F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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• Road To Recovery - Stories of Hope
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AUSSIEedfamily
Dear ATDT,

I would like your ideas on what topics to have on the conference program for the event happening in March.

What would carers wish to hear from Cindy?

What would carers wish to hear from other speakers?

What would you like to hear from Belinda Caldwell the F.E.A.S.T Financial Chair?

Hope you can give me some ideas.
ED Dad
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AUSSIEedfamily
Dear ATDT,

Ok need to make some corrections & add a bit of clarity.

Belinda's role is F.E.A.S.T Finance Director. Also she is also she is known on here as  Goingtobeatthis_AUS. For the moderators & others I have written permission from Belinda to reveal her ATDT name.

Reason for this post is to try & get ideas from anyone & everyone as I have been given the job of coming up with ideas on what parents/carers would want on the programme. I am open to suggestions from everyone & anyone on ATDT regardless of where in the world you live. Image you had the opportunity to attend this conference what would you want/need (A) From Cindy, (B) from any other presenters & (C) to hear from Belinda???
ED Dad
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evamusby_UK
Suggest:
1. Effect of ED on siblings during the illness, and how to best support siblings
2. I always think that a proportion of people who come to conferences may be desperate for practical tips to get their child to eat
3. I also think a proportion may be terribly isolated, so I once proposed an introduction/linking-up system and the feedback at the end of the day was it was a great idea. This is how it worked:

At the intro of the conference, I told the audience to draw a question mark on their name badge if they would like someone more experienced to possibly link up with, e.g. with phone calls or emails, for however long it suits both parties. I told people to draw a heart on their name badge to signal they were open to offering someone support of some kind. Then at break times, as people chat, they could decide if they like each other and exchange contact details. Many people drew both a question mark and a heart on their badge, which makes sense. When I asked for feedback at the end of the day, out of 50 people or so, 2 people said they'd teamed up, which means 1 person who might have gone home feeling isolated and helpless got the promise of some kind of support. 

Good on you to organise this event!
Eva Musby, mother, author, produces lots of resources for parents at https://anorexiafamily.com and on YouTube https://www.youtube.com/user/EvaMusby/playlists
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WeNWinning
I'm not there and I am a parent of an adult who had long term AN - which does have long term effects on neurobiology and cognitive/emotional flexibility.

I don't know who your audience will be but I think it would be something to ask Dr Bulik about the new understanding and research on best practices with young adults/adults with long term illness.  I think the current study at UCSD and other places sounds promising as it addresses the neurobiology, entrenchment, and traits that affect those who have patterns that can cause relapse without proper support from others.

I often quote Dr Bulik's blog on negative energy balance and how easy it is for those with AN to slip when under too much stress, fatigue, etc.
Dr Steinglass's study addresses the automatic behaviors.

It sounds like the UCSD study addresses how to uses their neurobiology with more effective strategies to help those gain strong recovery.


WenWinning (formerly wenlow) - a Mom who has learned patience, determination, empathy, and inner strength to help her young adult daughter gain full remission after over a decade of illness and clinician set inaccurate weights
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hopealways24
I like evamusby's idea of helping new carers connect with carers that have been doing it for a while. I think that offering sessions, to be run at the same time, that offer practical information on how to support younger sufferers and adults so people can choose which session is of more interest to their situation. IHaving a representative from each care centre WA give a brief description of what their treatment programs looks like and what ages can attend would be very helpful to educate carers and sufferers on what help is available and to who. I think to hear Dr Bulik speak about entrenchment and the latest research from UCSD as WenWinning says woulld be increadably valuable
Hopealways24
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AUSSIEedfamily
Dear Eva, Wenwinning & hopealways,

Thanks heaps for the ideas. They are now collated with some ideas from two other carers on the event planning committee.

ED Dad
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