F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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If you need help using the forum please reach out to one of the moderators (listed below), or email us at bronwen@feast-ed.org.

ginetta
Hello,

My 14-year-old niece became anorexic a few months ago and it has been overwhelming, scary, and heartbreaking for the parents and the rest of the family. Her parents have tried intensive family-based therapy they now believe that a residential program may be a better solution (she has been hospitalized twice already for low heart rate.)

Would anyone have any recommendations about good facilities in the Pacific North West, or even further? They have very good insurance, so money should not be an issue and frankly, are willing to go into debt over this. The closest facility to them is the Eating Recovery Center in Bellevue, WA, and while it would be the most convenient, they want to give her the best chance.

In case it matters, she is not purging or cutting, but she is avoiding eating at any cost (throwing out food, water loading, etc), and probably exercizing excessively.

Thank you very much for any help or guidance you can provide.
Gina
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Kali
Hi Gina,

Have they looked into Kartini?

They have an excellent reputation.

Kali
Food=Love
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sk8r31
Hi Gina,

I live in the PNW...north of Seattle.  Am quite familiar with the resources in the area, and on the west coast, and will send you some more info via email.  As Kali has suggested, Kartini Clinic in Portland has a great reputation and made our family's 'short list' of options when we were looking for treatment for our d.  We ended up going to San Diego to the UCSD 5-Day Multi-Family Intensive, and it was the 'light switch' moment for our family.  Never looked back....and my d has been in strong recovery for several years now.  I can highly recommend that program, as well as the other IP (inpatient) and IOP (Intensive Outpatient) programs there.  There is a fantastic peer (parent) mentoring group attached to all of them.  If I were searching for a 'best option' again, even this many years later, that's where I would go.

Sending warm support,
sk8r31
It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
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US_Mom
We too are in the PNW. We admitted our daughter to the Center for Discovery in Edmonds in their inpatient program and then she stepped down to their PHP and IOP programs in Bellevue. We give them full credit with getting her to eat again. The program was convenient because it was close enough to home, we could visit and attend family sessions.  We too tried refeeding at home at first with no success. While she was in treatment, it gave us time to read a lot and come here to learn about what to do once she came home. 

You're a wonderful aunt, sister, and sister-in-law!
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ACL
We live in Seattle.Our daughter is 13. her primary diagnosis is RAN but she has aspects of her illness which look like ARFID and food phobia. We also were initially unable to make good progress outpatient. Our daughter was admitted to Seattle Children's last August and the team recommend residential as a next step. We reluctantly looked at ERC Bellevue. We knew we needed a lot more support but were also very worried about how separation from family would affect our daughter. We were also wary of approaches which felt to us too focused on talking and meds and not focused enough on rapid weight restoration. We had prior to admission been thinking about UCSD 5 day but there weren't immediate openings and our kid was at this point quite ill, 5 days didn't seem likely to cut it. We had read about Kartini here and started calling then daily and were able to get our daughter in there. I am so grateful. Dr. M told our daughter she had to eat everything on her meal plan by the end of the week or she would get an NG tube. She meant it. My kid managed to start eating her full meal plan. She gained 2-3 pounds per week. It was hard. Kartini is not residential, they have the kids basically school day hours and feed them 2 meals and 1-2 snacks. But, parents can do so much with the right support and they give a lot of support. We, like many families with kids at kartini, stayed at Ronald McDonald house, very close to the clinic. We were there 2 1\2 months.
We returned home 7 months ago. Today our daughter just got home from camping with her class. I went along as one of several parent chaperones. She does still need support to eat the amount of food she needs ( which is still substantially more than other kids her age, she is growing rapidly after 2 years of no growth while she was ill) and has a limited range of foods. But, she is honestly probably happier and more pleasant to be around than the average 13 year old, doing well in school, very rarely any pushback at all about eating ( and when she does U can handle it!) 
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