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Tbarker85

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Reply with quote  #1 
My d told me yesterday she gets pain in her chest/neck and can feel her pulse beat in her neck really hard whenever she does any cardio- she only does this for gym class as she is exercise restricted. I took her to the dr today and they said her vitals looked good but they are referring her to a cardiologist. She is now no longer allowed to participate in gym per the doctor. Have any of you dealt with heart issues? Trying not to be too concerned but I can’t help it.
scaredmom

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Reply with quote  #2 
We did not have heart issues. What you describe is “palpitations” the sensation of the heart beating. Usually if there are significant issues there can be fainting spells or chest pain or heaviness. I am glad the doctor stopped all exercise even gym. I am glad the doctor is sending to a pediatric cardiologist.
Without your d seeing someone, you can’t know what is going on at the moment. Have you discussed with the doctor how concerned they are? And what they are concerned about. I wish I could reassure you that all is fine, but I can’t.
Just know I am thinking good thoughts and hoping all is fine.
XXX
toothfairy

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Reply with quote  #3 
Hi there,
This is concerning. Anorexia is a very dangerous illness.
Has she had a full medical work up?
Many clinicians are not properly trained in ED’s .
Here are the AED guidelines. I advise you to print them, read them & mark out the required tests that your D needs & bring this with you to appointments.

http://www.nyeatingdisorders.org/pdf/AED%20Medical%20Management%20Guide%203rd%20Edition.pdf

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Food is the medicine. Recovery is possible.
toothfairy

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Reply with quote  #4 
This presentiation is excellent too from the the At home with eating disorders conference-
The medical management of young people with anorexia nervosa. Dr Rod McClymont


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Food is the medicine. Recovery is possible.
OneToughMomma

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Reply with quote  #5 
Dear Tbarker85,

I can't speculate about your ds heart, but I do know that cardiac issues are very common with our ED kids.  My d was hospitalised with cardiac problems, and of course we were worried sick.  

It's great that you are gathering information, and that her clinicians are concerned.  It is quite common for kids suffering from ED to be completely restricted from any exertion until completely recovered because exercise is counter-indicated for those who need to gain weight, and many sufferers have compromised hearts.

For our family, a 3 week stay in the paediatric ward for heart problems was the turning point in ds recovery.  From that point on, we were able to get really serious about her treatment and recovery.

Sending a warm hug,

xoOTM

 



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D in and out of EDNOS since age 8. dx RAN 2013. WR Aug '14. Graduated FBT June 2015 at 18 yrs old. [thumb]
Tbarker85

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Reply with quote  #6 
The next available cardiology appointment is not for six weeks [frown] Our Doctor is going to call this coming week to try to get them to move it up. Hopefully that works. My d seems to feel fine but she has been noticing a pressure in her chest from time to time not but it doesn’t slow her down at all. She has been following the food plan and has been really clingy which allows easier supervision I suppose. I am so proud of how well she is adapting to the new food plan.
OneToughMomma

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Reply with quote  #7 
You should be proud of your d and yourself.  It's a hard job and you are both doing great.

xoOTM

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D in and out of EDNOS since age 8. dx RAN 2013. WR Aug '14. Graduated FBT June 2015 at 18 yrs old. [thumb]
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