F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

Join these conversations already in progress:
• Road To Recovery - Stories of Hope
• Events for Parents and Caregivers Around the World
• Free F.E.A.S.T Conference Videos

Visit the F.E.A.S.T website for information and support.

If you need help using the forum please reach out to one of the moderators (listed below), or email us at bronwen@feast-ed.org.

EB
Sarah Marsh from The Guardian (UK) would like to hear from families where a member has been treated for an eating disorder.  You can leave input for her on the page that is linked to here

Questions include:
  • What are your experiences of NHS services?
  • How long did you have to wait to get help?
  • Was it a struggle to get a diagnosis?
  • Did you receive treatment locally or were you moved away from home?

(My apologies that they have used such a clichéd pic - but there you go - picture editors sometimes lack imagination when it comes to matters of mental health!)
Erica, UK
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NELLY_UK
Are they allowed access to here to our threads?
NELLY D 20 bulimic since age 12, diagnosed in 2011. 20 months useless CAMHs,7 months great IP, home March 14..... more useless CAMHs.now an adult & no MH services are involved. I reached the end of my tether, tied a knot in it and am hanging on. ED/Bulimia treatmentis in the dark ages in West Sussex.
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Foodsupport_AUS
The main forum is open to anyone with out registration as it is publicly searchable. So yes. The provider forum is closed. 
D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
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AUSSIEedfamily
Dear Nelly,

As soon as I saw this post I though of your battles
ED Dad
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EB
This forum can be freely read by anyone; we are members only in our abilities to post.

However, I think that if you want to air your story via this particular journal, it is going to be best to fill in the form on the site.  I would think it is unlikely that this journalist will visit here to search - there is a form that guides you through the kind of input that is wanted and there is scope to give detail and there is a permission to "sign" that enables you to exercise choice in having your story published, and/or if you want to remain anonymous.
Erica, UK
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NELLY_UK
I think the patient would have to sign consent evenif the story is anonymous.
NELLY D 20 bulimic since age 12, diagnosed in 2011. 20 months useless CAMHs,7 months great IP, home March 14..... more useless CAMHs.now an adult & no MH services are involved. I reached the end of my tether, tied a knot in it and am hanging on. ED/Bulimia treatmentis in the dark ages in West Sussex.
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AUSSIEedfamily
Dear Nelly,

I think you are right about the patient giving consent even if it is anonymous as some times even just basic info might lead to indentities being revealed.



ED Dad
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EB
I guess if the patient is made identifiable that might be an ethical factor for the contributor and the journalist to consider. We all have a right to tell our own stories, however, and to decide how much detail we want to give away.

Speaking up can be important, it can contribute to change, but there may always be some risk to weigh against the benefit - I guess it's for each of us to decide for ourselves where we find the balance.
Erica, UK
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mjkz
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I think the patient would have to sign consent evenif the story is anonymous.


Actually they don't.  If you share your story, you are talking about your own part of the story like Erica has pointed out.  It is really no different than posting and sharing on here.

My daughter is an adult and when she had to go out of country for treatment there was news coverage on it about someone falling through the cracks, the sad state of mental health coverage, lack of insurance, etc.  They did use an alias for her name but not mine and she never gave permission for the story.  I talked about my own struggle with parenting a very sick YA who was uninsured (way before Obamacare and being on your parent's insurance until age 26).
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Jasmine1
Hi there - I filled in the form yesterday about our experience here - the good and the bad. When you submit the form there are options of if you want it to be published and do you wish to remain anonymous. I think it's well worth doing as all areas are so different and it can help highlight problems. In our case I think GPs should be better educated to understand when a child is not eating to take it very seriously. Also despite the rise in mental health issues in young people our county doesn't have enough provision for them. The staff we did see were excellent but very very overstretched.
It seems your confidentiality will be protected so well worth doing. With the rise in eating disorders and mental health issues there needs to be a rise in care provision - not cutbacks - and anything that might help highlight this could help
Daughter was age 11 when she started restricting Aug 2014, admitted to paed ward Dec 2014 for low BP, pulse rate and spent 3 weeks there. As they were about to NG tube her, she decided to eat again. After approx. 1.5 years on a meal plan and lots of toil, sweat and tears she is weight restored and has just been discharged from NHS care. It's been a very slow traumatic process but each day we are making progress.
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