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AJW Show full post »
teecee

A positive update for those following this thread or interested in EMDR for ED sufferers. 

My AN D is still fortunately able to see the clinician fortnightly at the moment and is really benefitting. We were anxious that the current situation with COVID 19 may set her back but not so. She is continuing to add variety to her diet....Cornish pasty being an absolute hit in our household! She’s made buns and eaten them during lockdown and is wanting to make cheesecake as the one she tried wasn’t as amazing as expected! 

The unpredictability around exams being cancelled and being awarded grades got her in a flap but she worked through it. 

The exercise is being managed better too. She seems to be overcoming the compulsion and not doing it when the compulsion tries to resurrect itself. I’m really proud of how she’s throwing everything she’s got to finally boot ED out of the door. 

Selflessly she’s also joined the Kings College ED genetic study so if you haven’t heard of it I urge you to fill in the online questions and provide a DNA sample....it will help future carers who find themselves in our position and who may have a shorter journey than us if they are able to find a way forward for ED sufferers. 

Much love and strength to you all in the trenches  xx

 

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Torie
So happy for you and your d!  Love love love these positive reports!  xx

-Torie
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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MKR
Thank you @teecee! Great progress

The overcoming of anxiety around exams being postponed is a huge milestone.  From a teenager/ young adult's perspective the exams are a major event. That's what they are being told by the schools, the society anyway.

Let's hope that the slow pace of lockdown will settle our kids and let them catch up with recovery. I already hear some encouraging news of good eating and calmer moods.
Mum's Kitchen

14-y-o "healthy living" led to AN in 2017 and WR at 16. Current muscle dysmorphia.
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PurpleRain
Thanks for such a great update!
13 yo d started to eat "healthy" September 2018, she had a growth spurt a bit later, followed by tummy bug. She started restricting breakfast and school lunch in January 2019 (that we know). We succesfully refed at home.
I have found inner strenght, patience and compassion that I did not know I had.
Never retreat, never surrender
keep feeding
 
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Foodsupport_AUS
Thanks for the update. I have been talking to D's psychiatrist about EMDR for my D who has PTSD related to her ED and treatment. He thinks it would be a great idea for her to help her move forward and remove those last vestiges, things that she is scared to challenge because it brings back her memories of acute treatment. For the first time today she acknowledged that she was grateful for having been "forced" to have treatment, she recognises it was what she needed, unfortunately those memories of treatment create flashbacks that are really difficult to deal with. 
D diagnosed restrictive AN June 2010 age 13. Initially weight restored 2012. Relapse and continuously edging towards recovery. Treatment: multiple hospitalisations and individual and family therapy.
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teecee

Thanks all. 

Foodsupport I really wish you well if you do try it. Obviously I’m so grateful it was suggested to me and that she tried it. We did have a rough week at the start of the therapy, which I understand is normal, but it didn’t last. She pushed through it, finding new impetus and it’s like having a mature version of my 15 year old, well girl back. 

I would love it if you feel able to post any updates on how it goes. Xx

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glendy22
Hi Teecee.

I've been thinking about you both and wondering how it's been going so great to hear your update. So glad to hear your daughter is still making good progress during these difficult times. That's brilliant she can still get to her therapy sessions. 
We're still hoping to take forward therapy in the future but for just now having to make do with a weekly telephone call from CAMHS team and no observations. Hoping we can at least tread water until we're through the worst of the coronavirus crisis.

Trying to stay positive. 
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teecee

Hi Glendy22

Yes staying positive is a must. We are capable of doing so much to support our kids without realising. You will come through this as it will pass (shortly hopefully). 

D is making a cheesecake to loud music as we speak. For supper last night she made bread with Camembert in the middle which all of us enjoyed 😊 Cheese was always a fear food so seeing her eat it makes me really happy. It’s the little things that make the biggest impact. 


We are a million miles away from the despair of 24 months ago. I think university is certainly an option for September if she is able to keep this up. 

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deenl
Your update has really lifted my spirits. So glad this is working so well for you and your daughter.

Warm wishes,

D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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CED123
Teecee - it's always lovely to read your positive news.  Do you think you might put a little summary together at some point of when to try EMDR and any other helpful background? I know you mentioned somewhere up thread that you thought a year? in to recovery was the right sort of time.  But any guidance on what sort of shape your child has to be in to give it a go would be great (I can store it up for future!).
Currently no light; only tunnel 🙁
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teecee

Hi CED123
I certainly think they have to be in ‘strong’ recovery and by that I mean being able to deal with the emotions that EMDR raises. If you think about it they are full of swirling intense emotions so dealing with them is tough when they’ve been so used to burying them. The therapist needs to be trustworthy and that was one thing my D said. She never trusted other therapists before because she felt it was about them. She meant the technique some use to try form a relationship (by discussing themselves and why they are the person to understand). 

This particular therapist explains the process quite logically and does not ‘waste time’ talking about herself. My D really respects that. It’s Ds time to get out of it what she wants and since the opening of Pandora’s Box of emotions early on she always comes away a lot more positive than when she went in. 

I have produced a timeline of our journey as I recall. I’ve tried to keep it brief so you can understand what strong recovery looks like for us. Any questions let me know. Presently she has 100% attendance at college. Got 3 x As on A level mocks so is hoping for good grades to move to university. She has a lovely supportive boyfriend and lots of hobbies. She’s 18 but has not used this as a way of saying ‘bye mum and dad I’m off to do what I want.’ She has passed her driving test and become a lot more independent than she ever was. She socialises (was never in to that) and went out clubbing with her best friend a couple of months ago. She goes on dates with the boyfriend....to restaurants! Pizza Hut was the last one....stuffed crust pizza was apparently the best 😂


SUMMARY:

So my AD D was diagnosed in Feb 18 (16years) although we saw issues in the Nov 17 (15years) and took her to docs who said all fine. We were monitored but ended up in A&E in Feb 18 due to suicide ideation (we fortunately stopped her plan in action) and the Anorexia diagnosis came quite quickly by CAMHS.

