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WFN_US

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Reply with quote  #1 
It's been a long time since I've last posted. This site is so different. I'm still trying to figure out how to navigate around it all. I see some familiar names and many new ones. Even though it's been awhile, I find myself in a very similar situation to the one that led me to find ATDT a few years back.

I am here again looking for any suggestion for residential treatment for a young adult. I live in the northeast US. Finding a program close to home has always been a problem, and I realize we may have to travel. My daughter is 21 now so some programs I knew about aren't an option. Real information about treatment centers is still hard to find online. I came across a recent newspaper article about how treating eating disorders has become a lucrative business. Some centers are concerned more about profits than the patient. That made me quite sad. I had hoped treatment centers would have improved overall since I had last researched them. I looked at the treatment forum and it looks like Veritas and ERC are still considered good. Veritas seems to offer more for younger people. Does anyone know about the John Hopkins program in Baltimore, MD? Their website says many patients have a BMI of 19 when discharged. Recommendations for other facilities are welcomed too.

Currently my daughter has anorexia nervosa and also binges and purges. The binging and purging have steadily increased. My daughter decided she wanted to try medication to help stop the binging and purging. She was prescribed two medications, the side effect of one was weight loss. I was concerned about that but my daughter assured me she would be fine. Well, she wasn't which isn't surprising. She lost weight. Also the medication has made her extremely agitated and unstable. She used to cut, but after seeing a DBT therapist for a long time, she finally seemed to have stopped. A few days ago she cut herself pretty significantly. A friend took her to a hospital when she was admitted for observation. The doctor at the hospital is concerned about her weight so I decided to start looking into facilities now in case that is the recommendation. Given her instability and weight loss, we may have to go that route.

Thank you for any thoughts.
hopefulmama

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Reply with quote  #2 
Welcome back WFN - 

I am so sorry that you are back looking for help for your daughter, but hello from an old friend. 

I do not know anything about the JH program.  Although Veritas helped my d greatly, she was 18 and still in high school at the time.  I do not know what their programs are currently for someone your daughter's age. I do know their leadership is the same as when we were there and had such a good experience.  

A few years ago when my d went to veritas, I also heavily vetted ERC-Denver and thought it seemed like a great program. I know at that time, they had an adolescent program and a program for young adults  If I recall correctly, they were even located in different facilities in Denver.

I CAN highly recommend the program that helped my d and our family so much.  They are now affiliated with ERC.  They have a great track record helping "tough" cases in young adults.  My d had a dear friend who spent last summer there and then remained at a reduced level through the fall (taking the semester off from college) and is now doing well and in strong recovery. She had been sick for 4 years. Their highest level of care is 11 hr PHP, but they offer an option for supervised apartments.  As they progress through the program, they can then step down to unsupervised apartments. It is DBT based and full and proper weight restoration (to their historic weight range) is the first goal. Here is the link:

http://sanantonio.eatingrecoverycenter.com/about-us/meet-our-team/


I have also heard good things about another program now run by ERC - Insight in Chicago.  I don't have any direct experience though with the program:

http://insight.eatingrecoverycenter.com/treatment-programs/?st-t=ppc_eating-disorders&vt-n=g&vt-k=insight%20chicago&gclid=CIqgkr6sh84CFQcLaQodDs0Nzw

I know it feels like you are right back where you were, but you do have experience of knowing what has not worked and sometimes that can be helpful in moving towards something that WILL work.

Virtual hugs and support coming your way!


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Enjoying my 23 year-old daughter's achievement of active recovery that was made possible by the resources and education I found on this forum.

Don't give up hope!
Torie

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Reply with quote  #3 
Oh gosh, so sorry to read of your current difficulties.

I think Kali's YA d went to Columbia with good results - if she doesn't chime in soon, you might want to PM her.

Please keep us posted. xx

-Torie

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"We are angels of hope, of healing, and of light. Darkness flees from us." -YP 
enoughalready1

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Reply with quote  #4 
My thoughts and support are with you.  Our daughter is 22.  She is mostly severely bulimic.

I am in the U.S, and McCallum House in St. Louis has been suggested.  Our insurance would have covered it, and the times I've spoken with them on the phone they have been extremely supportive and helpful.

Our daughter refuses any kind of help.  She will not go to a counselor or take medication.  We checked into guardianship when things were at their worst a few months ago, and it is difficult to get guardianship here.


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Mother of 21-year-old
bccka5

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Reply with quote  #5 
There's a new adult residential program in Cleveland now affiliated with the Emily Program. I don't know anything about there stats since it's fairly new. We were at the facility in IOP when it was Cleveland Center for Eating Disorders before they became Emily Program. We still do follow ups there and a lot seems the same to me. Good luck to you!
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Daughter diagnosed with anorexia at 12 in 2013 without having any image issues/concerns about calories or exercise. Hospitalized - 3 days. FBT at home along with outpatient therapy - 16 weeks. Recovered/weight restored - 4 years. Still gaining and growing but has no hunger signs yet.  
WFN_US

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Reply with quote  #6 
Thank you all for the support and suggestions. I'm glad I can come here and find people who understand. I haven't told many family members and friends because they just don't get it.

My daughter will probably be discharged once the weekend is over. I'm pretty nervous about it. The doctor in the hospital has allowed her to continue taking one medication because my daughter says it helps. This is the medication that has a side effect of weight loss. I told the doctor that my daughter's mood has not been stable since she started the two medications. One was stopped, but the second continues. My daughter's behavior is still not right. I'm concerned she could harm herself again.

I spoke to her therapist and he is also concerned. He would like her to go directly to a residential program to make sure she is safe, but I don't think I can get something set up so fast. In the meantime, he doesn't want her going out alone once she is home. It will be hard to keep a young adult home when she will have other plans. The therapist wants to see her as soon as possible, which is good. Normally she would be fine with that. In her current state, she could refuse.

It's been hard to fit in visiting with her, other family commitments (oh, you know, like actually finding time for a meal ourselves) and trying to researching eating disorder programs. Again, that you so much for the ideas. It will be such a help.
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