F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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Faddywrite
Hi,
I haven't posted for a while as things are beginning to improve. My daughter finally got access to the Camhs eating disorder team and a lovely psychologist has been seeing her fortnightly to do CBT type therapy. Her weight is up to 47.9 kg and although she still needs to gain more she is out of danger. However, we still have some way to go regarding fear foods and rigid thinking.

On Monday we were told that next session is our last with Camhs ed team as my d is progressing slowly and managing to be more flexible with food. However, as the ed has improved awful anxiety with racing thoughts that are related to socialising, being kind and whether she is a nice person have really taken over. The racing thoughts were so bad she couldn't do her year ten mock exams properly and her grader dropped from 7s to 3s and even lower.

Every day she comes home and wants to talk about stuff she has done and whether these things were kind, plus she keeps going back to things she did as a younger child and worrying that they made her a bad person. The psychologist from the ed team realised the anxiety about these things is part of a generalised anxiety and autistic black and white thinking, which probably also caused the ed to be triggered. So she has tried for a few weeks to treat the anxiety at the root of everything but no joy. So now we have been referred back to the external consortium of providers for some anxiety counselling.

Only thing is this is where we went before the ed team and they gave us the worst counsellor possible, who told my daughter she was doing well to eat healthy food and do exercise a lot (this was when she weighed a lot less and the ed was worse.) So I cried for a whole day after she told us Camhs were discharging us, but the psych has said if they next counsellor is inappropriate to get back to her. I know she is sending us to external counsellors because the wait for a Camhs psychologist is very long, months and months. Just feel so scared as my daughter really has opened up to our current psych and it has taken a while to reach this point.
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Foodsupport_AUS
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Every day she comes home and wants to talk about stuff she has done and whether these things were kind, plus she keeps going back to things she did as a younger child and worrying that they made her a bad person. 


One of the things that my D's psych taught me was how to respond to these concerns without reinforcing the anxiety. Our temptation is to get let them not be anxious and to reassure whereas the evidence suggests that we need to learn to tolerate their distress and help to train them to resolve their issues themselves. To help them see their own anxiety for what it is. 
D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
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sk8r31
Foodsupport_AUS has given you some good advice and mentioned distress tolerance.  Here is a handout on practicing/developing those skills.  Distress tolerance is so very useful for both ourselves and our kids.

Wishing you all the best.
It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
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melstevUK
Hi Faddywrite, 
Is your d on any kind of medication? The kind of anxieties she is experiencing may respond to treatment with a SSRI such as fluoxetine. 
Just a thought and may be worth making enquiries about if she hasn't been offered meds already .
Believe you can and you're halfway there.
Theodore Roosevelt.
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Faddywrite
Hi there, yes a while ago th psychologist at Camhs suggested possible medication if the anxiety didn't approve. problem is she is now discharging her and I think the new help we are being referred for is a counsellor so I doubt they could prescribe. If it doesn't improve I may have to see the GP.
Thanks for your support.

Anna
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melstevUK
Hi Faddywrite,

I don't know how old your d is but GPs cannot prescribe SSRI type medication before the age of 16, is my understanding.  It may also be appropriate for her to have something like Olanzapine which is used with RAN in the UK.
I would ask for an appointment with your d's psychiatrist before she is discharged - I also see no reason why your d cannot continue seeing her current psychologist, without needing to see the ed team generally.  If this psychologist is a good fit - I would be pressing hard for the relationship to continue, and you could make this request at the same time.  

I am not sure that I 'buy into' the idea of the anxiety triggering the ed - at some point along the way she lost weight and that will have triggered it.  Why and when she started restricting could be significant, but the brain changes after weight loss/restriction will have increased the black and white thinking and anxiety.  She is no doubt benefiting from the talking therapy but ultimately weight gain will still play a part.  
Don't be afraid to push for what you want and feel you need - an appointment once a fortnight is hardly an intense use of resources.
Believe you can and you're halfway there.
Theodore Roosevelt.
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Ronson
Hi - my d was prescribed fluoxetine at 14 - which I understand is an SSRI - it has helped her a lot 
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Ellesmum
My GP told us he couldn’t prescribe to under 18 and when he needed to issue a prescription because the psychiatrist was away it involved letters of permission. Our therapist can’t prescribe it has to be the psychiatrist although they can hand that over to a doctor so I’d check if you can stay under the psychiatrist at least. We only see him occasionally for further prescriptions and a check in. He doesn’t really talk much to d. 
Ellesmum
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Ronson
Yes it is our psychiatrist at camhs who prescribed it. 
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