F.E.A.S.T's Around The Dinner Table forum

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wackamole
So, my daughter has been AN for about 9 mos.  She's gaining weight and says she wants to recover.  Now she tells us she's been binging and purging.  WTF

Said it just started, she hasn't done it much, this is after she told me to my face when I asked her as she ran to the bathroom right after a meal if she purged that she doesn't do that.  She also told me and the therapist she felt those urges but she doesn't do that.

I have no idea what to believe.  My honest child is now being held captive by an abusive, lying demon!  Could she be in the first part of the new B/P disease or has she been doing it for a long time?  I'm taking her to the dentist as soon as I can get her in.  I guess that will tell a tale.  She's an adult so she's going to have to give me permission to speak to the dentist.  

Just when I think we are doing well and address an issue, another worse issue pops up.  I'm sick to my stomach at this new issue.  

Did any of your kids tell you honestly when that behavior started or is this just another in a long string of lies?
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scaredmom
Hi wackamole,
I welcome you to the club that no one would ever wish to join, willingly. But I am so glad that you found us and hope we can provide you with support you need. 
This can happen and it needs to be stopped. 
It is ED and not your D. They are all quite honest but ED makes them lie and yes takes them hostage. She told you and I think that is a good first step to helping her. 
Does she live with you? 

My d although not an adult, has never told me when or why it started, unfortunately. But knowing that or not, should not change the fact that you can help her to move from this moment forward.
Please ask all the questions you have. We do wish to help.
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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Foodsupport_AUS
Welcome to the forum. Eating disorders thrive in secrecy, so not admitting to behaviours is expected with them. At the same time it doesn't really matter how long your D has been binge purging. What matters is where she is now, her medical safety and how her binge purge behaviours can be managed. 

Binge purging is a particularly dangerous behaviour because of the risk of electrolyte disturbances and their effects on the heart. No amount is "safe". How can we help you to help her?
D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
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tina72
Hi and a very warm welcome from Germany!
It is very common that our lovely and always honest kids start to ly with ED. ED is a very bad bully and makes them do very strange things you never thought they will do.
It is also quite common that they start to binge at some time during refeeding when you give back freedom with eating too soon. Did you do FBT with refeeding up to now? Is she eating regular 3 meals 2-3 snacks a day? Who serves the meals at the moment? Is she living with you?
How old is she and is she still financially depended from you? Who buys the food that she binges with?
Sorry for so many questions but we need a bit more information to be able to help you better.
Keep feeding. There is light at the end of the tunnel.
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Pingu
I hope I'm not speaking out of turn and can only go from my experience of ED personally but I had the restrictive phase then did the binge and purge think it's quite a common cycle. I didn't binge cos I was hungry it was because I hated myself. I was an adult so could be secretive about it but I do remember one day taking a handful of a cream cake and just ramming it into my mouth. Tears were rolling down my face and it was the ultimate way to hate myself. 
The purging as I've mentioned before is a stress reliever too. As gross as it sounds you can enjoy the food again if say its ice cream or something like that  . Otherwise the act of purging must release endorphins because it also makes you feel powerful once you've emptied your stomach or it did for me.  Even now if I'm mega stressed I will use a toothbrush to just wretch as I find that a tension breaker. 
As I said this is how I felt I had it fro. 16 yrs to 31 yrs. I may be talking total tosh but thought I'd share
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wackamole
So, we thought it has stopped but I caught her purging in the shower tonight.  She said it had stopped but is only been going on for a week.  I don't believe her.  I hate this disease and all the horrible things that it has caused.  My poor daughter was devastated tonight.  Sobbing, so embarrassed and ashamed.  I don't know what to do.  Should I restrict everything, no flushing of the toilets, showers that are supervised?  It's just utterly devastating to see this in her.  And she says she's lost motivation?  I know she's probably not weight restored if this is the case.  Do I just keep feeding her and pray that these things will resolve?  I don't know what to do.  She is on fluoxetine HCL, I did see that they saw purging as side effect in one study.  Do I speak to the doctor about that?  It is just never ending..,
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tina72
wackamole wrote:
  Should I restrict everything, no flushing of the toilets, showers that are supervised?  It's just utterly devastating to see this in her.  And she says she's lost motivation?  I know she's probably not weight restored if this is the case.  Do I just keep feeding her and pray that these things will resolve?  I don't know what to do.  She is on fluoxetine HCL, I did see that they saw purging as side effect in one study.  Do I speak to the doctor about that?  It is just never ending..,


Yes, yes and yes.
You need to do EVERYTHING possible to stop purging. It is really dangerous and very hard to get rid of. Purging and over-exercising are the hardest symptoms of ED. So no flushing, no unsupervised showers, no bathroom door if needed. 1:1 supervision for some time x to help her to stop it. She cannot stop it herself.

