F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

Join these conversations already in progress:
• Road To Recovery - Stories of Hope
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Visit the F.E.A.S.T website for information and support.

If you need help using the forum please reach out to one of the moderators (listed below), or email us at bronwen@feast-ed.org.

LauraCollins_US
Please join us in doing and sharing this research study:

https://www.eatingdisordertherapyla.com/volunteers-needed-for-eating-disorder-recovery-research-study/

SO important!!
Laura (Collins) Lyster-Mensh
F.E.A.S.T. Executive Director
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tina72
Hi Laura,
I tried to do it 3 times now and I do not get through it. At the start you can decide to give them lbs or kg but then several pages later when you are asked about target weight I gave the numbers like in the e.g. but it was not accepted. Maybe due to foreign country. I did my best 🙂.
Keep feeding. There is light at the end of the tunnel.
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tina72
Thanks mimi321, I am so relieved, I thought I am not clever enough to do it 😕
Keep feeding. There is light at the end of the tunnel.
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MarcellaUK
I am also not from the US and found it difficult. There is probably a computer somewhere in melt down over the few dates I gave as I have written some of them in British and my daughter was born on 31st January. Still I gave it a go 
Fiona Marcella UK
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Foodsupport_AUS
I actually found it ok, but I didn't attempt to type in the dates and weights. I uploaded the data I had from mygrowthcharts.com - saved it as a pdf and deleted the personal data. If you upload a chart it doesn't ask you to enter dates and weights again. 
D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
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tina72
Here it was the question about target weight range set by professionals that I was not able to cross.
Keep feeding. There is light at the end of the tunnel.
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LauraCollins_US
Thank you everyone for these questions and discussion. Sending to the researchers!
Laura (Collins) Lyster-Mensh
F.E.A.S.T. Executive Director
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LauraCollins_US
A response from one of the researchers, on the question of when you don't have a lot of information:

"Yes! Any data is helpful. We’ll go with whatever they have (which is why we ask the question in so many ways)."
Laura (Collins) Lyster-Mensh
F.E.A.S.T. Executive Director
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scaredmom
Thanks,
I have filled out what I can and hope it is helpful.
Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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LauraCollins_US
Thanks to the comments above, the researchers identified a problem that is now fixed: THANK YOU, EVERYONE!!
Laura (Collins) Lyster-Mensh
F.E.A.S.T. Executive Director
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drmuhlheim
Thanks to all for your feedback and work on this survey. We did identify a bug in one of the questions and it is now fixed, as Laura says. We hope those of you who didn't finish will no go back and complete the survey (your responses are all saved). If you are missing data, don't worrry; we'll take whatever you have. Please help spread the word; your time on this is really valuable. We are getting a lot of great information from the responses we already have and think it will be very meaningful. 
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cm72
Done!
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Mamaroo
Done! - just a note the BMI range at the beginning of the survey is missing 75 - 85% range.
D became obsessed with exercise at age 9 and started eating 'healthy' at age 9.5. Restricting couple of months later. IP for 2 weeks at age 10. Slowly refed for months on Ensures alone, followed by swap over with food at a snails pace. WR after a year at age 11 in March 2017. View my recipes on my YouTube channel: https://www.youtube.com/channel/UCKLW6A6sDO3ZDq8npNm8_ww
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deenl
Done.

I hope the come back and let us know what they find out!

D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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atdt31_US
typed in some narratives but then the next screen would seemingly re-ask the same question.  Not sure if my original got eaten or if the program did ask very similar questions.  Hopefully the info was received.  
Mom of either pre-diagnosis or non-ed underweight 12 yoa (as of March 2018) kid here to learn how to achieve weight gain.  BMI steadily in the mid 12's for nearly her entire life.  Born 2006. UPDATE:  April 2018 diagnosed ARFID, based solely on weight being less than 75% of Ideal Body Weight.  Mildly picky, but mostly the problem is a volume/early satiety issue, along with abdominal discomfort and chronic constipation, all present since birth. FWIW ED-D is a fraternal twin and we have no other kids.
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deenl
The researchers are making a final push to get enough replies to reach their quota. This will help ensure that the data is meaningful and that parental experiences are heard and valued. They are also looking at the VERY important topic of what real recovery looks like (Hint: for most it is not simply a BMI of 18.5 ðŸ˜°)

If you have not done so already, please try to find time to fill it in.

Many thanks,

D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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