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toothfairy

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Reply with quote  #1 
Hi tina72,
I am wondering if you can help.

What is your opinion of the German ninette,berlin  videos and resources?
As they are only in German I cannot translate as they are video.
It has been mentioned by somebody to look into it as a great toolkit.

Please can I have your opinion.






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toothfairy

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Reply with quote  #2 
https://ninette.berlin/mainsite/



Thank You Tina!

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toothfairy

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Reply with quote  #3 
Also this please!!!!
https://www.nytimes.com/2018/04/24/arts/ingvild-goetz-selling-art.html

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tina72

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Reply with quote  #4 
Quote:
Originally Posted by toothfairy
Also this please!!!!
https://www.nytimes.com/2018/04/24/arts/ingvild-goetz-selling-art.html


Hi toothfairy,
this might be a wrong link because it has nothing to do with AN?
Tina72

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tina72

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Reply with quote  #5 
Quote:
Originally Posted by toothfairy
Also this please!!!!
https://www.nytimes.com/2018/04/24/arts/ingvild-goetz-selling-art.html


Give me some time to watch it. The trailor does not give much information, also I am a bit alerted because it says AN is about control and perfectionism.
They say it is upcoming weekly in german and english. I will search the english version so you can watch it, too.
I will come back later when I have seen the first part.
Thanks for sharing!
Tina72

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tina72

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Reply with quote  #6 
Here is the link to the english version:
https://ninette.berlin/mainsite/index-en.html

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tina72

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Reply with quote  #7 
Just watched the first two episodes, later I will have more time. They are about the way to AN and show some "causes":

Nette does not want to be grown up.
She wants to impress her swim trainer.
Her parents have issues in marriage.
Her dad wants to lose weight.
Her family talks negativly about her body.
Jette begins to run.
She informs herself about diets.
She is weighing herself every day and starts wearing buggy clothes.
She eats less.

So far some reality in it, I am really curious what solution they will propose.
More later.
Tina72

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toothfairy

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Reply with quote  #8 
Hi Tina,
Thanks so much for taking a look, and for the link in English.


A little more background. The New York Times article is about The German art collector and curator Ingvild Goetz .
Here is what it says... 
"
Her initiatives have included video courses for refugees and the online storyboard ninette.berlin about eating disorders, aimed at girls ages 11 to 15."
and here is more from the article -
"How did the sale allow you toincrease the scope of charitable activities?

I had already started a program for anorexia, but was able to develop a much more intense framework. It used to be a taboo in Germany. You could find few books on the subject but a whole library of dieting advice. Through extra financial support I have been able to connect institutions that had been working independently."




 

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toothfairy

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Reply with quote  #9 
Here is more information about her, I hope this is of interest to you Tina.
https://www.ingvildgoetz-philanthropy.de/e/projects/eating-disorders/?mobile=1

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tina72

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Reply with quote  #10 
Ah, o.k., I now understand. I will look at it tomorrow when I have more time.
I am really interested in it and I thank you a lot for sharing, Toothfairy.
I will keep you updated when I read/watched it completely.
Tina72

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tina72

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Reply with quote  #11 
Quote:
Originally Posted by toothfairy
Here is more information about her, I hope this is of interest to you Tina.
https://www.ingvildgoetz-philanthropy.de/e/projects/eating-disorders/?mobile=1


I have done some quick research about her and she is supporting some ED sites here in Germany. Unfortunately they do the old school search for underlying issues and mostly recommend just group therapy or the German ED units in hospitals. Not much information about parents help or FBT.
Maybe worth a try to get in contact with her and ask if she wants to support FEAST?
Tina72

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toothfairy

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Reply with quote  #12 
Thanks Tina,
Have a nice weekend1

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tina72

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Reply with quote  #13 
So, I now watched them all. Mmmh.

First I must say that some things are good. How the AN is described, what she says and how that feels, is good. And the reaction of the surrounding, the family and friends. All that is realistic.

