My daughter (16) was diagnosed RAN in May 2019. She’s been refed 3 times as inpatient via NGT and spent 15 weeks in hospital this year (including stint in a mental health unit). As soon as she comes home everything goes wrong. She’s very depressed and self harms (cuts and scratches). She is incredibly resistant and this is compounded by ARFID (had since a toddler) and suspected ASD. We can’t get a formal ASD assessment until she maintains a healthy weight long enough. She is very smart and there’s no tricking her or hoping she won’t notice something.
I have read, watched and listened to everything I can get my hands on. I really want FBT to work and I employ LSUYE. But it simply doesn’t work. She’s too depressed and has suicidal ideation. She’s on a cocktail of meds prescribed by a psychiatrist. I have almost exhausted all the services on offer in Western Australia.
My anorexic daughter has an identical twin sister who’s healthy and living life to the fullest for a 16 year old.
I am feeling so powerless at the moment with every FBT tactic I employ or use of Eva Mausby words and strategies fail - I either get abused, she gets hysterical and is at risk of SH, or she shuts down completely. It’s the shutting down I find the hardest to deal with. Her life is pure misery.
I would love to hear from carers of teens with anorexia with underlying ARFID and ASD (and the depression and anxiety that goes with it). You may not be able to help me, but I just need to know there are others out there with kids suffering the terrible combo of AN / ARFID / ASD and could possibly let me know how you have or would deal with things.