F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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Frazzled
Hi everyone, It’s been awhile since I have posted. We started refeeding at home in late June with my 10 year old daughter (now 11). She has since gained 30 pounds and grew an inch and a half. She has started to develop over the last few months and is beginning the puberty process. Everything is going very well although we have a little bit to work on yet such as eating at restaurants etc. The concern I have is that although her weight is back on her growth curve and continuing to go up (not backing down on cals) her height is not back where it should be. She used to be the 25th percentile for height and is now the 6th. We are not a tall family and she was always a slow grower. In your experience, when do they catch up with height? I’m thinking puberty is taking a lot of energy right now and maybe she will catch up more later. Just wanted to see what others have experienced as far as height is concerned. She is getting between 3,500-4000 cals a day for 8 months now. 
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scaredmom
Hi Frazzled, 
She has gained!! Wonderful! It may take awhile ie a few months to start growing linearly. They grow out prior to growing up. It may happen in spurts or a little bit every few months. My D did both at different times.  A big spurt sometimes then flat then a tiny bit etc.. 
I think for my d, the height curve is flattening out a bit and she is 13 almost 14, with regular periods for 15 months. 
Has she grown in height at all since diagnosis?

You have done well! 
XXX
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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Foodsupport_AUS
It is really hard with the height changes around puberty. There are early growers and late growers, so kids can change their position on the height centile charts a lot around puberty. If she is going through pubertal development and her weight is continuing to rise I am sure she will get where she needs over time. You have done an amazing job. I know that mamabear's daughter ultimately doubled her weight from diagnosis to full growth. 
D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
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Frazzled
@scaredmom...yes, she has grown around an inch and a half since starting at the end of June 😊

@foodsupport_AUS thanks for the encouraging words. Yes, she is still gaining about a pound a week and going through puberty. Just have to hang in there I guess. I’m not worried about her height but she is. At her well visit last month I had phoned the doctor to add a note to the chart to weigh backwards and to not verbalize and also not to mention weight in the appt so the doctor decided to focus on height instead. Saying that she is short for her age etc so after that appt she has been upset about her height. Doctors sure mess a lot up when it comes to ED’s! He obviously did not read anything that I sent him or the literature I gave him or he would know that her height was stunted by AN. Seems like common sense.  So frustrating! 
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tina72
She will catch up with heigh when her body is nurished and the time is to come. Try to be a bit patient. My d did not grow any more for 4 years before AN moved in and after starting refeeding in 2017 she grew another 1,5 cm in 2018 at age 18.
Keep feeding. There is light at the end of the tunnel.
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mamabear
My d was sick at ten. In the first 4 months gained 25 pounds.... turned 11 and then growth and puberty hit. She grew nearly 9 inches in the next 2 years and full puberty. Took 6000 a day. Sometimes a bit more. 2.5 years of high high calories. Initial diagnosis weight was 68 pounds. She is now 18, About 5 feet 3.5 inches, and 145 pounds. 

Those years pf just trying to keep up with growth and puberty were very hard. Her body was a machine! Just keep doing what your doing. Don’t back off EVER. And tackle EVERY behavior. You’re doing so awesome! 

Keep hope alive! I’m viditj g my d at college 8 hours from home. She’s living an ED free life! Last night she asked me to go get ice cream in a blizzard. We did. Always will ❤️
Persistent, consistent vigilance!
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deenl
Hi Frazzled,

My son got sick at 12. He is now 16 and is doing well; happy and healthy. But he has never been truely weight restored - every time he got within a couple of kilos of being so he grew again! He started growing about 6 months after we got regular food consumption going. And it has continued pretty much non stop since. He has grown 24cm, 9.5 inches and is at the lower end of his historical height range. I'm pushing more food again to try to get him to the higher end of his historical height range and to get him finally Ã°Å¸Ëœâ€¢ to a height I'm happy with.

Here is a snippet from an informative blog post by the Kartini Clinic. The full post is here.
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A. Those who have not yet begun puberty.
...
Group A will have the most uncompleted growth potential. Their "goal weight" is a moving target. First return them to the highest weight they have ever experienced. Then go up. You will be looking for normalization of heart rate, blood pressure, temperature, and soon, resumption of height growth. 


Keep going! She will get where she needs to be.

Warm wishes,

D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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Frazzled
Thank you girls for sharing your stories and advice! Going to keep pushing more food for this marathon 😊
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Mamaroo
It could be that her organs are still recovering and that her reproductive organs are now demanding more nutrients. My d just shot up the last couple of weeks, could be that she was sleeping more during the holidays as well. Don't worry, one day you'll wake up and notice she is a lot taller. 
D became obsessed with exercise at age 9 and started eating 'healthy' at age 9.5. Restricting couple of months later. IP for 2 weeks at age 10. Slowly refed for months on Ensures alone, followed by swap over with food at a snails pace. WR after a year at age 11 in March 2017. View my recipes on my YouTube channel: https://www.youtube.com/channel/UCKLW6A6sDO3ZDq8npNm8_ww
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kkhrd
My D was seen by many endocrinologists for short stature before we realized the problem was RAN.  She is now WR back to her historic growth curve and has grown 3 inches in the past year.  I should mention that she is also 16 and has never gotten her period.  Anorexia delays everything and until they are WR to the historic growth curve, you may not see as much vertical height.  I would have never thought that at 16 my daughter could still grow in height, but every time we go back to the doctor she does.  Now we just need to see the period happen!  Best of luck!
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