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L
Reply with quote  #51 
Hi Shawn,

I've been out of town for the last few days (something I never could have done prior to recovery!), so sorry to be late in getting those recipes to you.  My h says that he just substituted cream for the liquid called for in the pizza dough.  I have to say that the consistency wasn't the same as regular pizza dough...a lot more stiff and crusty (not chewy), but as you can imagine, we all ate it voraciously with our d. 

In terms of the tortillas, my h says you buy a tortilla mix at somewhere like Safeway, and then in addition to a small amount of water you add oil and parmesan cheese until you get to the consistency you want.  Then he makes them in a tortilla maker (like a little round press). They are delicious, especially with lots of cheese and refried beans that have oil in them.

Happy eating,

L

Kat
Reply with quote  #52 

One of our best tools has also been smoothies. Our d hated the taste of Ensures, but she would eat the Stonyfield yogurt smoothies (250 cal for 10oz) and we would give her one at every meal.

 

This may sound strange, but we would often use fig newtons for high calorie snacks. One snack pack of fig newtons (only two cookies) is 200 calories.  We would give our d four cookies and a glass of milk, 500-550 calories and the AN didn't fight as much because it was so little food and the fig newtens were seen as healthy.

ld
Reply with quote  #53 

our family was always big on salads before my d's AN. Has anyone ever tried a large salad like a cobb or ceasar with chicken or other protein in it as a main course? if you have any good salad recipes or know of which dressings are the best to use please let me know, thanks!

Cheforexic
Reply with quote  #54 
Id,
I used to make salads that had lots of calories and a huge variety of  foods.  I'd use creamy dressings, nuts, hard-boiled eggs, real bacon bits, sunflower seeds and diced ham, turkey and pepperoni.

I'd also use Spinach rather than lettuce as a base my assumption being that it had significantly more iron.

c

choke
Reply with quote  #55 

^ Yeah, the darker the leaves, the higher the nutritional value. Iceberg lettuce etc. are little other than fibre and water.

 

Mix n' match ideas for salads -

 

avocado

croutons

bacon bits

shredded cheese

fried holloumi

potato salad

coleslaw

olive oil, ceaser dressing

pine nuts

chicken/tuna mayo

garlic sausage/salami/pepperoni

Sour cream

Pesto

 

Serve with thick buttered bread.

ld
Reply with quote  #56 

Thankyou so much for the suggestions. Did you serve the salad with the dressing already tossed throughout? and about how many tablespoons did you use? thanks again

Margaret
Reply with quote  #57 

I *really* like this commercial stuff called Benecalorie because it does not taste like anything and you can put it in pretty much any soft food. It comes in little tubs like coffee creamer, has 330 calories a tub, and has close to no flavor at all.

its one of those things your dietician can order. I love it in mashed potatoes, mac and cheese...

 

http://www.novartisnutrition.com/us/productDetail?id=233

 

You might want to try a small sample first to see if she'll like it as much as I do. Everybody's taste is different!

 

Quote:
Originally Posted by WorriedMom
She says she is sick to death of milkshakes and sweets and would like to get more of her dailiy calorie needs (she's eating about 3000 cal per day) from "real" food. I'm at a bit of a loss because she doesn't like (translates: won't eat) cream sauces and other high-cal savories, so we've come to rely heavily on either a big milkshake every day or a very large chocolate bar with almonds, etc.


--WorriedMom

Stressed-to-the-Max Mom
Reply with quote  #58 

Hello, my daughter is 21 months old, and she has multiple birth defects and GERD.  Her feeding disorder started at 6 months of age.  She is getting 500 calories a day now, which is better, but still not enough, she weights 17 lbs.  Her GI Doctor says that if she doesn't meet her weight percentile by jan., she is going to refer her for TWO FEEDING TUBES! One tube would be placed on the left side of her belly to go directly into her stomach, and the other would be placed on the right side of her belly to go directly into her bowel (because she can't vomit from her bowel)! She can only eat food that she can mush with her tongue, and she can only hold 4 oz in her stomach at one time... so if anyone has any ideas to get my daughter to gain weight please let me know, (shes taking Cyproheptadine and E-micin, nexium and miralax, but still shes just not as hungry as she should be), I need something to make her hungry and something that she can chew and swallow that has like 2000 calories in it, If she doesn't gain that weight she will have to go for surgery... some please help me!! Thank you all very much.

