F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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love3
Hi everyone...hope this is the right way to post...my daughter was first diagnosed with AN at age 10 weighing 23 kg and her height was 143cms. She was hypotensive and bradycardic so was hospitalised and started on feeds via nasogastric tube for 5 weeks. she gained 3 kgs as an inpatient and struggled with eating on discharge...a year later at 27kgs she was readmitted for tube feeding for 6 weeks and gained 3 kgs...after discharge she was depressed and 2 months later had 2 panadol overdoses in 10 days, so then was admitted to an inpatient mental health unit for 3 months...her weight fluctuated on discharge.....that was September 2012....its now February 2013 and she is back in hospital on nasogastric feeds for 6 to 8 weeks, her weight 31kgs and height 149cms on admission...she has been on Fluoxotene 20mg since 2010.. she is depressed, a perfectionist, has OCD, anxiety, has temper tantrums and extreme mood swings....she has no breast development, has not had a period, and is now 14 and 5 months....she misses at least 2 school terms a year because she is too weak to attend....there is talk of treating her as an outpatient if this admission fails to put on adequate weight....its been a long road, and being a single parent with no family support, has taken its toll on me....I just want my happy girl back...
love3
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YogurtParfait_US
Leanne,

I am so so sorry about your difficult road and your daughter's long suffering from AN and your suffering as well.

You are in a good place to have come here. There are many members from Australia. I'm sure they will be here soon to ask more questions and share their experiences.

Sending warm support,
YP
"Hope is a wonderful thing ... but hope by itself is not enough. Hope is the reason to take action, to make a plan and then to change the plan when it isn’t working - over and over and over again if necessary." Hannah Joseph (Let's Feast Friday Reflection, "Just Keep Going," Friday, March 3rd, 2015)
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Charlotte_UK
Leanne

I see you are in Australia.  Whereabouts?  There is a big FEAST team in Aus and they may be able to offer you local help and support.  My opinion is that a chat with Rod McClymont at Bathurst (even if it is not your state) is a good place to start.  He is very amenable to a phone call/email.  I do know one family that took a camper van cross country and camped on his doorstep.

Hugs.
xx
Mother, wife, farmer, C of C and M Productions
http://www.youtube.com/user/CandMedPRODUCTIONS#p/u
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love3
Thankyou ladies for your support, its very much appreciated....yes I understand FEAST are in Brisbane....we live in Newcastle NSW...I have just finally found a child Psychiatrist who still has his books open, so we have an appointment next month...we did have a 2 year liason with child psychiatry CAMHS, which led us no where, and caused her even more problems...she now has a private psychologist who she has been seeing for several months and will visit her in hospital.. this had to be negotiated with her Paediatrician as its not done usually.... today she has been put back on continuous feeds and bedrest again due to being so sick, so just taking it a day at a time.....

YP, gosh your daughter is so young, 8 years old...I did watch a documentary on an 8 year old called Dana,I think it was made a few years ago, its just soul crushing seeing these children counting calories and exercising when they should be playing with dolls.....again thankyou for your comments....
love3
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Charlotte_UK
Leanne

There is a big contingent in Newcastle.  If you find me on Faceboook, I can put you in touch with a couple of locals - Charlotte Bevan, UK.  xx
Mother, wife, farmer, C of C and M Productions
http://www.youtube.com/user/CandMedPRODUCTIONS#p/u
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Katiejane_Aus
Hi Leanne,

I am in the Newcastle area. Welcome to ATDT.

I have a 16 year old Daughter with Anorexia. She was diagnosed at age 14. We have done Maudsley FBT through CAHMS in Hunter Street, Newcastle. Is that where your treatment was based? I found that it was the information on this forum and the FEAST website that really made the difference in our D's treatment. Our team was very laid back and left a lot of decisions up to us which is fine if you know what you need to do. Not so good if you are unsure. I read like crazy on here and it helped us to get our D weight restored and healthy again.

I am sorry your D has been suffering for so long. There is hope and many many sucess stories right here on this very forum. Please feel free to message/email me and I will give you my phone numbers. You can call me anytime. Truly. It must be very hard being a single parent doing this on your own. Let me know how I can help.
~Katiejane~ Promise me you'll always remember: You're braver than you believe, and stronger than you seem and smarter than you think." Christopher Robin to Pooh
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love3
Hi Katiejane....we were with Lake Macquarie CAMHS, useless!!.....you probably know our Paediatrician Julie Adamson....she has been my daughters doctor since 2010...she is brilliant, and always gives us hope...its the after hospital care that lets us down...we follow the hexagon meal plan post discharge however, it ends in failure.....my boys refuse to sit at the table to eat with Miss L because of the tantrums and fights that occur with every meal...I will never give up on her...Im really happy for you and your daughter that things seem to be going well, it gives me renewed hope.....thankyou xx
love3
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Katiejane_Aus
leanne wrote:
Hi Katiejane....we were with Lake Macquarie CAMHS, useless!!.....you probably know our Paediatrician Julie Adamson....she has been my daughters doctor since 2010...she is brilliant, and always gives us hope...its the after hospital care that lets us down...we follow the hexagon meal plan post discharge however, it ends in failure.....my boys refuse to sit at the table to eat with Miss L because of the tantrums and fights that occur with every meal...I will never give up on her...Im really happy for you and your daughter that things seem to be going well, it gives me renewed hope.....thankyou xx


We did see a PED but I cannot remember her name. Lol. It was a while ago. I am glad you are happy with yours. She sounds great. My D is doing really well now but it took her being properly weight restored to get there.

