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ValentinaGermania Show full post »
Kali

Hi Tina72,

I had asked several times about what could be done for a younger patient with Anorexia in regards to bone loss. I asked both my endocrinologist and my daughters ED doc. 

The answers I got from both specialists was that weight gain and a diet with plenty of calcium and vitamin D were the best way forward, and that there were not specific drugs which had been studied and tested for young women with anorexia and bone loss. I don't know if it is different in Germany.

Anyway here is a link to the US osteoporosis site. There are some recipes which have been specially developed for bone health by chefs, although they seem a little cumbersome to prepare. But see what you think.

https://www.nof.org/preventing-fractures/nutrition-for-bone-health/recipes/

and here is a link to the site if you want to take a look around the site and see if there are any good recommendations or information you can use.

https://www.nof.org/

warmly,

Kali

 

Food=Love
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atdt31_US
Also, the hair loss is something to be sure your doctors know about and can factor in ... possibly the bone and hair together lead them somewhere neither, alone, would.  
Mom of either pre-diagnosis or non-ed underweight 12 yoa (as of March 2018) kid here to learn how to achieve weight gain.  BMI steadily in the mid 12's for nearly her entire life.  Born 2006. UPDATE:  April 2018 diagnosed ARFID, based solely on weight being less than 75% of Ideal Body Weight.  Mildly picky, but mostly the problem is a volume/early satiety issue, along with abdominal discomfort and chronic constipation, all present since birth.  UPDATE:  July 2019 diagnosed with PANS. Dr. said likely started first PANS episode at less than 1 or 2 years of age.  On long-term daily prophylactic antibiotics. BMI now about 16 after period of intense refeeding prior to PANS dx,  followed by stagnation as we sort out what is next. FWIW ED-D is a fraternal twin and we have no other kids.
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ValentinaGermania
atdt31_US wrote:
Also, the hair loss is something to be sure your doctors know about and can factor in...


I wish they would do. They literally know NOTHING about EDs here. They treated them as a family problem caused by the parents for decades and do not know anything about the metabolism part of it and about deficiencies and consequences of malnutrition. Our GP tries to learn and I hope he will find some information in his research.
Two years ago when the hair loss started the first time they only said that this is common for ED and that she can lose her hair totally. Was great to frighten my d about the consequences of ED but did not help at all with stopping it. When we got her blood levels into a normal range it stopped.
Keep feeding. There is light at the end of the tunnel.
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ValentinaGermania
Kali wrote:

Hi Tina72,

I had asked several times about what could be done for a younger patient with Anorexia in regards to bone loss. I asked both my endocrinologist and my daughters ED doc. 

The answers I got from both specialists was that weight gain and a diet with plenty of calcium and vitamin D were the best way forward, and that there were not specific drugs which had been studied and tested for young women with anorexia and bone loss. I don't know if it is different in Germany.

Anyway here is a link to the US osteoporosis site. There are some recipes which have been specially developed for bone health by chefs, although they seem a little cumbersome to prepare. But see what you think.

https://www.nof.org/preventing-fractures/nutrition-for-bone-health/recipes/

and here is a link to the site if you want to take a look around the site and see if there are any good recommendations or information you can use.

https://www.nof.org/

warmly,

Kali

 



Thanks a lot, Kali, I will have a look at it. There is not much information about pre-menopausal osteoporosis here.
Keep feeding. There is light at the end of the tunnel.
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Kali

Hi Tina72,
Here is an article about bone loss as a result of anorexia if you want to take a look:

https://www.mdedge.com/ccjm/article/95417/adolescent-medicine/premenopausal-osteoporosis-overlooked-consequence-anorexia

warmly,

Kali

Food=Love
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Tali97
We saw an endocrinologist to help reverse osteoporosis in my son. He slipped from osteopenia to osteoporosis after he achieved the target weight. The things that helped turn things around were adding a magnesium supplement and changing his calcium supplement to calcium citrate. He also supplements with vit. D and does weight-bearing exercise(walking). He does not consume dairy but does consume other foods that contain calcium.
18 year old boy (Gluten Free/Dairy Free 2005)
 IP - March/April 2014.  ARFID.
 2015 - Gastroparisis
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ValentinaGermania
Thanks Tali97. I will look for that also. Just so hard to find experts here and to get an appointment then. I phoned one today and the lady said I can have an appointment in February 2020...😡
Keep feeding. There is light at the end of the tunnel.
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Mamaroo
Hi Tina

Sorry you have to wait until next year for an appointment. Can you phone back and ask her to put you on a list in case there is a cancellation? I hope you can find someone else in the mean time. Sending you lots of hugs 🤗🤗🤗🤗🤗
D became obsessed with exercise at age 9 and started eating 'healthy' at age 9.5. Restricting couple of months later. IP for 2 weeks at age 10. Slowly refed for months on Ensures alone, followed by swap over with food at a snails pace. WR after a year at age 11 in March 2017. View my recipes on my YouTube channel: https://www.youtube.com/channel/UCKLW6A6sDO3ZDq8npNm8_ww
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ValentinaGermania
I will aks the GP to phone there himself. That helps here quite often in German system...🙂
Keep feeding. There is light at the end of the tunnel.
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