F.E.A.S.T's Around The Dinner Table forum

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Scarlett81
Hi all,

Just wanted to ask for your experiences of Olanzapine.  My AN s has started it a week ago on a 5mg dose, and 10 weeks into refeeding. We were having half in the morning and half in the evening but have switched today to taking 5mg each morning to try and help with self harming straight after eating.

I just wanted to know whether this is a normal dose, how long it can take to begin to have an effect, and what to expect.  I've read from previous posts that it's a good one to be on, but I'd really love to hear your experiences of it.

Thank you
Xx
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Foodsupport_AUS
We only used it at night. It tends to make them quite sleepy. The effects are usually seen with initial dosing, so if it is not working after a week it may not be going to work. 

How it helped my D was in being able to sleep and not be kept awake with ED thoughts - which were there 24/7. It did not help my D eat better, or help with her anxiety about food at all. 

Dose wise we used 2.5mg, 5mg and 10mg as a maximum dose, once daily. 
D diagnosed restrictive AN June 2010 age 13. Initially weight restored 2012. Relapse and continuously edging towards recovery. Treatment: multiple hospitalisations and individual and family therapy.
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HopeNZ
Hi Scarlett81

My d was put on a small dose, 5mg, while in hospital, to help reduce the self-flagellation and despair which followed meals.  It certainly did help.  She took it just before her meal, and it kicked in soon after, and took the edge off the post-meal horrors.  She continued on it for several weeks after she came home, but I do think its efficacy diminished.  My d had a few awful hallucinations which she blamed on the drug, so one day she decided she didn't need it any more.  I think in her case it did help, for a while.  But once it had served its purpose, she didn't miss it.

Good luck x
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Becs
Hi Scarlett81

My D is on a low dose of 2.5mg in the morning at her IP unit. I - and she - think it has definitely helped with her anxiety around food but hasn't helped with her low mood generally and she is definitely more fuzzy from a cognitive point of view. Good luck x
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Scarlett81
Thanks to you all for sharing your experiences.  I think it is probably taking the edge off post-meal behaviours, but perhaps I was expecting too much.  I guess we're all desperately hoping that there will be a miracle thing that will make this easier for our kids!  

I will persevere with it.  The one benefit I can see is that mid morning, when we usually take a walk together, we can now have a proper conversation.  S seems to be a bit more reflective at this time, and can talk about his anxiety and have a bit more perspective.  I'm treating these woodland walks as our therapy session!

Clinic later today, which always makes for a difficult day ahead.  

Thanks everyone
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Lynn403
My daughter was prescribed 2.5mg at night to help with extreme reactions to body dysmorphia. She was very dizzy and nauseous so we cut back to half - 1.25mg. Five weeks and it seems to help take the edge off.
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peregrine_USA
My adult daughter has taken a 5 mg dose each evening for years.  She continues to state that it helps her relax in order to fall asleep and enables her to have an evening snack on top of having eaten dinner which is always a struggle for her.  While is the hospital now for almost three weeks in order to help her stabilize and gain weight again her doctors have endorsed continuing this medication at that dosage.
Peregrine_USA
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lluka
My 18yr old D is on 5mg every night. At the very least it gives her a solid nights sleep, which is very important for her atm. We are weight-restoring, and although she is being very compliant, our Doc wants to keep her on Olanzapine and also her Fluoexatine until she is weight restored. I was worried at first, but am now very comfortable with this decision. 
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MarkDz
[QUOTE username=Foodsupport_AUS userid=1507322 postid=1308634651]We only used it at night. It tends to make them quite sleepy. The effects are usually seen with initial dosing, so if it is not working after a week it may not be going to work. 

Not sure this statement is true about working after a week and if there aren't effects seen it may not work at all.  Most drugs in these classes take 4-6 weeks to have full effect.   Consult your doctor.  
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Scarlett81
Thanks for your comments.  We have now switched to taking it at night, and the last two nights has been able to fall asleep within 30 minutes, instead of the usual 2 hrs of bad thoughts.

Will stick with it for a while, if only to give him some better quality sleep.  Only 2 weeks in and still weight restoring.  No neg side effects so we will keep going.

Thanks everyone.
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Foodsupport_AUS
MarkDz wrote:
We only used it at night. It tends to make them quite sleepy. The effects are usually seen with initial dosing, so if it is not working after a week it may not be going to work. 

Not sure this statement is true about working after a week and if there aren't effects seen it may not work at all.  Most drugs in these classes take 4-6 weeks to have full effect.   Consult your doctor.  


Olanzapine is classed as an atypical antipsychotic. Although prolonged time frames are sometimes reported even for psychosis there are a number of studies that suggest evidence of effect within the first week, along with for evidence of sedation and assistance with anxiety. 
D diagnosed restrictive AN June 2010 age 13. Initially weight restored 2012. Relapse and continuously edging towards recovery. Treatment: multiple hospitalisations and individual and family therapy.
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Hesic1092
Our D takes 5 mg at night and it has helped her with constant eating disorder thoughts.   Other than making it harder to get her up in the morning for school, she has had no side effects.   She is now WR and I feel that the medication really helped us turn the corner and get her more compliant in eating.  Before she started, she would swear, stomp into her room, throw food, yell, scream and cry at most meals.  Now that she is WR, she has more insights into her disease and will tell us how much the Olanzapine has helped.  She is 14.  She is still taking it for now.  Meeting with our Doc today to discuss how/when to take her off the medication.    Hang in there, things WILL get better
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