F.E.A.S.T's Around The Dinner Table forum

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UKmumof2 Show full post »
CED123
Plodding along. Hoping weighing on weds doesn’t produce a bad reaction - it will of course but don’t know what.
Currently no light; only tunnel 🙁
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UKmumof2

Yes - yet to see that here... they do give them the choice whether to look and she doesn’t but I assume she’ll know about gains/losses. 

Keeping everything crossed for us all x

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DevonDoris
Hey UKMumof2, 

I'm also new here (this is my second post!).  We had our first hospital appointment last week too.  It's horrid, but brief dips in and out of this site is helping me, although it does make me cry a *lot*.  Everyone is so brave (like real brave, when you face horrible stuff and do it anyway).  While scary and horrible, it's also seriously comforting - thank you all for sharing - i'm finding it quite difficult to post at the moment, so will do my thank yous as they come.  Hope that's OK.

I made a big pot of rice baby food the other day - 100g rice flour, 500ml gold top milk, 400ml double cream.  I pureed it so it was really smooth, then ice cubed it.  Each 25g cube is 60 calories.  I add it to all sorts of things so it can't be noticed, and make smoothies with that and pureed fruit.  My D hates the smoothies and we've had a fight at the garden gate in order for her to drink 100ml of it (she fought, I Eva'd).  My husband is not grasping why we have to be so strict, but did step up and played good cop (for the first time in a long time so a surprise to us all, and it worked really, really well).  It meant that within 5 minutes the smoothie was gone, the gate opened and I was giving D a lift to the cafe to meet a friend and we had a laugh about it all on the way down.  While she was at the cafe she ate a chocolate muffin (the bizarre ED voice...).

Anyway, it seems we may take this journey together, UKM2.  I'm crying as I write, but we can do it - we have all these wonderful supportive people here and we have our own strengths and tenacity, and the knowledge that our kids are kind, generous, gentle people who deserve to have the ED kicked out of their lives.  

BTW, mine's a high achiever, perfectionist type too.  Trying to do 5 A levels... I mean... (been fighting with school for the last 2 months to make them make her drop at least one. Since the clinic appointment last week, they've finally stepped up.)

Much love. 
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DevonDoris
Back again, just read the last few posts rather than the first few.  I really hope you're OK.  I've had kids in hospital for long term care before and it's tough.  Love to all of you in that space.  
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UKmumof2

Hi Devon - don’t worry - it’s so hard isn’t it? Oh the high achievers. How my pride has turned to wishing she wasn’t quite such a brainy over-thinker and rather a bit less so. I do think it has something to do with it. 


You sound to be doing well. Keep going! My D is eating (at the moment) in hospital but I am worried for her mental health. She doesn’t want to engage with anyone or anything there in the unit because she thinks it will mean she will be left longer if she settles. They are all so nice and I just want it to be bearable for her. Early days I suppose. I keep telling her the NHS will not pay for a private ED clinic for any longer than is absolutely necessary. 


We are now on proper visiting times. Toying with whether I go back to work a bit...

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ValentinaGermania
UKmumof2 wrote:

Oh the high achievers. How my pride has turned to wishing she wasn’t quite such a brainy over-thinker and rather a bit less so. I do think it has something to do with it. 



ED changes our topics and our aims. When my d was celebrated at her graduation prom in Summer 2018 we were not really proud of that paper she hold in her hands. But we were VERY PROUD that she managed to eat a 3 course menue in a room with about 500 people! 😁
Keep feeding. There is light at the end of the tunnel.
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Aggie
UKmumof2,
so sorry, just catching up with this now. Hope you are ok, appreciate how difficult it is, but if this helps to set your daughter on the road to recovery it will be worth it. Hope you are able to find some time quality time with your other daughter amongst all this and a little time for yourself? Wishing you positivity for the New Year xx
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UKmumof2
Hi Aggie. Thank you. Not managing to spend much time at the mo with littlest one because she’s been at school then I’ve been travelling to the unit. However, things going to plan at the mo and currently have daughter here on overnight home leave. Thank you for your wishes and same to you. 
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Ian_C
Hi UKmumof2. Its my first post! But I could identify with lots of what you have said. Our d is type 1 diabetic as well as AN and is an inpatient. We felt just like you have described when she went in. Although she constantly complains she hates it there and highlights all negatives, she has weight restored consistently since admission in September and is now up to having 3 night's home leave at a time. We are now at a point of looking at a period of maintenance and increasing leave before discharge. D is adamant she can do this better at home than there. She always eats to her meal plan (both here and there). Had a previous admission where she discharged against medical advice and was restricting and doing physical exercise immediately (had been secretly exercising in the ward too), there is none of that this time and d says has learnt from that so will do anything to avoid going back into ward. I hope she is right!
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LaraB

Hi AxleGrey
welcome to the forum. Just want to say hi. Great that your D is eating well in residential and at home. I know lots of parents on the forum have had experience in managing transitions home and I know will be happy to answer any questions you have. Xx

 

 

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Enn

Welcome AxleGrey,
I do hope you find the support and information you need to help your d. It is a great she is doing well IP.
You mention she has type 1 diabetes.  Was there ever an issue with diabulimia? just asking.

Transitions as you know can be hard. When do they feel she will be discharged?
it sound likes she is doing well! Please ask all the questions you have. We are all very willing to help in any way we can.

Sending my best. 

🌱

When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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Enn
Ps. If you wish you may start your own thread/new topic. That way we can reply to your specific questions.😊
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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Ian_C
Thanks Enn. I started a new thread like you suggested.
No, there has never been any bulimia with my d.
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