F.E.A.S.T's Around The Dinner Table forum

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melstevUK Show full post »
mumto3
Praying for strength for you and strength for your daughter to accept the NG tube.
worried mom
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Blommie
Hi, how did today go? Sending love x
D officially diagnosed April 2014 at age 13 after being hospitalised on a medical ward due to severe restriction. Been refeeding at home, doing FBT through CAMHS. Living life moment by moment
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floating
Bloomie

Consultant was not in today..........not sure why but his understudy came and D said she will have NG in tomorrow....hopefully she keeps her word

Thanks Bloomie for your concern x




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Iaminspired
Butterfly

Wow, roadblock after roadblock for you.  I am really looking forward to reading a post from you with a list of things going they way they are supposed to and ending with your D in a bed in an ED unit in the UK.

Sending you strength and <<<<<hugs>>>>> and prayers that your D accepts the NG tomorrow.

Colleen
Colleen in Ontario

Single Mom to DD#1 (20), Autism Spectrum Disorder (diagnosed at 16 1/2), Generalized Anxiety Disorder, Social Anxiety, Panic Disorder
and DD#2 (17), In solid recovery from Restrictive AN, Managing Social Anxiety, Generalized Anxiety Disorder, Panic Disorder, ASD, finished with IP and FBT, successfully managing school and life

If, at the end of my days, I can say I saved the life of not only my child, but helped to save the life of someone else's child as well, then I have lived a good life.
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floating
Right, Ng Tube in..........thank God 


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AUSSIEedfamily
Great News,

Hope all goes well.

Have you worked through any plans for when your D returns home fro UK.

Now that you have the Irish ed team arranging for the transfer what do we need to do to help you get plans & systems in place for when the IP is completed & she comes home.

More campaigning for better services for out patient!!
ED Dad
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K63
Hi butterfly , fantastic news now she can start getting sufficient nutrition in to help her body & mind heal , hope that when she gets to unit in Uk they will start theraphy as well, my d is also just 18 was almost at as low a weight as your d is now , is almost weight restored but has a lot of anoxeric thoughts is eating with full supervision and from reading on this forum has a long journey in front of her , ed has stolen a year and a half of her life so far she should be sitting her leaving cert next week but due to being so unwell having missed 6 months of school won't be doing this. Well done the journey has begun. Hope you are doing ok , it's such a traumatic time for you
Daughter started restricting in February 2014, tried re feeding at home hospital admission 4 1/2 months weight restored started restricting post discharge, back on meal plan full supervision weight restored april 2016. Starting to hand back responsibility for meals it's scary. 
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sk8r31
REALLY glad to hear of the progress with the NG tube.  Hopefully, you'll be on the plane soon to the UK.
Sending warm support to you!
It is good to not only hope to be successful, but to expect it and accept it--Maya Angelou
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mumto3
Yeah for D!  Good job mum in being persistent!  
worried mom
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Iaminspired
Thank Goodness!  I breathed a sigh of relief when I read your post, Butterfly!  I know it is hard for your D to accept nutrition but I recall you saying before that just a few kg makes a difference to her mental state.

Sending prayers that you are on your way to the UK within days!

Colleen
Colleen in Ontario

Single Mom to DD#1 (20), Autism Spectrum Disorder (diagnosed at 16 1/2), Generalized Anxiety Disorder, Social Anxiety, Panic Disorder
and DD#2 (17), In solid recovery from Restrictive AN, Managing Social Anxiety, Generalized Anxiety Disorder, Panic Disorder, ASD, finished with IP and FBT, successfully managing school and life

If, at the end of my days, I can say I saved the life of not only my child, but helped to save the life of someone else's child as well, then I have lived a good life.
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Charbonie
So glad to hear this Butterfly. Step by step. Will keep checking back to see that message that says she is checked into Glasgow Priory. Stay strong......we are all thinking of you and praying for you and your d.

Best wishes,
Charbonie
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18 yr old d Dx Mar 25/14. WR June 2014. FBT/EFFT, Individual Therapy. In Phase III, eating intuitively, letting her plan ahead on her own re her nutritional needs for the day and how they fit into her schedule. Teaching her how to cook more for herself. Still watchful. Thankful every single day.

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Bottle
Hurrah! so glad the tube is in. thank goodness.
Now for the transfer! X
Bottle
D2 RAN as part of Pervasive Refusal Syndrome with a history of not walking for a year and being non verbal for a short while too. Considered to be Aspergers by everyone that has worked with her and by us but still awaiting a diagnosis that'll help us access support services she needs.
D1 recovered RAN and D3 doing pretty well considering the mayhem around here!
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melstevUK
Thank goodness the ng tube is in - your d has been at a critical point for a long time and it was absolutely crucial that someone took charge and made it happen.  Hopefully the staff are knowledgeable enough in terms of how much to feed her - it is really important they give her enough calories to start the weight gain process and not let her get any worse because they are too afraid of feeding her too much.  They need to start slowly but move things up as quickly as possible, to ensure she starts getting the right nutrition. Hopefully she will get a transfer to Glasgow soon.  Don't let the ng tube come out before they transfer her, no matter how hard she pleads.
Believe you can and you're halfway there.
Theodore Roosevelt.
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Charbonie
I am not a doctor, but I do know that most ED professionals recommend increasing by 300 cals or so every 2 days until they are up to the amount where they are gaining well. So, if they start her at 1100 today, it would be perfectly reasonable for them to be at 2000 by next Monday. She will likely need 3000-3500 or more to gain consistently.

I am sure you know this, but thought I would give you some affirmation.

Best wishes,
Charbonie
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18 yr old d Dx Mar 25/14. WR June 2014. FBT/EFFT, Individual Therapy. In Phase III, eating intuitively, letting her plan ahead on her own re her nutritional needs for the day and how they fit into her schedule. Teaching her how to cook more for herself. Still watchful. Thankful every single day.

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Torie
Oh yay, Butterfly!! So glad to hear the ng tube is in!!  That must be such a huge relief for you! I hope you will be able to rest better now.  

Butterfly 1
Ed 0

Woot woot!!

xx

-Torie
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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Blommie
Butterfly- how are you and how is your d?
Love xx
D officially diagnosed April 2014 at age 13 after being hospitalised on a medical ward due to severe restriction. Been refeeding at home, doing FBT through CAMHS. Living life moment by moment
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