr is able to fill you with confidence and and give you an admission date. x

UK - South East

19 yo D

Dx AN Feb 2015 (Aged 15). Pre-existing low self-esteen and high anxiety. 

2015: 3 x medical hospital admissions. 1 month in IP which she self discharged from [eek].
2016: 3 x hospital admissions. 
2017: CAMHS CBT. WR, dropped out of 2 different colleges and started an apprenticeship.  Started having grand mal seizures and was diagnosed with epilepsy in Nov 2017. Sacked from job because of this.  Tribunal ensued.
2018 - doing a Psychology degree through Open University and working in retail to pay her way in life. Relapses with eating disorder in June 18 and Nov 18 😢. 

On particularly rough days when I am sure I can't possibly endure, I like to remind myself that my track record for getting through bad days so far is 100% and that's pretty good. [Author Unknown]
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pipes2406
Sorry it's taken me a long time to reply Catbells. I see from your other post that the assessment went well and you're just waiting for the bed. Keep us posted. Did they confirm whether it was Cheadle or Altrincham she was going to?
Hang in there - this will be a nightmarish rollercoaster to start with, but you are making the right decision and although it will take some time, you have the experts helping your d get the support she needs to get well. She sounds motivated to recover which is the first major hurdle.
Keeping you in my thought - keep fighting x
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catbells
Hi Pipes. It's Altrincham and we got word on Friday that she goes in tomorrow (Monday). D hovers between wanting to go and not wanting. Typical I guess. We're just hoping this helps her. She's still on the NG tube but hoping she will feel able to try to be without it as she will be getting the right support.
Thanks for your feedback. It's so reassuring xx
Mum to 17y/o D living in England. RAN since Sept 2015. Refed at home but after getting within 3kg of WR D relapsed July 2016. hospital twice and then IP  Sept 2016 - Jan 2018. Now continuing the battle at home...
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pipes2406
That's great news that you've got her in there. My D is at Altrincham, so I'll drop you an email - if you need any help or support or advice, happy to help. Perhaps if we're both visiting we can pop for a coffee xx
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catbells
Hi Pipes that would be lovely. She was so nervous which wasn't helped by a fire alarm going off during the initial admittance. We all had to vacate the building and as She hasn't walked anywhere other than her hospital room for 5 weeks promptly fainted when she returned after the all clear was given. The stress and exertion was too much.
When she got to her room, the other girls had made her a welcome card and some had written a letter. So thoughtful and eased her anxiety a bit. Lovely to think your d may have played a part in that!
We've had tears on the phone tonight but I expected that. She's in good safe hands and I have no doubt that this is the best thing for her.
Hopefully we can meet up soon? X
Mum to 17y/o D living in England. RAN since Sept 2015. Refed at home but after getting within 3kg of WR D relapsed July 2016. hospital twice and then IP  Sept 2016 - Jan 2018. Now continuing the battle at home...
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