I am not familiar with the hexagon meal plan. Can you explain this a bit for me? It is very very common for kids to lose weight post hospital. Many many parents on this forum have managed to stop this cycle by instituting "The magic plate" and similar methods of feeding their kids. You will find heaps of info about this and how to implement it all on here.

I found my other non AN kids would leave the table early because refeeding a AN kid is awful and a bit traumatic for them. Usually it was just me sitting there with D. Occasionally my H would help but he has PTSD and dealing with the conflict was too stressful for him. You sound like a brave mumma who won't give up. This is exactly what your D needs.

Please ask lots of questions on here. We are all here to help. The parents on here get how awful this disorder is and are more than willing to share what has worked for us.

I mean it about calling me too. We can even meet for coffee sometime if you would like. I promise I am not an axe murderer.  Sometimes it really helps to have a chat. I know I have met with another mum from this forum and it was lovely just to chat and have someone "get it". I can even meet you at the hospital coffee shop. Is she in John Hunter?

~Katiejane~ Promise me you'll always remember: You're braver than you believe, and stronger than you seem and smarter than you think." Christopher Robin to Pooh
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love3
Katiejane the meal plan is formulated to provide 3000 calories per day...so every meal is planned per menu....It became difficult to implement because of school, so I started going to her school to provide meal support but she flatly refused to eat...I would love a coffee and a chat at some stage, as I feel very alone on this journey...I have facebook Leanne Hawke nee ( Galvin ), so look me up if you have FB....I can now go to sleep feeling supported, so I thankyou from my heart xx yes she is in JHH
love3
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Katiejane_Aus
leanne wrote:
Katiejane the meal plan is formulated to provide 3000 calories per day...so every meal is planned per menu....It became difficult to implement because of school, so I started going to her school to provide meal support but she flatly refused to eat...I would love a coffee and a chat at some stage, as I feel very alone on this journey...I have facebook Leanne Hawke nee ( Galvin ), so look me up if you have FB....I can now go to sleep feeling supported, so I thankyou from my heart xx yes she is in JHH


I am not on FB (gasp!) but if you click on my name on here you should be able to email me and I'll give you my number. I know how isolating AN can be not only for the sufferer but also for the loved ones giving support. (((((hugs))))

There are plenty of strategies people have used to encourage their kids to eat. here are some of the best posts from this forum all in one place.

https://sites.google.com/site/aroundthedinnertablehof/

https://sites.google.com/site/aroundthedinnertablehof/home/advice-for-phase-1-re-feeding/how-to-get-a-stubborn-anorexic-to-eat


~Katiejane~ Promise me you'll always remember: You're braver than you believe, and stronger than you seem and smarter than you think." Christopher Robin to Pooh
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peanutmmUSA
Hi Ladies:
I don't want to interrupt, but I just wanted to wish leanne good luck with her d and it's great that you have found a connection here.  I found a friend on the forum and the one-on-one support with someone who really understands is invaluable...as well as the great advice you will find here!  We're all pulling for you...you can do this!
97% recovered, living a full life
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llansdowau
Hello I am from Port Stephens, Newcastle Australia and mum to a just turned 13-year old girl who was diagnosed with anorexia in November 2013 (triggered by bullying at school and the death of her poppy in January 2014 from an aggressive brain tumour - her pop was very influential in her life and used to look after her during school holidays etc when I was at work).

My daughter, recently spent 4 weeks in John Hunter and was discharged during the Easter break. She is on the Hexagon program, which is a struggle with fights and food hiding etc. I return to work next week, when She will also go back to school full-time, she has only been part time since discharge.

Would love some advice/moral support. We too attend CAMHS in Newcastle.
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love3
love3 wrote:
Hi everyone...hope this is the right way to post...my daughter was first diagnosed with AN at age 10 weighing 23 kg and her height was 143cms. She was hypotensive and bradycardic...we did weekly dietition, psych until age 12, at which there was no weight gain, and no growth in over 2 years...  she was first hospitalised in December 2011 and started on feeds via nasogastric tube for 5 weeks. she gained 3 kgs as an inpatient and struggled with eating on discharge...a year later at 27kgs she was readmitted for tube feeding for 6 weeks and gained 3 kgs...after discharge she was depressed and 2 months later had 2 panadol overdoses in 10 days, so then was admitted to an inpatient mental health unit for 3 months...her weight fluctuated on discharge.....that was September 2012....its now February 2013 and she is back in hospital on nasogastric feeds for 6 to 8 weeks, her weight 31kgs and height 149cms on admission...she has been on Fluoxotene 20mg since 2010.. she is depressed, a perfectionist, has OCD, anxiety, has temper tantrums and extreme mood swings....she has no breast development, has not had a period, and is now 14 and 5 months....she misses at least 2 school terms a year because she is too weak to attend....there is talk of treating her as an outpatient if this admission fails to put on adequate weight....its been a long road, and being a single parent with no family support, has taken its toll on me....I just want my happy girl back...


love3
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love3
Hi Lisa from Port Stephens...do you have facebook or private email...I don't come on this site much...but would to support you and do what I can to help....let me know how I can contact you....we can meet for coffee?
love3
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