But the problem with this series begins when they try to do something against it. Nette goes to an outpatient therapist first. And first question is about family and underlying issues. No word about refeeding. Parents go to a separate support group, but there is no concept. Good old German therapy I would say. So nothing changes and Nette needs to go into IP. Good old German IP. No parents. Single therapy about underlying issues. They cook together. They have a food protocoll. They know their weight. Control by parents is seen negativly. The therapist mentions, that Nette has hurt her family and friends with her behaviour (blame). The parents were told that relapse is normal. Nette should go to a therapeutic residential group. Nette must have insight and the wish to get better...
After 5 years in different IPs (!!! so it says it is normal to stay in IP FOR YEARS!!!) Nette moves into her own flat and everything is magically o.k. now. She even "dares" to say NO to her mum!!! [frown]

There is NOTHING realistic besides the AN insight how it must feel to have that disease.

We hear NO WORD about parents help with refeeding, about FBT, about the importance of weight gain for recovery. Nette is still extremly thin when she is adult (in my eyes). The parents are seen negativly. No word about genetic and biological issues. The series says it is normal to stay in IP for years and relapse is normal and they have to go to IP and again IP until they have the age and insight to get better. It is normal to lose all that time in life because of AN. It is normal not to go back to school.
NO WORDS.

So what is that series made for?
Kids will not watch it, it is extremly boring done, too slow, no action, just speech bubbles. Maybe they will watch it in school when they are forced to.
Parents? Can get an idea what it is to have AN and how that might feel. That is the only use for them. They do learn nothing about refeeding. They get no help in the support group (and they seem to be in there for YEARS).
This series seems to be promotion for German IP clinics. To recover from AN it seems to be normal to stay in IP for many years. The solution is to stay there until the magic button is hit and the AN problem is solved.

That is what they do here in Germany. And that was the cause why we took our d out of IP. We could not sit and watch how she threatened herself. We could not sit and watch how time runs by and nothing changed. She wanted to have her life back and we wanted to help her. We did not want to be pushed to the side line.

So these are the two ways here for parents:
1. You do it the Ninette way and wait many years for recovery.
2. You dare to do it on your own and do FBT and our d is now at home for one year and a happy and nice young woman. She did her driving licence, she is doing her final exams, she meets with her friends and she is going to have her prom in June and then she will go on holiday with her friends (just a few days, but she will be able to manage that, I am sure). She is not totally recovered yet and we still watch her like a hawk but we dare to dream of a future again. All three of us.

So would I recommend watching this series?
For kids - no. Too triggering, too boring.
For parents: Yes to get some insight in how their kids feel. No to find any useful information. You will not find help there. It is lost time.

Thanks for sharing, Toothfairy. I often wonder where you find all that informations for us. You are our ED search engine NR.1!!!
Tina72




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toothfairy

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Reply with quote  #14 
Thank you Tina72,
That is really great information! 

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evamusby_UK

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Reply with quote  #15 
Tina, would it be a good plan to add a comment in the YouTube with your assessment. And maybe to link to the German resources you and I created together?
Finally, here is a highly motivated creator of content. Any chance of engaging this person in a discussion so they learn about what we know?
Just thoughts. All take energy and may not have any payoff....

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Eva Musby, mother, author, produces lots of resources for parents at https://anorexiafamily.com and on YouTube https://www.youtube.com/user/EvaMusby/playlists
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tina72

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Reply with quote  #16 
Hi Eva,
I must check wether I need to login for youtube to do that, never done that before. I will check that when I have more time, maybe on the next weekend.
I thought about contacting the woman, too. Maybe she can put her power in changing someting? Or supporting FEAST?
When I have some time left I will do that.
Tina72

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evamusby_UK

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Reply with quote  #17 
Hi Tina
I am pretty sure that if you comment on YouTube, you need to be signed in to YouTube and the name you're signed in with will show up.
Which is not good for your privacy or your daughter's.
I am happy to comment using my Eva Musby name. The only downside is that if I then link to my materials, viewers might dismiss it as just self-promotion. Maybe tell people to google family-based treatment in German?
Other option: you create a new account which is just for your ED advocacy.


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Eva Musby, mother, author, produces lots of resources for parents at https://anorexiafamily.com and on YouTube https://www.youtube.com/user/EvaMusby/playlists
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tina72

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Reply with quote  #18 
Hi,
I have contacted Ingvild Goetz a few days ago to tell her what I think about the comic and to invite her to get more informations about FBT and F.E.A.S.T. but she did not answer up to now.
Tina72

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toothfairy

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Reply with quote  #19 
Thanks Tina, I hope she will reply.
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