F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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Torie
I think it might be useful to have a concise guide to supplemental drinks and commercial additives.  Unfortunately (well, super fortunately, actually), it has been so long since we have needed these that I don't have any information at hand.  I'm sure others could easily chime in with information about availability in various countries and particulars of nutritional content.  So if anyone else thinks this would be useful, please chime in.  Thanks. xx

-Torie
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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scaredmom
Yes this would be a great resource for everyone.
Thanks for bringing it up.
XXX
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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tina72
Benecalorie

https://www.nestlehealthscience.us/brands/benecalorie/benecalorie-hcp

Best stuff ever. No taste, can be added to warm or cold food. Changes texture a bit, so you need to try. Perfect with rice, soups, sauces.
330 calories with 44 ml
Perfect to add only to the sick kids portion.

Not available in Europe. But you can get it from US through internet.

Tina72

P.S. Thanks Torie for that thread, it is desperately needed. Great idea.
Keep feeding. There is light at the end of the tunnel.
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scaredmom

I cannot get benecalorie in Ontario, Canada. Some have had luck on Amazon. I even asked a pharmacy to buy it for me and they could not get from the supplier.  

We have Boost and Ensure here and Boost plus which is about 100 cal more than the regular Boost.
XXX

When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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HopeNZ
Great idea, Torie.

FORTISIP

Used in New Zealand. We got it on prescription from the local pharmacy. I'm not aware of it being available without prescription but perhaps others can chime in.

Available in liquid form - 200ml bottles, 300kcal per 200ml bottle. Chocolate, vanilla, banana and strawberry flavour.
Also in powder form - 350g tin. 437kcal per 100g (we used 12 small scoops in 180ml water as rough equivalent to the drinks, or added scoops to smoothies and desserts). Vanilla and chocolate flavour (I think).

As they have their own flavour we had most success using the drinks as they are, and the powder added to milk-based smoothies.

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Mamaroo
Thanks Torie

We used Ensure, both in Tetrapaks and the tin. They are available without prescription in Australia at a pharmacy or other medical supply stores (Surgical House in Perth for example and the prices are better than the pharmacies). The Tetrapaks are ready to drink and comes in 4 flavours (chocolate, vanilla, banana and fruit of the forest), the powder in the tin needs to be mixed with water (or full cream milk [wink]) and comes in 2 flavours: vanilla and chocolate.

https://nutrition.abbott/au/product/ensure-plus-tetra

https://nutrition.abbott/au/product/ensure-powder

http://surgicalhouse.com.au/products/search.php?surgical=true&query=ensure

CH2 Direct also stocks Ensures. I've never used them, but the hospital received their stock from them.

Ensure has other products as well, juice style drinks and pudding tubs.

D became obsessed with exercise at age 9 and started eating 'healthy' at age 9.5. Restricting couple of months later. IP for 2 weeks at age 10. Slowly refed for months on Ensures alone, followed by swap over with food at a snails pace. WR after a year at age 11 in March 2017. View my recipes on my YouTube channel: https://www.youtube.com/channel/UCKLW6A6sDO3ZDq8npNm8_ww
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bbs1968
Fortisip is available on prescription in Ireland. We were introduced to it in hospital and dd has been having one everyday between meals 200ml is 300 calories. They come in vanilla, strawberry and chocolate. We are reducing this week to just having at the weekend and replacing with a yoghurt during the week.

Scandishake, powder to be mixed with milk. Strawberry and chocolate flavour, 600 calories when made up. Again introduced as an inpatient and available on prescription. My dd didn't like these so we swapped for smoothies. 

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aw13
You can also put Complan in cakes for example individual cupcakes.  In the UK you can download recipes or ring them to get hold of recipe suggestions.  I think it is better to add it when food has cooled slightly. 
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deenl
Nutridrink is the supplement used in The Netherlands. Here is the website.

I used the compact form and the powder to add to foods and increase the nutritional footprint. I started with small amounts and gradually increased to prevent a sudden change in taste.

