F.E.A.S.T's Around The Dinner Table forum

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My d was diagnosed in September 2017 and after 4 and half months of various hospitalizations, we brought her back home and she became 130 lbs from the 92lbs she came out of the hospital from. 

Now, in the last 6 months, she lost about 30 lbs. We are back on a slippery slope. She takes 4 grains of cereal in the morning with milk and a very small lunch, then half a banana, and then an okay dinner. The problem is exercise. Intense exercise about 4 hours each day.

We are ready to send her back. Is Princeton in NJ a good choice or RWJ? Last time she didn't qualify for these two as she was under 13. 

Please help.
Dear pjdj,

I am not personally familiar with the facilities in the US but you might like to search in on the Parents Reviews of Treatment Providers here. This article also provides some guidance on things to consider. 

Wishing you luck in your decision,

2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, no progress. Medical hosp to kick start recovery Feb 2016. Slowly gaining at home, seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. 2018 growing so fast hard to keep pace with weight. 2020 Off to university, healthy and happy.
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.

Dear PJDJ,

Sorry that your daughter has had a backslide, and I hope that she will be able to turn a corner soon.
Sounds like you are in NJ? I think that these are both reasonable choices from what I've heard, although I have no personal experience with either of them aside from speaking with both units on the phone when I was investigating what to do for our daughter. 

I do know someone who was treated at Princeton 4 years ago, who is doing very well now and is recovered. 

The best thing may be for you to phone each unit and ask questions about their programs and see what you think after speaking with them. 
Some questions I asked were:

How do they weight restore their patients? 
How many lbs a week do they try to have the patients gain?
What do they do if there is food refusal?
How will they stop the exercise?
What level of supervision do the patients have?
What is the ratio of staff and treatment providers to patients?
How long is a typical stay?
How do they work with families to help the transition home after treatment and is there family therapy while the patient is being treated there? 
What would a typical week's schedule look like? (Therapy, groups, activities)
What step down treatment do they recommend after leaving residential?
Do they have an idea of what kind of success rate they have with their patients?
Do they work on a level system with privileges as the patient goes through treatment?

Let us know how it goes and if there is anything we can help you with.




I don't have any clear advice for you about these units, however if you haven't seen it already there is this brochure on the FEAST website which gives some ideas for assessing treatment centers. It is designed for the US. https://www.feast-ed.org/family-guide-series/
D diagnosed restrictive AN June 2010 age 13. Mostly recovered 10 years later.  Treatment: multiple hospitalisations and individual and family therapy.