anne
Reply with quote  #59 
Very young children with multiple developmental issues and reflux very frequently have eating issues.  They may have sensory defensiveness (common when there is reflux) or actual difficulties with oral motor control that makes chewing, eating and swallowing difficult.  This is a different type of eating issue than anorexia nervosa but no less serious or stressful on a family.  There are professionals who can help you and work with children similar to your daughter.  Pediatric occupational therapists who have a speciality in eating/feeding issues with young children are a good place to start.   Speech therapists also may have specialty training in this area. I don't know where you live, but many major hospitals would have a team in place to evaluate feeding difficulties.  And, I think this might be covered by insurance.
anne
Reply with quote  #60 
Additional note:  One place I like is a place called New Visions.  They are in Virginia, I believe, but even if you are nowhere near them you could call and get a referral to someone in your area.  They would know who is good.  I work in this field, not with developmental feeding disorders specifically, but in related areas, so am glad to pass this along.  Their online web site is:  http://www.new-vis.com/
Stressed-to-the-Max Mom
Reply with quote  #61 

Hello again, thankx for your reply, however, multiple doctors have diagnosed my daughter with anorexia, and she has been receiveing feeding therapy, oral motor and speech therapy, occuapational therapy, physical therapy, and early intervention for the past year.  Anyone know of any soft foods that are very fattening????

Kat
Reply with quote  #62 
Quote:
Originally Posted by Stressed-to-the-Max Mom

Hello again, thankx for your reply, however, multiple doctors have diagnosed my daughter with anorexia, and she has been receiveing feeding therapy, oral motor and speech therapy, occuapational therapy, physical therapy, and early intervention for the past year.  Anyone know of any soft foods that are very fattening????

SMM:

 

I think this may be a simple missunderstanding of medical terms. "Anorexia" in this sense simply means loss of appitite; anorexia nervosa, which is adressed on this site, is a psychological illness that centers around a preocupation with weight and food. Anorexia nervosa does not effect children as young as your daughter. I wish I could advise you more, however, due to the difference in our situations I must refer you back to your doctor who is the right one to tell you what you should do for your daughter.

 

Best of luck,

Kat

Margaret
Reply with quote  #63 

This is the wrong list...You may wish to contact The Oley Foundation, they may be able to assist you

 

http://www.oley.org/

 

Normally a venting gastrotomy tube (for gastric decompression), and a jtube (for feeding) works quite well. The Oley foundation has a helpline, if you need to talk to someone.

Hope this helps!

 

Quote:
Originally Posted by Stressed-to-the-Max Mom

Her GI Doctor says that if she doesn't meet her weight percentile by jan., she is going to refer her for TWO FEEDING TUBES!

Patty
Reply with quote  #64 

Hi, first time here with d 12 with an.  I need high calorie meals that are lactose free. Any suggestions would be great. Thank you 

Tryingmom
Reply with quote  #65 
Patty,
Oatmeal and raisins, trail mix, anything with nuts, esp. almonds because of the calcium, and raisins, rice and pasta, salad with olive oil based dressing, peanut butter on whole wheat, granola bars.

Tryingmom
margaret
Reply with quote  #66 

Boost, Resource and Ensure are all lactose free nutritional drinks. Carnation has a lactose free Instant Breakfast now, too. Lactaid lactose free milk and cheese, and soy and hemp "cheeses" and products such as Tofutti dairy free ice cream (the chocolate is good)and Tofutti Cuties ice cream bars mean that many favorite treats can be lactose free.

 

Patty
Reply with quote  #67 

Hi thanks for the help. I just found out she is allergis to nuts, gluten,corn,egg yoke and some ftruits. Any other suggestoins. Thanks

Patty
Reply with quote  #68 

Hi I also forgot she is allergic to soy. I need lots of help. Thanks

M
Reply with quote  #69 
Quote:
Originally Posted by Patty

Hi thanks for the help. I just found out she is allergis to nuts, gluten,corn,egg yoke and some ftruits. Any other suggestoins. Thanks

Hi Patty--

 

Off the top of my head I'd guess you're going to have to do some cooking from scratch.  A couple of ideas:

 

First google "gluten-free recipes."  There are dozens of sites with recipes and ideas.  That should get you started.

 

Second, go to a good health food store and read, read, read labels.  You may find some reasonable substitutions for common/staple foods there.

