F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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ajm130 Show full post »
Joe
Contact mamabear anyway, that woman is an oracle, especially on the young ones. Sending love and strength your way. 
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debra18
I think it was Rogers she was in and didn't like but it was several years ago. 
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Torie
Oh dear, you could be right about that.  And as Joe said, Mamabear would be good to contact anyway because she is very knowledgeable, and her d fell ill at a young age.  If memory serves, her husband is a doctor and she is also a health care professional, so they also have familiarity with that side of things. xx

-Torie
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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ValentinaGermania
I also want to chime in to contact Mamabear. This woman is a life saver and she helped us a lot.
Keep feeding. There is light at the end of the tunnel.
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mamabear

Hi there- 

I sent you a large email response. I’m happy to do a phone call. 


although I don’t post here often these days I do check in once I’m awhile and I’m very active on the Facebook support groups. 


ALWAYS happy to help❤️🐻 

Persistent, consistent vigilance!
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mamabear
By the way everyone my daughter was at Melrose in Minnesota not Roger’s. I looked into Roger’s but they would not let me see my 10-year-old kid for three days and then only an hour a day and I said heck no to that. That to me as a parentectomy and I will not back that up
Persistent, consistent vigilance!
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debra18
Hi mamabear. Good to hear from you. 
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MKR
@mamabear, "parentectomy" is such a handy word! Thank you.
Mum's Kitchen

14-y-o "healthy living" led to AN in 2017 and WR at 16. Current muscle dysmorphia.
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ajm130
Just an update on the ongoing struggle. Our son spent 8 days at Children’s Hospital of WI. They were an amazing group and even though I don’t think they really specialize in ED, they did a great job of getting him going in the right direction. Wow has it been a crash course for us!  Learned lots since this started. Since Children’s he has been inpatient at Rodgers in Oconomowoc. Going on three weeks. He is gaining ground finally and it has been an absolute emotional rollercoaster. If all goes well we are hoping to move on to another step in 1 1/2 to 2 weeks. Rodgers recommended residential but they are only licensed for 12 and up. Our S is 11. That puts us out of state for residential care. Looked at all kinds of options and are still entertaining some. ERC has a fairly new facility (or they bought out a facility) in Chicago. They offer all levels of care and it sounds like a really good program. Rodgers also has PHP that is on the table. We are luke warm on Rodgers so far. Also entertaining a FBT program but feeling our son may not quite be ready. Different challenges every day but feel like we are at least making a tiny stride forward. Thanks again to all for the help. My apologies to Mamabear. About the time we connected we were forced to get our S into the hospital and it has been chaotic ever since. 
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MKR
Great to hear of progress! Yay for the weight back up. 

It's baffling that there is an age limit for certain treatments - because ED chooses any age...

A crash course is the right word. I think we all devoured books and research papers, as well as the collective wisdom from the forum. 

I guess FBT will be on sooner or later, so it's good to prepare, including energy-wise.

Keep up the good work!
Mum's Kitchen

14-y-o "healthy living" led to AN in 2017 and WR at 16. Current muscle dysmorphia.
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Torie
Thanks for the update.  Glad to hear your son is on the right path.  I think I have heard good things about ERC Chicago - I'm sure others will know more.  I really appreciate your taking the time to let us know how you are doing. xx

-Torie
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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cwebster
I am so sorry you and your family are in the trenches of this awful ED. Our s was diagnosed at age 11-now 14. He has been in hospital with 3 admissions since October 2018-last admission April to December 23/19 (admitted with purging). Home with us now with weekly follow ups at sick kids in Toronto for medical check up and fbt. We have a new treatment team from a different hospital-new ‘lens’. Nothing easy about this disease - our son can quickly become a 2 year old having a temper tantrum-there is no rationalizing with this monster! He has become an institutionalized child whereby his nutrition was delivered by nj (not ng) for a long time. He continues to be very rigid with his nutrition, failing to eat suppers /replacements. Weight is stable but not really gaining due to his rigidity. We have tried the hard ball approach, the loving approach, the cop approach....it is now one meal at a time. Fbt has taught us to try to be aligned as parents/a couple, consistency, calm-try not to engage in the circular arguments albeit I have my bad days! Consequences for not eating-device removal, no school, no friends, no special clothing, no drone...yes exhausting-a strain on the family/siblings, our work, our social life, travel. One meal at a time-look after yourselves-if you are ill you can’t care for your child. 
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MKR
@cwebster, sorry to hear about your battles but I also hear determination in your post.

Down in the trenches is soooo hard. Hard to believe sometimes that your baby is in there, but they are.

Sending you and @ajm130 lots of strength!! 
Mum's Kitchen

14-y-o "healthy living" led to AN in 2017 and WR at 16. Current muscle dysmorphia.
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