F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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Hi.   Has anyone's child with AN experienced extreme fatigue and painful muscles?  My 14 year old daughter is WR but not into phase 2 yet bc of continued ED thoughts.  She is extremely fatigued and complains of sore muscles every where.   She's never weighed more than 104 lbs at 5.51/2 until we learned it was AN & now weights 125 w/ a BMI of 20 and is 5.61/4.  Doctors aren't sure what is the cause.  Iron levels are normal & no mononucleosis.  One doctor thinks it might be depression.  2 doctors do not.  Has anyone else experienced tremendous fatigue associated with recovering ANs?  This has been going on for months.  Walking the dog around the block is fatiguing.   Would appreciate any thoughts.  
That is a common symptom. Pain in muscles is often deficiency of magnesium. Fatigue is often deficiency in Vitamin B12 and zinc. Has that been tested? Malnutrition is in long term very exhausting for the body and most AN patients experience that with refeeding it first gets worse. The body tries to give energy to the brain and the most important inner organs first.
Good news is that it gets better by time (as nearly everything) but it needs time. My d is 2 years into recovery and still very exhausted by normal life and sleeps about 10-11 hours.
Keep feeding. There is light at the end of the tunnel.
Still not sure if it was ever related to AN but around the time of my D's first getting to full weight restoration she also developed generalised aches and pains and severe fatigue. In her case she also developed swollen lymph glands as well, and some swelling around her knee joints (arthritis). She had numerous assessments including consideration of various cancers, infections and juvenile arthritis, and chronic fatigue. She was finally treated for the arthritis and things slowly but surely disappeared over the course of six months and have never recurred. The good part about this was it put a final stop to compulsive exercise which we had been battling for two years. 
D diagnosed restrictive AN June 2010 age 13. Mostly recovered 10 years later.  Treatment: multiple hospitalisations and individual and family therapy.