 

If it were me I'd look to build lots of meals around meats, veggies and starches like rice and potatoes.  The more variety the better.  Rely on oils like olive oil and even coconut oil.  You should be able to find good quality coconut oil in the health food store.  It's terrific for high-heat sauteing and frying.  Some brands have a very coconut-ty taste (can be a plus with things like chicken and milder veggies), others are more neutral-tasting.  You can also use ghee in place of butter if butter is a problem.  It's in the health food store, too.  But I'd stick with good-quality butter if your child can tolerate it.

 

If you are looking for lactose-free things because your child is lactose-intolerant, the Lactaid chewable tablets are great.  Also, many lactose-intolerant people can consume some milk-based products with no trouble.  My lactose-intolerant child, like many lactose-intolerant people, has no trouble with yogurt or cheeses, sour cream.  Also, if the taste of lactose-free milk isn't your thing, you can mask it sucessfully with flavorings:  chocolate syrup, vanilla extract plus a bit of sugar, Instant Breakfast (check the label--I'm not totally sure if it fits, but I think it might.)  The milk can also be used in shakes of all kinds and in cooking.  Kefir, a yogurt-based drink, is now widely available and quite nutritious.  My grocery store now carries it. 

 

Search google for instructions on how to thicken things with arrowroot instead of flour or cornstarch.  Also try rice flour.  (Health food store, again.)This gives you back some things like gravies, etc. . .that traditionally rely on flour, cornstarch or egg yolks as thickening agents.  You will need it.  Also, the dehydrated instant mashed potatoes can be used to thicken soups, etc. . . and in casseroles.  You will have to experiment.

 

If a child is allergic to nuts, can she still eat seeds?  I don't know the answer to this.  If so, though, think of sesame seeds, sunflower seeds, even pumpkin seeds.  All are highly nutritious.  They can go in salads.  Sesame seeds make a wonderful "breading" for chicken and fish.  Dip in oil or melted butter and then roll in the seeds with a bit of seasoning.  You could make trail mix out of rice cereal, seeds, dried fruits your child can eat, chocolate chips, etc. . .

 

Ok, I'm out of ideas right this minute. . .

 

 

 

 

 

 

 

 

 

margaret
Reply with quote  #70 

If she has celiac disease (which is not an allergy but an autoimmune reaction to gluten) these folks may be helpful with diet tips. Many have multiple allergies.

http://www.celiacforums.com/index.php

If she has celiac, her lactose intolerance may resolve as her bowel heals.

cm
Reply with quote  #71 

when you are preparing or giving food to your daughters do u usually go by the serving sizes on the package, or measure meat? When i give my daughter a peice of meat she complains saying a normal serving is 3-4oz, but pre-an and with my other kids i just cook and season the chicken breast, steak, or whatever and they ate it, and im sure it was always much more than 3 oz.

Jane
Reply with quote  #72 
Hi CM,

I think families deal with portions/calories/food choice issues in different ways.  Early on I offered my d some input in an effort to be kind and to minimize her stress.  In reality she was too ill to make choices.  The anorexia drove all decisions and negotiated relentlessly for lower calories and smaller portions.  We needed to be firmer.  Many families find that when food choices and discussions are halted it actually relieves some of the stress for the ill child.  We tried to get across the idea that we would look after her health and make decisions based that. 

If your d needs to gain weight for the sake of her health she needs to eat MORE than she ate before.  I wish there were an easier way but she won't be able to eat smaller portions than previously and restore her health.  You might brainstorm some ideas to get sufficient calories in efficiently ("maximum nutrition for the minimum footprint" as Cheforexic would say).  Shakes were key for us.  Handling food prep while my d was out of the house (which I wasn't able to do all the time) lessened stress somewhat too.  Wishing you all the best.
Jane

Patty
Reply with quote  #73 

Thank you for all your advice.  The health food stores are great. All I do is cook from skratch. Very expensive.

Margaret
Reply with quote  #74 

Just a heads up-the Ensure people have come out with a new suppliment called Prosure that has some advantages over Ensure Plus. Its not so awfully sweet,its higher in protein and it contains fish oil

I've tried it, you cannot taste the fish oil. And it is not is cloying as Ensure Plus. The banana flavor is quite good, though it did benefit from being blended with a real banana.

Prosure is marketed for Cancer Patients but anybody who needs to gain weight should find it useful

http://www.prosure.com/

 

tanya
Reply with quote  #75 

Hi, we found soft drinks at lunch and tea surprisingly uped our daughters weight significantly. Might be worth a try, good luck and hang in there and take care.

Tanya

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