The insurance companies no longer cover the cost unless prescribed by a doctor and at times pharmacies/doctors and insurance companies claim they are not covered at all. Push back against this misinformation. If you kid is ill enough to be prescribed supplements then they are ill enough to be covered by insurance.

Warm wishes,

D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
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cm72
I just ordered some Benecalorie as it seems like we just can't get past the 2250 mark. For those who have used it, I have a question. A typical days menu looks like this for my D. Where would I add the Benecalorie?

Breakfast   Cereal with Milk
Snack   Nuts
Lunch  Sandwich and chips
Snack   Belvita cookies
Dinner   Varies but it can be pasta, another sandwich, crackers and cheese. This is the only meal she accepts juice.
Snack   Cereal with Milk
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scaredmom
cm72

I just bumped up an old thread that you may find useful on uses of bencalorie. 

What kind of juice are you giving her? Just a suggestion Grape juice has more calories than apple or orange etc.
It has 180 cal per 250 ml ve 110-120 for the other juices. I give my D about 470 ml of juice with meal. 

Add oils to pastas and sauces too. 
Benecalorie packs a great punch, so glad you have it 
XXX
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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cm72
We do grape juice. Thanks for the bump. I'll read it now.
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Frazzled
Cm72
I have added it to ice cream, milkshakes, oatmeal, sauces and yogurt. If I’m having a hard time with her
gaining in a particular week I then add two a day to
her shake also. If you haven’t done so already, here is the benecalorie website that tells you what it blends best with etc. Good luck!

https://www.nestlehealthscience.us/brands/benecalorie/benecalorie-hcp
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cm72
I really envy all of you that can get your kid to have a shake or smoothie. I would love that!
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Frazzled
Cm72
You can do it! I waited a good month and a half before I even attempted a shake because it was my D’s scariest fear food. I wore quite a few shakes before she was able to drink them without freaking out but now she reminds me when it’s time for her shake so she gets it on time. I wouldn’t have been able to get her this far without one. You can add sooo much fat and calories into one. I am up to 2,000 calories in one shake right now.
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Torie
What Frazzled said.  You can do it!

Quite a number of forum members have prioritized the shake and buckled down to do battle for that.  It is a battle well worth fighting.  xx

-Torie
"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
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tina72
cm72 wrote:
I really envy all of you that can get your kid to have a shake or smoothie. I would love that!


Benecalorie: I would add it to the warm meal because that worked best here. Add it to rice, white soup, all sauces. It did not work well with mashed potatoes, but that was the only thing it did not work with here (changed structure too much).

Can you tell us what do you think is the problem with shakes? She is drinking fruit juice. Why do you think she would not drink a fruit smoothie?
Have you tried it? And what was the problem then? Maybe we can help you with ideas to introduce it when we know what the problem is.
If it is only the name "smoothie" or the different drink, you could make a smoothie and add one tea spoon to her juice and the next day two tea spoons and so on until she is drinking in fact a smoothie and you call it still "juice". Something like that.

In my experience the fear food I was afraid of most was not the fear food AN was afraid of most. So sometimes I thought "uuhhh, that will get difficult" and in the end it was "nearly" no problem and sometimes I thought "this will get easy" and in the end it was a big problem. No rules to see with that.
Tina72
Keep feeding. There is light at the end of the tunnel.
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Chabi
Hello everyone,

Unfortunately my 14yo daughter has just been diagnosed with Anorexia. I am trying to read as much as I can to help us deal with our new reality. Overwhelming to say the least. Specially living in Russia where treatment is not individualized and is somewhat archaic plus finding English speaking doctors has been a headache! I have decided to take my girl to Danmark for a proper evaluation.

I have read so many posts already and this community is amazing and so full of incredible tips/info and support ❤
I hope that one day I will have something useful to contribute also from this journey.

Benecalorie sounds like a heaven sent product.  Unfortunately it's not available here nor Denmark. We might be able to get them in the UK though and will jump on a plane in a heartbeat if I find them there!

For those who have used it:
How many can one use in one day? Would it be ok to use one per meal while re-feeding? Is this too much? 

Any information you can share would be very helpful.

