F.E.A.S.T's Around The Dinner Table forum

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mamabear Show full post »
nvrgvup
Mamabear Not sure if this will be helpful or not but thought I would give another experience. my daughter struggled greatly with constipation as a young child. Started in 1st grade. she was diagnosed with celiac disease but even on a gluten free diet she still struggled. We did the Miramax route for a couple years. It helped a bit. There were times when we had to do a clean out giving her a dose every hour for 7 hours. It would clean her out but overtime it would build up again. Magnesium helped. We ended up being referred to a specialist in Boston as the local gastro doc had run out of ideas. The Boston gastro put her own a drug called amitiza. According to the gastroenterologist it worked by slowing down the pumps in your large intestine that take out the water. According to him some of us have more pumps. She stayed on it for a couple years. It worked great for her. She has not taken it for years and she is not had an issue since. I personally have to take Miramax everyday. I find Metamucil (psylum) has the adverse effect on me. Some people Metamucil causes constipation.

probiotics sound like a great idea.

I agree with the others switch the bananas

Good luck. I hope it is resolved soon
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nmrk
As a primary care physician I can reassure you that chronic constipation is a very common problem. In addition to dietary changes, I often recommend Miralax which can be used safely as long as it is required. Another suggestion I often make is to have a regular toilet time after breakfast or dinner. Activities that promote relaxation can also help, like meditation, yoga or massage. In a child recovering fro ED I would be hesitant to recommend reducing or eliminating foods but would recommend adding dried fruit like raisins, apricots, prunes, etc.
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deenl
Hi mamabear,

I realise you are really reluctant to go the exercise route because of history of compulsion but how about yoga. They say it is helpful for people with ED history to strengthen the brain ability to connect to and sense what's happening in the body. Perhaps a few one on one sessions to especially target the digestive tract?

Hope you enjoyed the holiday.
D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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mamabear
Update:

D is completely off of all meds for constipation!
She has been on a very good probiotic and altered her diet a bit ( stopped bananas, slowed down on dried fruit and nuts etc) . Pushing even more water.

She literally just sent me this text : mom I am officially pooping completely normally! Those pills you got me and everything we changed worked! Now I can say I am officially 100 percent back to normal!"

Hallelujah!

She's playing a show tonight at a theatre. She has a couple of new original songs. She's flourishing. It's a beautiful thing to watch.

Kerp going!
Persistent, consistent vigilance!
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trusttheprocessUSA
its beautiful to followe her progress too. Thank you for sharing all of the parts of your d's recovery. Enjoy tonight.
Happy happy Mothers Day!

Son diagnosed @ 12.5 yrs old with Severe RAN 2/11. Co-morbids - anxiety, Active restriction for 3 months. He stopped eating completely 2x. He needed immediate, aggressive treatment from a provider who specialized in eating disorders, adolescents and males. We got that at Kartini Clinic. WR since 5/11. 2017 getting ready to graduate slipping lost 8lbs. Fighting our way back.
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atdt31_US
Wondering which probiotic and what form it comes in, was successful.
Mom of either pre-diagnosis or non-ed underweight 12 yoa (as of March 2018) kid here to learn how to achieve weight gain.  BMI steadily in the mid 12's for nearly her entire life.  Born 2006. UPDATE:  April 2018 diagnosed ARFID, based solely on weight being less than 75% of Ideal Body Weight.  Mildly picky, but mostly the problem is a volume/early satiety issue, along with abdominal discomfort and chronic constipation, all present since birth.  UPDATE:  July 2019 diagnosed with PANS. Dr. said likely started first PANS episode at less than 1 or 2 years of age.  On long-term daily prophylactic antibiotics. BMI now about 16 after period of intense refeeding prior to PANS dx,  followed by stagnation as we sort out what is next. FWIW ED-D is a fraternal twin and we have no other kids.
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mamabear
NOW Clinical GI Probiotic 50+ formula
Persistent, consistent vigilance!
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atdt31_US
Thanks!
Mom of either pre-diagnosis or non-ed underweight 12 yoa (as of March 2018) kid here to learn how to achieve weight gain.  BMI steadily in the mid 12's for nearly her entire life.  Born 2006. UPDATE:  April 2018 diagnosed ARFID, based solely on weight being less than 75% of Ideal Body Weight.  Mildly picky, but mostly the problem is a volume/early satiety issue, along with abdominal discomfort and chronic constipation, all present since birth.  UPDATE:  July 2019 diagnosed with PANS. Dr. said likely started first PANS episode at less than 1 or 2 years of age.  On long-term daily prophylactic antibiotics. BMI now about 16 after period of intense refeeding prior to PANS dx,  followed by stagnation as we sort out what is next. FWIW ED-D is a fraternal twin and we have no other kids.
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