F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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yourmomismad

Hi folks, 

I have been finding this forum so incredibly helpful, but not able to spend much needed time here.

My daughter, 16 was literally supposed to start ED program with kaiser the week Covid-19 closed our county. It was in this first week of the program where we were supposed to be given instructions for the structures that we were supposed to strictly follow. That never came. We’ve both been giving our effort, and daughter was showing improvement but now regressing.

 She receives an in person weight check once every two weeks, and a phone therapy call. The therapy was not successful, and I disagreed with therapists approach. I have asked for her to be reassigned. A difficult call because I understand that most therapists In this stage, is the enemy. There was no repore between therapist and daughter, so they were literally working against each other. And by phone, daughter had new option of walking out. Therapist attempted to “turn up the heat” but without being in a program where she is learning anything about this, or given skills to cope - I feel like this is a big mistake. But I also don’t want to give ED space to thrive. I feel so conflicted! 

Meals had been going well until about a week ago. She came to dinner and I could literally watch her go pale, watch the stress of coming to the table consume her. But she came and she tried. She is complaining of nausea that comes on at dinner time, and it forces her to vomit later in the evening. She promises it not intentional, but I know what your thinking. I’m thinking it’s being used to make purging acceptable, or it’s legitimate and some subconscious side affect of the fear of eating. Her doctor is going to prescribe an anti-nausea med and I hope that will help. Anyone have any experience with this? 

thank you, 

corinne

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Lovemygirl

Hi there.   I’m sure many more eloquent caregivers will jump in with advice at some stage , but some of your story is resonating with me.  Therapy in our particular situation is really hard also.  We have A LOT  of resistance to therapy and just generally talking about the past, only wanting to move forward and not dwell on it.  My d’s words.... To be honest, I would say that time is of the essence right now, and I would do everything in my power to get her into some sort of programme , either partial or residential.  Maybe the original therapist can offer suggestions.  Where do you go to get weighed ? I would ask that they support you by having weekly weights.  And possibly they have suggestions.  

I do know from some of my own recent searching that programmers are open and taking patients.   I know the UC San Diego has a long stay program running right now.   They have closed their week long programme unfortunately.  


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Torie
Mamabear's d developed involuntary vomiting during refeeding.  What she and her h did was to feed tiny amounts continuously throughout the day and evening.  A few bites every 5 minutes, if memory serves.  If she doesn't pop in to clarify, you could email her if interested. xx

-Torie
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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Scaredmom2019
Hi we also had that. I decided to really pay it no attention. Saying it will pass etc... and after about a month it did pass and now is really rare. Of course inside I was panicked but I didn't let that show (as best I could). We did a couple anti nausea meds from doctor and they didn't really help us but would be worth a try. It was just time.... my D got so into her head that she would just vomit without any restraint. Time, time and indifference was what helped us. For a period of time we also tried less meals and more snacks. We also stuck with things that she could handle better.... smoothies, ensure etc.
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Foodsupport_AUS
There has definitely been a significant number of kids where parents have reported nausea and vomiting post meals. This is the strategy that seems to help quite a few. https://www.aroundthedinnertable.org/post/involuntary-regurgitation-breathing-exercises-7297270

Ironically I have come across the same technique used elsewhere as a calming exercise - that is, it can be used in general for things like hyperventilation, self calming. 
It helped my D last month when she had a gastric upset and became very distressed with cramps. 

I hope you can find someone who helps your daughter feel supported and deal better with her anxiety. 
D diagnosed restrictive AN June 2010 age 13. Initially weight restored 2012. Relapse and continuously edging towards recovery. Treatment: multiple hospitalisations and individual and family therapy.
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yourmomismad
Hi,

I can't thank you all enough for your helpful replies. I had no idea that this could be a side-effect. Instead, I was thinking that this was a scenario that ED was manifesting. I wasn't able to obtain any anti-nausea medicine over the weekend, as her doctor had wanted to try. And, I think I may have made a mistake in a desperate attempt to make sure her meals yesterday successful. A friend of mine suggested marijuana to help with the nausea, she used it during chemo-therapy and had fewer side-effects and was more effective than anti-nausea meds. So, yesterday we tried edibles, with minimal THC. I can't tell if it helped or if we just had a better meal day yesterday. I'm now worried that introducing this could have been a mistake. I would never otherwise support marijuana, and I should have waiting and consulted with her doctor.  So, feeling ashamed of myself today for responding so reactively. Research online suggested marijuana is helpful for treating disorders. Would love to hear what the opinions and experiences are with this? 

Thanks everyone,

Corinne
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Scaredmom2019
@yourmomismad

This is a vile illness and I think if you find something that works - go for it. My thought is ED is more life threatening than Marijuana. If it was legal here and it helped, I would try it. 

Maybe you use it temporarily through the rough patch. Whatever. Don't feel bad. You're trying to save your daughters life. 
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Torie
Marijuana has come a long way since my college days in the 70s.  My understanding is that (at least some?) medical marijuana has very little THC and is not psycho-active - use of that would be a personal decision that I for one would consider if I couldn't find another suitable treatment.

In case I am not the last to know (i.e., if others are also playing catch up in their information), psycho-active marijuana is incredibly stronger than in the olden days - several hundred times the THC content, I think.  So that is a whole different ballgame. xx

-Torie
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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Enn

I would suggest speaking with doctor knowledgeable about cannabis.
There are different products and some can be useful in kids. And some products can  induce psychosis kids. Their brains are not able to process the stuff.  


I personally believe it can be a medicine for many people. Ensuring it is the correct product for the correct reason and  the correct dose for the correct candidate. 
https://www.webmd.com/pain-management/cbd-thc-difference

When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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Enn

more info if required.

https://www.solcbd.com/blogs/news/cbd-edibles-vs-marijuana-edibles

 

When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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