F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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Hendrixt
https://www.bbc.co.uk/news/health-48660944
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NELLY_UK
How depressing that under half of sufferers recover. 
That does not fill me with hope at all. 
NELLY D 20 bulimic since age 12, diagnosed in 2011. 20 months useless CAMHs,7 months great IP, home March 14..... more useless CAMHs.now an adult & no MH services are involved. I reached the end of my tether, tied a knot in it and am hanging on. ED/Bulimia treatmentis in the dark ages in West Sussex.
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Hendrixt
I’m hoping Nelly that the increase in media and political interest is good news and a good sign that things could improve. I’m no expert as my D was only diagnosed a month ago with AN so I’m a beginner but finding it very tough, five mins ago I was fending off multiple blows from her, over a spoonful of spaghetti,  and sometimes a bit bewildered by our CAMHS therapist. You just keep going I suppose. A lot easier for me to say, only being 6 weeks into it, but it feels like 6 years and feels like ED has always been here
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blondie
It does, as with many other areas of NHS treatment, seem to be very much a postcode lottery - you live in one area and you get lots of support whilst in others there is little/nothing meaning that, unless you have access to a private healthcare scheme or can afford private treatment then you're in a very difficult position...I don't know if it's worse with adult services vs CAMHS but both need drastic improvement
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Hendrixt
When people talk about CAHMS I’m never sure if they are referring to general tier 3 CAHMS or to the Community Eating Disorders services  (CEDS) that fall under CAHMS. I wonder what people’s experiences are in relation to CEDS and how they compare with general CAHMS. 
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NELLY_UK
CAMHs is Children & Adolescent Mental Health Services, AMHs is Adult Mental Health Services, EDS are the Eating Disorder Specialists that fall underneath these, if you are very ill or lucky you get access to the EDS. Alongside that are the crisis teams. That’s how it works in Sussex. Might well be different in other parts of the UK. 
NELLY D 20 bulimic since age 12, diagnosed in 2011. 20 months useless CAMHs,7 months great IP, home March 14..... more useless CAMHs.now an adult & no MH services are involved. I reached the end of my tether, tied a knot in it and am hanging on. ED/Bulimia treatmentis in the dark ages in West Sussex.
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mrh74
Where are you in the UK Hendrixt?  We are in Hertfordshire and my daughter was under CEDS for 2.5 years - they were brilliant and very supportive towards the family as a whole.  she has now been transferred to general tier 3 CAMHS for depression and anxiety and we are finding things very different there (not for the better unfortunately).  It definitely seems to be a postcode lottery and I am appreciating even more now, the fantastic care she had under CEDS.  It sounds as though you are doing a great job - hang in there....
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Hendrixt
I’m in the North West - we’ve only ever been in the CEDS so I can’t compare but I’ve heard some bad things about general CAHMS up here 
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Midimum
We are in Glasgow and under the Connect ED team. Is that the same as CEDS? They are mainly focussed on getting the weight restored and then I believe we are, at some point, handed back over to our core CAMHs team for CBT-E and any mood work that’s required. 
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melstevUK
Midimum, if you are under Glasgow Connect you are under the best team in Scotland as Karen Johnston is one of the FBT trainers who has trained staff around Scotland and who knows Jim Locke personally. She is based here.  JL came to speak a few years ago to carers in Scotland. 
What he made very clear is that FBT does not guarantee recovery in every case by any means. What it does do, however, is get teenagers recovered enough to a point whereby they can continue with their lives and are not missing great chunks of time in hospital. 
This point is also highlighted in the Locke and Legrange book: that the two aspects of FBT are restoring weight but also keeping normal life going and not allowing the illness to derail normal development and living. It is very important to see recovery from both these aspects. 
I have never experienced FBT with my d but I understand that it is a finite programme of around twenty sessions and maybe that is why other therapies are offered at that point. 
Scotland s services are arranged differently to England s so we don't have a Community EDS in general for under 18s. All ed patients 18 or under are treated by CAMHS clinicians, and usually there are some who will have more training in eating disorders.
There may be nurses who are trained with meal support who can visit patients at home, however. I don't know much about that side of things.
Believe you can and you're halfway there.
Theodore Roosevelt.
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Hendrixt
Midimum wrote:
We are in Glasgow and under the Connect ED team. Is that the same as CEDS? They are mainly focussed on getting the weight restored and then I believe we are, at some point, handed back over to our core CAMHs team for CBT-E and any mood work that’s required. 


Hi midimum- it sounds a lot like our CEDS. They operate FBT and we’re going through phase one which focussed on achieving weight recovery. Not sure what happens when we have completed phase 1 and whether we move into general CAHMS. How are you finding the  Connect ED team. Are you happy with the progress? Is it FBT?
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