F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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bfiz Show full post »
MKR
Hi @OK25,

Welcome and thank you for your 2 cents' worth. 

I am glad lurking has been of help, when I was in the thick of it, that's all I could do for 2 years.  But I know the feeling when people "understand the language".

All the best to you and your daughter  wishing  you recovery soon, 
Mum's Kitchen

14-y-o "healthy living" led to AN in 2017 and WR at 16. Current muscle dysmorphia.
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Kookaburra
Hi ok25, have sent you an email with some info on eastern subs sydney ED people
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froggie
When my daughter was first diagnosed at nearly 18 years of age, we could only get her in to see a fairly inexperienced psychologist at a specialist ED practice in Sydney. The psychologist's "softly/softly" approach did not encourage us as parents to take a non negotiable approach when it came to eating. Consequently our daughter continued to lose weight. It was not until her psychologist went on sick leave after 6 weeks, that we were able to see a far more experienced psychologist, who basically told us our daughter could die if we did not take charge fully, and feed her. We wish we had been told this from the start. Obviously trainee psychologists need to start somewhere, and we just wanted to her to see someone in the field of ED, but it was not a good choice on our part. I'm not sure if this was due to the training the original psychologist received at university here in Australia, or maybe just their approach.

With regards to admission to hospital ( public ) it's unbelievable here how few dedicated ED beds there are in Australia. A patient suffering from AN  needs to be close to death before admission generally. Once the patient is stabilized they need to vacate the bed for someone worse off. Everyone knows that recovering from an ED takes a long time. Just because a patient's BMI has risen a little and their heart rate has stabilised, does not mean they are anywhere near recovered. A longer stay in a specialised public ED hospital with a team of treatment experts would go a long way to helping those who are trying to recover. Maybe the hospital being built on the Sunshine Coast would be this type of hospital ?

Our daughter's experience was that she decided to admit herself as an inpatient at a private hospital in Sydney to save our relationship with her, as we had done refeeding 3 times over 3 years. We fortunately had private hospital cover for her, otherwise we would have been out of pocket for many thousands of dollars. Our daughter said that the hospital helped her get on the track to recovery, however the counselling sessions which all patients attended, were not individualised. Therefore, those suffering from AN would be in a room with others recovering from BED listening about why they should not binge. Surely it doesn't make sense to have anyone who fears eating to hear that sort of talk. Obviously the hospital had a limited budget ( profit target ) so could only do its best with the funds they had. Additional funding from the government may help the private hospitals provide a more indiviualised service, although I know there are no guarantees.

I do applaud the government for increasing the number of sessions that can be claimed from 10 to 40 in a year. However, the out of pocket expenses will still be sizeable. When we claimed for our daughter a few years ago, the pyschologist charged $220 a session, and I think we only got back around $90 from Medicare. Multiply that by 40 and that alot of money to be borne by whoever pays the bills.


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lluka
I feel that the FBT program is brilliant, but the pressure on parents and families can be overwhelming. Wouldn't it be great if we were able to access in-home help at feeding times, where possibly an Individual Support person came in to the home and took over a meal session??? Just to give the family a break. The aged and disabled are eligible for this, for a certain amount of hours per week, I feel that this scheme should cover mental illness/Eating disorders as well. I am actually enrolled in a Mental health course this year and I would love to have the opportunity to help out families battling Eating Disorders. We've lived it, so we know what to expect and what needs to happen. My daughter is in recovery now, due to very strict FBT and an awesome therapist, but I would have loved to have someone else take over for a few hours every now and then....just to feed! PTSD is a very real thing for some parents of kids with ED.
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bfiz
yep I totally agree....just a break every now and then would be awesome.  I do think that there is some connection here with parents that have lived it and helping support others.  Just like this website but more one on one.
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