My 13D was diagnosed with RAN in November 2018. She was in 8th grade and had lost 20 pounds in 4 months when we realized exactly what we were facing. She had gone from 118 lbs to 98. We were able to get her up to 109 pounds in a few months with general therapy (not specifically FBT) and a nutritionist and then...we were stuck for about 9 months. She was still underweight and the AN thoughts and behaviors were still very much there.
Thanks to this group, I learned about the research program at Columbia hospital in NYC and the FBT therapy that they provided in exchange for participation in their research study. My daughter qualified and we were assigned an FBT therapist who literally put us on track for my daughter’s recovery. Providing us with FBT, she empowered us to tackle the AN: we planned all meals, every meal and snack was supervised (Even school lunch that now in high school, my daughter eats with me in the car every day) and we closed all the loop holes that AN likes to use to hide and manipulate. It was a 3 month battle and we confronted it head on.
We started at Columbia in November 2019 when my daughter was 109 lbs. Today we had a family meeting and were overjoyed to learn that she is weight restored at 127 pounds in 3 months. We are moving very slowly and with vigilance to phase 2.
I wanted to share my story and say that this forum helped me every day to know that I was not alone, to help me cope and have a support network of wonderful and brave caregivers from around the world that I so grateful for. I spend about 18 months just looking at this forum and never posting until tonight to say Thank you. That you all gave me the courage to know that I can fight this for my daughter and that recovery is possible. I was in the trenches for months and like many of you, was so beaten down and exhausted and saw no end in sight. But...it can get better and it will get better. For us, I know FBT saved our daughter.
I’m so emotional and grateful tonight. please...keep going, day by day. Bite by bite. Meal by meal. You can do this.