Refed immediately and by May 18 was at a healthy weight (53 to 68kg from memory) We did LSUYE and it worked for us as a general and suicidal safety plan.

 

CAMHS  pulled out from fully supporting us in August 18. By this time we had accessed the dietician and CBT therapist. She was also diagnosed with perfectionism. She was also put forward for ASD tests and they came back initially inconclusive (2019) but then finally agreed with the perfectionism diagnosis from CAMHS professional.

 

Whilst coming to a close with CAMHS (Aug 18) my D was given some control over her breakfast, snacks and lunch as she was desperate to go to college in the Sept 18 and had already missed lots of school since January 18. I did and still do serve evening meal. There was conflict over this in our house but that’s what we did. I was a lonely voice.

We had ups and downs but her motivation was  to get life back and do well at college to go to university which I wanted to support and encourage her to believe she could and would succeed.

 

In Sept 19 she approached us saying she needed more professional help as she was struggling with mood and getting through the day. She was eating mostly ‘safe foods’ again at this point, slowly restricting when out of the house on a bit of a loop with us attempting to encourage the right decisions. The exercise compulsion was creeping in again.

 

We were accepted by the current clinical Pschologist in Dec 19. She assessed her for EMDR and agreed to try with D. The first couple of sessions were ‘laying the groundwork’ and took her mood right back to the worst times but she stuck with it to her credit as she reminded herself that 100% recovery was possible. When she had 2 or 3 EMDR sessions she started eating normally and since then has been trying lots of variety of foods. She always eats without us having to prompt. Sometimes she will tell us it’s tea time or that’s she’s hungry and wants it now.

 

She is currently still working with the therapist to resolve a period of anxiety/low mood she recently had and she has altered her contraceptive pill, which we feel may have previously been an issue. We definitely saw big changes when she initially started the old pill she was on....mood improved when she  came off it...went back on the same pill...huge dip in mood. Currently mood is good on this new pill.

 

She openly discusses her anxieties and fears. She is learning to cook and bake for herself to prepare her for university. Yes she does eat what she bakes 😊 I am just hopeful it will continue.

She is very interested in biology and wants to be a Clinical Pschologist herself. She has the typical ED sufferer traits of high achiever, perfectionism, caring, self deprecating etc etc. She’s such a wonderfully funny, warm and caring individual with a strong determination and I think throughout this Illness she is finding her own independent voice. She’s a very smart girl....so smart I don’t know where she gets it from as no one in our family that I know of had brains like this 😂

 

She seems to understand her issues and what the right decision is I think. When an old behaviour presents itself it makes her feel upset. She reports being able to resist the feeling of compulsion to exercise and to her not eating is not an option. She states she is not ‘fearful’ of fats now.  It’s about trying to eradicate every behaviour. We will get there....it’s a marathon not a race and I was always good at long distance running 😬😘

 

 

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CED123
Thanks Teecee.
Currently no light; only tunnel 🙁
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CED123
Teecee - I had a random idea for you.  Do you think your practitioner might do a webinar on EMDR for anorexia? It would be interesting to see what they say about it as I haven't found a lot of info on the web (but maybe I haven't looked hard enough as I haven't spent a lot of time on it).
Currently no light; only tunnel 🙁
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teecee

Hi CED123
To be honest I dont know. I think my D is the first time she’s used it for Anorexia. She has used it regularly for PTSD before though.

I will email Zoe Lodrick who is in the south of a England and a highly respected professional re sexualised trauma and safeguarding issues. She lectures to key workers in the safeguarding arena. It was her who suggested EMDR to me as she uses it for ED sufferers in her practice. 

Best wishes

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CED123
Thanks Teecee - I'm guessing it would be interesting to a number of people here.
Currently no light; only tunnel 🙁
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CED123
And much more interesting than the legally-based covid employment webinar I had to listen to this morning for work!
Currently no light; only tunnel 🙁
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teecee
I’ve sent her an email so fingers crossed I hear back. 
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teecee

Just an update for those interested in this thread. 

My D is now having monthly appointments, having previously had weekly and fortnightly appointments.

She’s eating normally now. She identified herself a couple of weeks ago that she was in a cycle (even though initially convinced she wasn’t) and is now working to eradicate that. The cycle was eating well but compensating still for introducing new foods, which is still restrictive behaviour. She is challenging that and putting weight on but letting go of the fear of that too.  As a result she has announced positively that she loves her tummy not having abs, she likes having bigger comfy knickers and has more energy without experiencing the slump. We have a happy household which has lasted quite a long time. This is the longest period I can remember of happy, relaxing family!! Long may it continue!

Unfortunately I received an email from Zoe Lodrick declining the invite as she was taking a well earned rest. I did try. 

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Foodsupport_AUS
So wonderful to hear how well your D is doing at the moment. 

Thank you for asking Zoe Lodrick regarding EMDR. I hope that perhaps it may come up at the FEAST of Knowledge Conference next month. 
D diagnosed restrictive AN June 2010 age 13. Initially weight restored 2012. Relapse and continuously edging towards recovery. Treatment: multiple hospitalisations and individual and family therapy.
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teecee
I would be interested to hear about it at the conference. Very interesting. Thank you Foodsupport 😊
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