Thank you so much 😊
xxx
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tina72
Hi Chabi,
welcome from Germany although I am so sorry that you need to be here.
Benecalorie is not available anywere in Europe directly but you can get it per shipment from USA. In fact Nestle told me that there is no market for that in Europe - what a false interpretation of the situation here. Nestle is in Switzerland and we need to buy it in the US. Is that global market???
It is 24 containers in one paket and it is durable about 4-6 months.
You can use it with every meal if needed but it fits not well with every food. It is great in sauces and soups and yoghurt and porridge but for example does not work with mashed potatoes. It is white so nothing for fruit juice or fruity smoothies (there is canola oil /rapeseed oil very good). With milk it is better to add cream because Benecalorie will change the texture too much. You need to try. If you tell us what your d eats we can tell you what would work with it. We used it in addition to cream, oil and butter.
There is an australian FBT therapist (therefor english spoken) living in Aarhus/Denmark. https://www.talkingworks.dk/
I think she is also doing skype sessions so maybe that is a solution for you.
Keep feeding. There is light at the end of the tunnel.
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Chabi
Hi Tina72,

Thanks so much for your reply. It's very useful info about the food and Benecalorie. I suppose it will be trial and error in the beginning.
My daughter eats fish and chicken. She's ok with rice and porridge too. We still need to figure this out as we have just started. I have browsed all the recipes on the forum and will try some of them out. The soups sound really good. I'm hoping they will go down well with my daughter. 

I need to investigate what company will ship to Denmark. I have now emailed the Nestle shop to see if they can help.

Regarding the therapist in Aarhus, I am actually in touch with her! Thank you though for suggesting it. We are having our first session on Monday. We have been emailing and she has been so kind to 'listen' to all my concerns, doubts and utter desperation at some of our worst moments. I am so happy to at least have this set up. I am working with another doctor ( he is a GP with no experience in this field but he will monitor her vitals at least) who is trying to find other specialists in our area. It might take a while. 




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tina72
Fisch and chicken is great. Fry it in oil. You can add a lot of oil to the rice too as it sucks in. Porridge is better with cream (or even double creme if you get some). Try to introduce smoothies (with milk/cream/ice cream or fruity ones with fruit/juice/canola oil - the blender is your best friend) because drinking calories is often easier than eating them at the start.
Check amazon for delivering Benecalorie. It might be more expensive but easy shipment.
Keep feeding. There is light at the end of the tunnel.
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deenl
Hi Chabi and welcome,

We ordered the Benecalorie from ebay. Which ever supplier was the cheapest at the time. All in all it was quite expensive to get it sent from America but we found it worth it at a certain stage. 

When I started adding it to food, I would start with 1 teaspoon and a few days later increase it to 2 and so on. I found that different foods could absorb different amounts.

Warm wishes,

D
2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
Quote
blondie
Hi Chabi
In the UK (not sure if/how often you are here) there are a couple of options you can get on prescription from the GP (or buy from the pharmacy) - those include Fortisip, Ensure -although my sister's GP can no longer prescribe these as has given her something called Aymes instead which comes both ready made in drinks and as a powder you can make up yourself - or hide in other things
You can also buy Complan as well as Sanatogen Powder. Will you be in the UK soon or do you know someone here who might be able to send some to you?
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Foodsupport_AUS
I am sure you could add one to each meal, though I have not used it myself. It is basically oil and milk protein. They type of oil is unclear. The caloric content is roughly equivalent to  40ml of canola and 5ml or so of whey protein powder. So you can kind of do it yourself. 

I found that adding butter in to things like rice, potato was really useful and it makes it taste great.
D diagnosed restrictive AN June 2010 age 13.5. Weight restored July 2012. Relapse and now clawing our way back. Treatment: multiple hospitalisations and individual and family therapy.
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Chabi
Thank you all so much for all the tips and ideas. Maybe there is a way to reach 4000 calories a day with overwhelming  my daughter with food! 

Blondie, we have a very cheap direct flight to Stansted from here so it would be no problem flying over just to pick them up. I have to investigate to see what options we have. Either that or Amazon. Or try the oil/whey substitution if not.

xxx
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