You also need to up her intake as she is maybe not really WR if there is still ED behaviour left. I do not remember her age but when she is not grown out and around 20 there is no target weight and no WR at all. They need to gain until their mid 20s.

You also need to tell it to the doctor. You will need blood tests done to see how long this is going on (most parents recognise it when it is going on for months) and how bad the damage to her body already is. Purging is very dangerous.

I do not really think it is a side effect of meds. This is normally ED.
Keep feeding. There is light at the end of the tunnel.
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Francie
Wackamole,  I just came upon this and it has some helpful tips about how to help with purging. Check out page 20 and beyond: file:///C:/Users/steph/Downloads/Essential%20Components%20of%20Treatment.pdf

Francie

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wackamole
This file wouldn't open.  Is there another way to send it?  Thank you!!!
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sk8r31
I think the file won't open, because it might be saved on Francie's computer in a file there.  If you want to upload a file to be used by others, you likely have to 'right click' to find 'shareable settings' and then copy that link here.
It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
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Kali

Hi Wackamole,

It is really difficult with the purging and super scary. Our d. was diagnosed with restrictive AN with purging and honestly what helped in her case was having the behavior interrupted by a 3 month stay in a pretty serious program where she was simply not allowed to go to the bathroom after eating. After that she was put on Fluoxetine. When she came home I checked the bathroom after she would go in. For a long time. Also when she came home I would also try to sit with her after eating and either talk or watch TV together to distract her from anything she might be thinking after eating a meal. You could try asking your d. to use the bathroom before meals and then sit with her afterwards and distract with tv or banagrams or scrabble or netflix or making crafts or knitting or whatever you can come up with that she likes, and let her know the bathroom is off limits and see if that helps.

We also kept talking to her about the physical damage it could do to her body.

There have been some studies with patients who purged using fluoxetine HCL vs. a placebo and they showed that there was some symptom reduction in the group who was administered the Fluoxetine. It is the only medication approved by the FDA to treat purging. There is also some clinical evidence backed up by studies that in a weight restored patient with Anorexia taking the prozac can help to avoid relapse. I don't think that there is any conclusive medical evidence, however, that prozac can help with weight restoration. 

Here is a link which has some info and I wrote what seem to be the relevant parts below:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3000192/

Fluoxetine. The evidence for the use of fluoxetine (Prozac®, Eli Lilly) in the treatment of bulimia nervosa comes in the form of various case reports, systematic studies, and double-blind, randomized placebo controlled trials. In a double-blind, placebo-controlled study by Halmi, et al., 382 patients were randomly assigned to receive fluoxetine or placebo at a dose of 20mg or 60mg daily for eight weeks., Treatment with the lower dose of fluoxetine resulted in reductions in binge eating and vomiting compared with placebo (45 vs. 33% and 29 vs. 5%, respectively). Those receiving 60mg of fluoxetine had even greater improvement with a 67-percent reduction in binge eating and a 56-percent reduction in vomiting.

Anorexia nervosa. Despite initial promise, none of the medicines available have been shown to be very effective on their own in the treatment of anorexia nervosa. The APA guidelines state that psychotropic medications should not be used as the sole or primary treatment for anorexia nervosa, but they can be considered for the prevention of relapse in weight restored patients or to treat depression or obsessive compulsive disorder.

Is her md doing bloodwork and checking her potassium levels? Low potassium levels can be indicitive of purging and can have health risks.

Wishing for all the best for your daughter,

Kali

 

Food=Love
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wackamole
Thank you!
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Francie
Wackamole, sorry, just reading that you couldn't open the file. Duh! Below is the title of the .pdf I suggested you read. Click the gold letters at the end of the title from the website where I found this info: http://canped.ca/modules.

Francie

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