F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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Kourouni

Hi All, 

Thank you to all the parents that share their journey with our kids and family.  My D is 8yrs and has ARFID, ADHD and anxiety.  We are just beginning this journey and I am so scared but hopeful that we caught this early and are seeking treatment.  

My D will spontaneously vomit on an empty stomach because she gets nervous to eat because she is afraid of choking or vomiting.  After she vomits, she feels better but is still very, very cautious about eating and will eat micro bites.  She has fell off her growth curves and is underweight.  She also speaks about wanting to stay thin and doesn't want to be fat.  She obsesses about food but never wants to eat.  After going through a few eating disorder clinics, we finally found a great program at Children's Hospital of Philadelphia.  We now are considering medication.  We were doing great for a few weeks and now are back to ground "0".  

Does anyone have experience with Zyprexa?  Any experience and insights would be great as we consider this to help with her obsession and anxiety.  
thanks - laurie 

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Enn
Welcome to the forum and so sorry you had to find your way here. 
There are a few with children who have ARFID and I know they will be here soon to welcome you as well.
Please take some time to read the forum as you may find some useful information.  You may find some good information from the FEAST main site too. 
https://www.feast-ed.org
https://www.feast-ed.org/family-guide-series/



https://www.aroundthedinnertable.org/post/anorexia-vs-arfid-two-disorders-two-different-treatments-8449992?highlight=arfid&pid=1306313758
https://www.aroundthedinnertable.org/post/arfid-maybe-9700338?highlight=arfid&pid=1303850401

Zyprexa is also called Olanzapine: and some have found it useful for anxiety.
https://www.aroundthedinnertable.org/post/olanzapine-10146257?highlight=olanzapine&pid=1308697760
https://www.aroundthedinnertable.org/post/olanzapine-any-experience-6910668?highlight=olanzapine&pid=1282896680
https://www.aroundthedinnertable.org/post/coming-off-zyprexaolanzapine-9668224?highlight=olanzapine&pid=1303478200

Please ask all the questions you have. We all wish to help. 
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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sk8r31
Sending warm support to you.  CHOP is a great facility; Dr. Rebecka Peebles is a F.E.A.S.T. Advisor there.  You may also find it helpful to read some of the Kartini Clinic's blogs posts/info on ARFID or use of Zyprexa.  
Our d found zyprexa to be helpful with anxiety around eating, when we were first doing refeeding in earnest.  I'm sure others will be along soon with their thoughts as well.
It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
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Elibean1
Hi and welcome, I’m afraid I have no experience of meds bug I do have a 12 year old with ARFID.  Hers was fairly mild, but age 10 she had an disorder of restricting that started to have AN body image type features.  We got her through that quite quickly but changing schools at 11.5 triggered it again - then Ed got an official diagnosis of ARFID.

shes had treatment with family-supported CBT and, at home, our own version of FBT which we continue now and will for a long time...she’s a higher weight than she’s ever been (growth curve ++) and is about to start therapy for the body image part. 

Her main ARFID symptom was nausea and a fear of vomiting, but she never did. Sending luck and stamina to you - 8 is so young, bless her. I really hope you find the support you need.
Elibean
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Elibean1
Goodness! Many typos in that 😳 hope you can make sense of it! 
Elibean
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Kourouni
Thanks all for your response.  CHOP has been a blessing as I have felt so lost and helpless without a trained MD knowing how to help.  The more I read and hear from all of you, I think medication is needed.  I have our weekly appointment on Tuesday with a team and will discuss further.  I see these drugs cause glucose dysregulation and this is mechanism of how a person gains weight.  For parents with kids on Zyprexa, do you see any difference academically (+/-)?

Thanks again for your quick support - I am feeling really hopeless and scared.  😥
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Enn
My d tried Olanzapine only for a few days to try to decrease the anxiety. It usually is quite sedating and effects are known to be seen even after the first dose. Unfortunately, my d did not have the effect or any for that matter. After one-2 weeks and even at a higher dose, the anxiety was still quite present and it did not help her sleep. So we stopped it. She is currently on Sertraline/Zoloft and I do think it helps a bit with her anxiety.
I am aware that there is weight gain in some individuals (antipsychotics do that). Interesting question though for the group, I cannot recall right now if anyone said that their child gained weight on it. Although that would be difficult to assess as the children are being fed to gain weight so one would not be able to separate the two.
When we considered meds, I was desperate for anything to see if it would help. It was d who said no for one whole month ( a very long month at that) Then she tried and then switched as I mentioned above. You may always give it trial and then see after a period of a few weeks and then if it does not help, there is no harm to stop and consider something else. What does you team say about the meds? As they are experts, I think they also would help you make the best decision.

I understand how scared you would be. It seems that you have a great team on the ground to help you and CHOP is well respected. We have all been scared (hence my pseudonym 😉) 
It is so frightening and it does get better. Take care of yourself too- and not extravagant things. Maybe a hot tea, a talk on the phone with a friend. Meet a friend for some girl time. Go shopping or just look at the stores.. There is a lovely thread call "Self care Ideas". Try to do non ED things to keep you grounded. I wish I had, but I understand how dealing with ED is so taxing and there can be no time to schedule "me time" I could not until about one year into a good routine.

You are at the beginning of this journey. You have a great team and you have US! We are here to support you. Come here anytime you feel you need a hug, or shoulder to cry on, you want to throw a hissy fit. We really do get! OH BOY DO WE GET IT!!
Sending a hug.
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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