This site has been very helpful the past few months during refeeding - thank you to all who contribute. I feel a bit stuck right now, so thought I’d share my story and get some thoughts on next steps and some questions I have.
DD (13) was diagnosed in Nov 2018 after not gaining any weight over the course of a year and then losing quickly. She was over committed with various sports and since starting middle school I was not monitoring her food intake. Too much weight was lost due to sports, which triggered the ED. The good news is that we think it was caught early, and I was able to find some good resources to help here in the US. I worked closely with a nutritionist and we put a plan into action. After diligently feeding 6x per day, she was within her target range by the end of Feb 2019. We decided to rip off the band aid and took an aggressive approach, sometimes gaining 3 lbs per week. It was not easy (to put it lightly), but we got there with lots of support from our team and my husband, who did a lot of the cooking. She stopped all sports for several months and then we let her slowly start back up again just recetly. She has been weight restored for almost 6 months now. We think she has also recovered mentally, but she does have some weird eating habits left over from ED, which leads to my question.
Her weird eating habits are things like, not eating her bread and sandwiches properly (always left with edges at the end even tho I cut off the crust), salad dressing dripping from her mouth (mind you, I do load it up with full fat dressing!), constantly still complains that she is full all of the time, asks if she can have less food (most meals), always picks the least calorie item if I let her pick something out, doesn’t sit down much except when she is eating meals. Overall, she is happy and back to her old self, but I know she isn’t there 100%. My question is, how can we get rid of these remnants that ED has left behind? How much longer will it take? In addition, she is only 13, and has only grown half and inch in the last 9 months. When will she need to gain more? After she grows or before? Note that she is within her weight range currently based on her growth charts. I have asked these questions of her team, but I can’t seem to get a straight answer. Please help me get rid of ED 100% and keep it away for good!