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remeit

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Posts: 4
Reply with quote  #1 
Our 14yo AN D (dx in January) has a treatment team out of Children's Hospital in DC and we're considering looking at other providers in the area, especially nutritionists. We're trying FBT approach but it's been a bumpy ride with D seeming to be compliant at meals but spent first 3 months of "recovery" tricking scales by water loading and not going to the bathroom for days. We're thankful she told us but we think she may still be compensating for eating with other behaviors. We are open to suggestions and may consider partial or total in patient this summer if current FBT approach (along with group DBT and other appointments) doesn't keep us moving along in recovery. Thanks
sppb

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Reply with quote  #2 
So sorry you have had to join us here. But you are in the right place,  the advice is really helpful and the support from the other carers is amazing.

I hear Hopkins has a respected program, but I haven't had any personal experience there.  

Doctor Peebles at CHOP has a very good rep for refeeding ( we have a non-ED kid who needed refeeding  due to another type of condition) and she got her where she needed to be in short order and has done well ever since.   Philadelphia is not that far away from the Baltimore/DC area in the grand scheme of things. 

Best of luck to you and your child.  You are on the right track seeking info here.
persist

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Posts: 9
Reply with quote  #3 
I'm sorry you are having such a difficult time. My DD is also 14 and we live just outside of DC. We had a good experience at Children's (my DD was diagnosed just before she turned 12), but I know it doesn't work for everyone. I posted the following a few days ago, replying to another DC-area parent looking for treatment options:

I have heard good reviews of the Reflections center in Virginia: https://reflectionsed.com

There is a parent/caregiver support group for those whose loved ones have EDs here in the DC area. It has sort of dropped off, and I don't think we have gotten together to talk in person for close to a year, but the group should still be accessible online. If you e-mail dc-edfs-owner@yahoogroups.com you should be able to get signed up. Parents there have had experience with many treatment providers, both in the D.C. area and elsewhere.

I know the names of various therapists in the DC/MD area who work with ED patients, but it sounds as though you need a more structured program right now.

Feel free to send me a private message if you want to talk offline. I'm sorry you and your girl are going through this. 
remeit

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Posts: 4
Reply with quote  #4 
Thanks for those who had metro DC recommendations. Our experience hasn't been necessarily bad with Children's Hospital; I think we're just experiencing the "normal" ups and downs of recovery. We'll keep Philly and Reflections in VA in mind if we need it.
tina72

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Posts: 1,389
Reply with quote  #5 
"especially nutritionists"

Be aware that most nutritionists learned how to help obese people with diets and nearly none of them learned how to refeed malnurished kids.
If you need tips and tricks for adding calories, come here and ask.
Many of us have never had a nutritionist to help. Or fired them after they told our kids something about "healty eating".
Tina72
Kali

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Reply with quote  #6 
Hi Tina72,

We actually have had good experiences with nutritionists. There are some excellent ones and we have only had nutritionists who have specific experience with anorexia. They add one more voice to the chorus encouraging my d to eat. Although I'm not sure how helpful a nutritionist would be for a 14 year old, it has been appropriate for my young adult daughter to meet with one on an ongoing basis, at this point it is once a month. I also like it because she lives away from home and she gets weighed. If her weight drops or I notice any issues I can get in touch with the nutritionist and get a number if i need to. So in this case it also encourages accountability.

Kali





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GREETINGS, F.E.A.S.T. Community! As of July 1, 2018 you can access this forum directly without logging in at the main site. If this is your first login since that date please reset your password by using the "lost password" option. We apologize for the inconvenience. We are preparing a new website and services for the parent community to be rolled out soon! If you have questions or concerns, or trouble resetting your password, please contact us at Admin@FEAST-ed.org

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