F.E.A.S.T's Around The Dinner Table forum

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Warrior1 Show full post »
AUSSIEedfamily
One of the parts of the genetic study that I did not see/read in the newspaper report was the work of Charlotte's Helix ( https://www.charlotteshelix.net/ ) to gather/collect UK blood samples for the ANGI study as the ANGI study at first did not include UK samples. Thank you to darling Charlotte Bevan (Dec) (a very early member of this forum & F.E.A.S.T ) and all involved in Charlotte's Helix for their efforts to get UK blood samples included in the ANGI study!!
ED Dad
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ValentinaGermania
This is really true and I am sure that science would not have been were they are now without Charlotte´s great work.
Keep feeding. There is light at the end of the tunnel.
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melstevUK
Thanks for clarifying Scaredmom.  Although I don't quite understand your use of negative and positive in the context.  So there is a genetic link between AN and type 2 diabetes (which tends to develop when you are older - that is my understanding.  Am I right?) but not with any childhood diabetes type 1.  Is this what you are saying? Sorry, trying to get my head around it.  
Believe you can and you're halfway there.
Theodore Roosevelt.
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Foodsupport_AUS
I think that is what Scaredmom to say. The correlation however is a negative one - that is Anorexia is associated with a decreased risk of Type 2 diabetes. If it were a positive correlation the risk would be increased. 
D diagnosed restrictive AN June 2010 age 13. Initially weight restored 2012. Relapse and continuously edging towards recovery. Treatment: multiple hospitalisations and individual and family therapy.
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Enn
Thanks Foodsupport: Yes!! 
What I find very interesting about the study is the there was a significant positive correlations/association sof AN and OCD (huge)  and physicality that many here note in their situations. Schizophrenia, anxiety and years of education! 
We definitely had the physicality (standing) and the OCD in spades!

For the diabetes, if we can say anything at this time is that the there is a decrease risk of Type 2 DM (they did not look at type 1 DM as far as I have read) That is a different animal altogether. I am not a researcher but this is so far my understanding.
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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sandie
I found the blogs that Foodsupport_AUS referred to above really helpful to interpret the significance of this study. Especially blog 4 which are the reflections of the authors- highlighting the importance of not stopping at partial weight-restoration or partial normalisation of eating behaviours to allow metabolism to reset. Also the importance of avoiding negative energy balance for life to avoid triggering relapse. I feel I understand better now why I believe D has a high metabolic rate and the need to maintain high calorie intake. It would be useful for these findings to be disseminated to clinicians treating ED - paediatricians, psychiatrists and therapists. I can see a lack of emphasis on metabolism here with most emphasis on psychological factors and treatment. 
Has anyone tried to explain the findings to their loved one with AN? I think the metabolic perspective could be quite tangible and helpful for my D. Eg. At a simplistic level, the notion that she may genetically predisposed to burning fat faster than others so needs to eat more. 
Courage is not the absence of despair; it is rather the capacity to move ahead in spite of despair
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Enn
Sandie,

i have  not discussed  genetic issues with d. I likely will as she gets older. My older d is studying psychology and interesting and annoyingly she said last night that to tackle fear foods will cause more fear with AN!!  That is what they were taught!! I let it go. So the teachings out there are still incorrect and how would I go to a university and teach them?
i did send the actual article to my ED team but as they are really not at all  medical I wonder how the social work and psychological world would take this. 
It is time for the mental and physical specialists to come together. 
of course you know your d best and how she may assimilate this information. It may take guilt away from her knowing she had no choice. It may help her mentally separate ED from who she is.
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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sandie
Must have taken some self-control on your part to let that go!
I am quite sure you would be more than capable to teach at university....
Courage is not the absence of despair; it is rather the capacity to move ahead in spite of despair
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ValentinaGermania
scaredmom wrote:
So the teachings out there are still incorrect and how would I go to a university and teach them?


Please try to send them at least some modern articles and studies, I am sure you can do something there. I see what is possible here, I write to everyone when I see a bad article or an outdated opinion and something turns around here at the moment...
Keep feeding. There is light at the end of the tunnel.
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