F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

Join these conversations already in progress:
• Road To Recovery - Stories of Hope
• Events for Parents and Caregivers Around the World
• Free F.E.A.S.T Conference Videos

Visit the F.E.A.S.T website for information and support.

If you need help using the forum please reach out to one of the moderators (listed below), or email us at bronwen@feast-ed.org.

justeat
Hi all, my 14yr old daughter was treated for a restrictive eating disorder 6 years ago, when she was 8yrs old, and gradually recovered over the next few years, to now being a tall, healthy teenager who eats well and is happy and thriving. However, during her treatment and recovery, she suffered from abdominal pain, bloating, gas and constipation,  and although the gas and bloating have gotten much better, the constipation is still a big problem for her. She has tried (and still takes) daily miralax, daily fibre supplements, probiotics, and also weekly senna with colace (just started this 2 weeks ago!) as well as prune juice, plenty of water, and adequate exercise. Does anyone here have any other suggestions? She is also anemic, so she takes a multivitamin with iron. We'd appreciate anyone's suggestions!
Quote
tina72
First congratulations for getting her there where she is now!

Questions: Does she have bowel movement regularly and is just constipated or was gastroparesis excluded?
Is she anemic by birth or is it a side effect of AN?
Has her blood been tested for magnesium and vitamin C? My d "loses" magnesium a lot without adding it daily. Magnesium and vitamin c help with bowel movement. If she has a deficiency that can be reason for constipation.

Suffering from pain, bloating and constipation is normal in refeeding and the next year but should stop at some time then. Did she already see a gastroenterologist?
Keep feeding. There is light at the end of the tunnel.
Quote
Foodsupport_AUS
It is possible that her bowel has been permanently damaged by the ED. Certainly my D has some ongoing issues 9 years in. Adequate fluids, and fibre seems to be essential. What has her medical team suggested?
As for her anemia a multivitamin with iron is unlikely to correct significant anaemia. Usually multivitamins have low amounts of iron in them, and higher doses are needed to fix true deficiency. Vitamin C improves absorption of of iron. Oral iron can cause problems with constipation. 
D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
Quote
debra18
I was also going to say that iron pills can cause severe stomach pains.
Quote
justeat
Thanks for the suggestions! The anemia is new in the past year, and our pediatrician did send a referral for her to see a GI doctor, but their waiting list is 3 months! I can ask for her to have her magnesium checked, though....I wouldn't have thought of that! I did make an appointment for November also. 
Quote
Mamaroo
Yes, proper iron supplements (those the pharmacist fetches behind the counter) are the only supplements which work, however it would increase constipation as well. I was anaemic with both my pregnancies and was advised to eat red meat every single day. Meat, not mince or sausages, so I got very good at slow cooking economical cuts 😉
D became obsessed with exercise at age 9 and started eating 'healthy' at age 9.5. Restricting couple of months later. IP for 2 weeks at age 10. Slowly refed for months on Ensures alone, followed by swap over with food at a snails pace. WR after a year at age 11 in March 2017. View my recipes on my YouTube channel: https://www.youtube.com/channel/UCKLW6A6sDO3ZDq8npNm8_ww
Quote
justeat
I will definetly try more red meat; she's not a huge fan, but she'll eat it if she knows she needs to.  I do suspect that her gut muscle tone is low, and I think the constipation is contributing to her anemia. 
Quote
atdt31_US
Has celiac been ruled out through biopsy?
Mom of either pre-diagnosis or non-ed underweight 12 yoa (as of March 2018) kid here to learn how to achieve weight gain.  BMI steadily in the mid 12's for nearly her entire life.  Born 2006. UPDATE:  April 2018 diagnosed ARFID, based solely on weight being less than 75% of Ideal Body Weight.  Mildly picky, but mostly the problem is a volume/early satiety issue, along with abdominal discomfort and chronic constipation, all present since birth. FWIW ED-D is a fraternal twin and we have no other kids.
Quote
atdt31_US
Just read you are waiting for GI so I assume no celiac testing yet. Can primary do blood test for celiac?  If positive, good info. If negative, not trustworthy on blood. Important:  Do not limit gluten pending GI appt as can skew results.  Anemia can be sign of celiac, as can the other issues described. If blood titers elevated suggesting celiac maybe they can expedite gi appt. 
Mom of either pre-diagnosis or non-ed underweight 12 yoa (as of March 2018) kid here to learn how to achieve weight gain.  BMI steadily in the mid 12's for nearly her entire life.  Born 2006. UPDATE:  April 2018 diagnosed ARFID, based solely on weight being less than 75% of Ideal Body Weight.  Mildly picky, but mostly the problem is a volume/early satiety issue, along with abdominal discomfort and chronic constipation, all present since birth. FWIW ED-D is a fraternal twin and we have no other kids.
Quote
justeat
No, celiac has not been ruled out.....wow, her refeeding consisted of a ton of bread, I really hope we didn't cause her harm! We managed to get a cancellation and will be seeing the gi doc today,  so hopefully we'll get some results.
Quote
deenl
Best of luck 
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
Quote
tina72
We got rid of the constipation with magnesium and vitamin C added to a normal level (which was not before due to malnutrition).
It is normal to have problems with bowel movement in the first year after refeeding. The intestine system is dead like after chemotherapy or antibiotics. Sometimes dried intestine bacteria help, too.
Keep feeding. There is light at the end of the tunnel.
Quote

        

WTadmin