F.E.A.S.T's Around The Dinner Table forum

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Frazzled
Is an extinction burst at the end of weight restoration (or when they are almost on their growth curve if still growing) related to the kids knowing their weight or is it something that happens regardless of knowing or not knowing their weight? Just curious what others have experienced. 
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scaredmom
I don’t think it matters if they know or don’t know. And not all kids have it or at least it may not be obvious all the time. I never saw my d have more issues near WR at all. (I think?)
XXX
Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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Ronson
My d had issues at wr - she did not know her weight - with is it was more an extinction of a behaviour - we had two - we had the day of the eating resistance extinction burst where we had the worst resistance to food we got through it and after that much less resistance and then we had a more emotional one - the I’m so fat one - which was the worst episode of that and then after that not so much.  So for us it was like a crescendo of the behaviours we had been experiencing before they subsidised 
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tina72
We had some extinction bursts around target weight set from hospital, She then knew her weight because in IP they started with open weighing and she fought those last kg like hell. I then changed to blind weighing and after that we had no problems to get over target weight any more and nothing I would call extinction burst. So here I would say it was due to her knowing her weight.
Keep feeding. There is light at the end of the tunnel.
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Frazzled
Thanks for replying! My D does not know her weight and we are in week 3 of increased ED behaviors. They are off and on it seems. I increased calories and bumped up her shake to 2,300 calories. She has grown 1/2 inch so I am now chasing growth again. She is going through puberty and may be starting a growth spurt also. Maybe this is because of growth/puberty and an ever increasing calorie needs instead of extinction burst. Once again I am guessing. I so wish things were more clear cut with this awful disease. 
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deenl
Hi Frazzled,

Here is an excellent explanation of the extinction burst by IrishUp.

Warm wishes

D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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Ronson
I think increasing behaviours is like a calorie deficit thing with growth maybe.  Our extinction bursts were a huge sudden peak in behaviour on one day each and it was followed by a change in behaviour - like a letting go 
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tina72
Frazzled wrote:
Thanks for replying! My D does not know her weight and we are in week 3 of increased ED behaviors. They are off and on it seems. I increased calories and bumped up her shake to 2,300 calories. She has grown 1/2 inch so I am now chasing growth again. She is going through puberty and may be starting a growth spurt also. Maybe this is because of growth/puberty and an ever increasing calorie needs instead of extinction burst. Once again I am guessing. I so wish things were more clear cut with this awful disease. 


It is quite possible that she needs more food because of growth and puberty and all the time my d had too less intake we saw ED behaviour increasing. That is not only due to extinction burst, it can happen as well at any time when they are undernurished again. So bumping up calories is first aid and to add more fats if it is not already 30%.
It is a rollercoaster, up and down, two steps forward one step backwards for a very long time.
Try to keep feeding and stay patient and just get through it.
Keep feeding. There is light at the end of the tunnel.
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tina72
Ronson wrote:
I think increasing behaviours is like a calorie deficit thing with growth maybe.  Our extinction bursts were a huge sudden peak in behaviour on one day each and it was followed by a change in behaviour - like a letting go 


That is a very good description, Ronson. It is like a very strong thunderstorm and after that it clears up again and they change behaviour.
Keep feeding. There is light at the end of the tunnel.
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Frazzled
Thanks everyone!  Ronson that describes it perfectly. We have had a few of those but this is different. I have to increase calories even further somehow. Although something really positive just happened. I was sitting there eating some Dove chocolates and she walked in and I handed one to her and she just popped it into her mouth and ate it like nothing! That just made my day! Really needed that!  
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tina72
That is SO GREAT! A true gold star moment! I hope your smile was not TOO bright 😄!
Maybe it helps to mark your calendar, if you are not doing that already, to see if there is a lasting change in behaviour after these explosions.
Keep feeding. There is light at the end of the tunnel.
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Frazzled
I tried hard to act indifferent which probably resulted in a goofy look on my face 😂 I will mark the calendar. That’s a good idea! It’s hard to tell otherwise because the days blend together so much. 
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tina72
I had my calendar marked with green (good days) yellow (normal ED days) and red (bad ED days) to see the tiny baby steps of progress. It was quite often that I thought we are trapped in a circle and nothing gets better and when I then looked into my calendar it showed me that there were some yellow days and not only red ones and that my thinking tells me it is much more worse than it really is. So today that would be a green day!
Keep feeding. There is light at the end of the tunnel.
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Frazzled
Thanks Tina! So thankful for green days! 
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Ronson
That’s great news that she took a chocolate.   Fantastic 
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Frazzled
Thanks Ronson! 
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