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joanne34 Show full post »
joanne34
Thanks for the suggestion but at the moment I think she is a bit too sensitive to touch.  The recent flare up seems to have calmed slightly and she is watching a bit of comedy with me while we are both getting on with a bit of work.   I don't doubt everything will flare up again when she goes to bed but hopefully she will settle after a while.  
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MKR
I picture you snuggled up on the couch together for some reason 😀. With your papers/ laptops in front of you. 

All the best, 
Mum's Kitchen

14-y-o "healthy living" led to AN in 2017 and WR at 16. Current muscle dysmorphia.
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Seashell
So sorry to hear you going through that right now. It is truely awful and so distressing. This illness is beyond cruel.

We also got mega fallout from the first weight gain as she lost streadily for many months so she couldn’t handle it. They finally agreed with me to do blind weighing which helped except that occasionally she could see what they’d written down and if it was a gain I’d have days of fallout with much stronger ED behaviours. Made me quite cross at the time as blind weighing should be blind and it was me who would have to endure a weekend of really awful behaviours after a gain while I remember the one who had inadvertently revealed her weight was on a mini break in Paris! 
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Foodsupport_AUS
Btw olanzapine comes as tablets and wafers. We were given the wafers as they are faster acting. They also dissolve rapidly in the mouth so cannot be spat out
D diagnosed restrictive AN June 2010 age 13. Mostly recovered 10 years later.  Treatment: multiple hospitalisations and individual and family therapy.
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joanne34
[QUOTE username=MKR userid=6969228 postid=1310828156]I picture you snuggled up on the couch together for some reason 😀. With your papers/ laptops in front of you. 

Haha - no on separate sofas.  One of the cats and a pile of laundry to be sorted was taking up the other side of the sofa next to my daughter! 😃
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joanne34
Taking the olanzapine tablet a couple of hours earlier may have worked.  We still had a couple of flare ups and she got distressed as usual when getting ready for bed but this seemed to pass quickly as we helped her change and both gave her hugs.  She did an almighty scream when she got into bed but it stopped there.  We didn't have hours of her crying, slapping/scratching herself, screaming, twitching etc.  When I asked if she wanted to read a book, she said she wanted to listen to an audio book and just fell asleep with her earphones in which my husband and I have just extracted so she is comfy in bed.  I can't believe it.  It feels like weeks since we had a calm-ish night.  So relieved,  Hopefully this isn't a one off and we'll see a few more nights like this....even one or two a month!! 😃
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Torie
Woohoo so glad to hear this!  The quiet must be so ... exquisite.

Thanks for the happy report. xx

-Torie
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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MKR
Audio book seems to work great for you as a distraction.  Great idea. 
 
I hope you have enjoyed your peaceful night!
Mum's Kitchen

14-y-o "healthy living" led to AN in 2017 and WR at 16. Current muscle dysmorphia.
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ValentinaGermania
Audiobooks worked great here too! So relieved you had a calmer night!!!
Keep feeding. There is light at the end of the tunnel.
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joanne34
Thanks it was lovely. x
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Tee
Hi there
MY Daughter has been on these medications, even though we were not keen to begin she started on the Sertraline which did improve the mood some what, the reason we were advised to start the medication was that she was struggling with mood (feeling depressed and anxious)  we found that the Sertraline did lift the depression but she was not very co-operative in the FBT sessions the Dr who was over-seeing her team suggested that we add the Olanziapine for thought process and this would also help with a good nights sleep.  We are now off the Sertraline and will be coming off the Olanzapine too over the next 3 months or so.  I would say the medication did help my Daughter cope better when she needed it.  Hope this helps
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joanne34
Thanks.  Our daughter ended up taking Olanzapine for around 5 days but it made her too drowsy and it affected her being able to read etc.   She is now calmer at nights anyway and we don't seem to see the hysteria she was experiencing.   She has put on another 2 kg and that could be a contributing factor to being more calm.   She is now has a 80% height to weight ratio so has improved.   Not sure whether we sill start Sertraline as no more has been mentioned by the doctor.   Her moods do dip but it seems to be around when she is hungry.  I think her metabolism has increased now as her feet are warm in bed etc and today I noticed that she chose the slightly larger portion of food when I put the plates out on the table for her and her brother.   However, everyday we seem to move forward we seem to still get knocked back as one day she appears happier e.g. smiles/laughs then the next day nervous tics, anxious etc so we have to keep her off school.      Really hoping things get a bit more consistently positive.     Hopefully that will happen at some point.  
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MKR
@joanne34, this sounds like huge progress! The good days creep in quietly and only looking back do we realise there are more and more. We tend to be so gripped by anticipation of a dip in mood, it's hard to relax.

I am so happy your d went for the bigger portion! Sounds like she listened to her body.
Mum's Kitchen

14-y-o "healthy living" led to AN in 2017 and WR at 16. Current muscle dysmorphia.
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ValentinaGermania
joanne34 wrote:
However, everyday we seem to move forward we seem to still get knocked back as one day she appears happier e.g. smiles/laughs then the next day nervous tics, anxious etc so we have to keep her off school.      Really hoping things get a bit more consistently positive.     Hopefully that will happen at some point.  


Many professionals call that phase in therapy "the dance" as it feels like moving 2 steps forward and 1 step backwards.
You will see these rollercoaster for some time now and then the gaps between meltdowns will get bigger and bigger and she will slowly get back to normal.
Try to be patient, it is a marathon and not a sprint.
Keep feeding. There is light at the end of the tunnel.
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