F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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medford
I am at the end of my tether.  We are into our 3 hospitalization since Feb. 2014 for RAN.   Since we have such a strong genetic history for schizophrenia, the stress of malnutrition has switched on bipolar, psychosis and possibly paranoid schizophrenia.  This makes it very difficult for anyone to treat my daughter, she refuses medication, and for us to maintain a relationship with her, she is adamant she can not have a relationship with her family- we are too emotional.  So, she is back in hospital under a very interesting arrangement.  For the past month she has been living in hospital, going to school and working.  However, she hasn't been gaining any weight.  Consequently, the hospital staff say that she either has to comply or leave.  Because she is psychotic her next plan is to go to a shelter and an alternative school- she is in grade 12.  Of course, we want her to stay in hospital but she is not even talking to us.  So, I have been doing some research and am really impressed with the literature on micronutrient and essential fatty acids supplementation and I wonder if anyone else has had some experience with this.  I know truehope has had some controversy but they have also conducted a number of trials.  

Any experiences to share with me?  
D 19, dx with RAN in March 2014. 6 hospital and 2 psychiatric inpatient stay. Not living at home and just completed first year of university
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deenl
Hi medford,

No useful info, just empathy.

We have schizophrenia in the family too, at the horribly serious end of the range. We are terrified for our ED S that this may switch it on too.

We are staring a third admission in the face. All interventions to date have not increased his weight (much) and are causing PTSD. We are afraid but he cannot stay at BMI 11 and in hell.

There are definitely cases where FBT does not work and all the other options have the potential to cause emotional and psychiatric harm. We are actually looking at having to sedate our son 24/7 in order to keep an NG tube in but it is a very big step to take due to his severely low weight.

Anyway, I'm just rambling but felt a connection with you due to similar circumstances. BTW, our son shut us totally out for months at a time. It was heartbreaking but at the mo. he will connect with us.

We will both keep searching for the combination of things that will help our kids. 

Wishing you strength,
D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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kas_US
When we first realized how ill our girl was, I scooped her up and took her to Mensah Medical in the Chicago area. There are threads in prior years about them and their treatment protocols. Dr Mensah was trained by Dr William Walsh. He has written a book regarding his research called Nutrient Power. Dr Mensah put my d on a specially compounded supplement program along with essential fatty acids. I think the treatments really helped her.

Now, she still had anorexia, and more importantly, she still needed the dreaded FOOD! And lots of it!

Dr Walsh has helped many people with schizophrenia over the years, so you might be interested in his book/treatment protocols. The biggest problem you will have is compliance. It was a struggle for us to get my daughter to take the supplements even though she really felt they were helping. Swallowing pills is very close to swallowing food, and unfortunately, they smell bad too. I personally really believe biomedical interventions can play a great supporting role in treatment, but you will need to do a lot of research to figure out what might help your child and what is actually doable in your current circumstances. I am on my phone so I can't find the links right now, but you can go back and find other threads on biomedical or alternative treatments in the archives.

I wish I could give more concrete help. I know it is so painful to be shut out when she so needs your help!

With a hug and a prayer,

KAS
Weight restored/Phase II
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Tali97
We have experimented some what but the child is will not cooperate fully. The hospital did give him a lot of macronutrients and tested everything under the sun including sending tests down to the US to get the results. 
Are you hoping to get the hospital to get her to take them?

18 year old boy (Gluten Free/Dairy Free 2005)
 IP - March/April 2014.  ARFID.
 2015 - Gastroparisis
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Colleen
Yikes, medford.  I'm sorry things are so desperate for your d.

There have been families who've used micronutrient rehabilitation for their children with varying levels of success.  For some, it is a game changer.

Here are some threads that discuss this:
Biomedical and Individualized Supplementation Treatment
Reporting on an added level of treatment
Added layer of treatment, Part II

It was a long discussion as you can see!  I hope there is something in there that is helpful to you and your girl.

((((big hugs))))  I love that you are searching for answers...the epitome of love.
Colleen in the great Pacific Northwest, USA

"What some call health, if purchased by perpetual anxiety about diet, isn't much better than tedious disease."
Alexander Pope, 1688-1744
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