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Yogi13 Show full post »
Enn
My d was not WR at the time she went back to soccer, if that is the question? That was three months after diagnosis and we were really still in early refeeding. I am not sure now if I would do that again. It was June and summer and she had really no other activities at all, just art camp where there was no physical activity,  and D was Dxd in March and she had gained a lot by then but was not yet WR, that was another 3 months when she got to WR Sept (the first "target" and likely 6 kg less than her "real" Wr where her brain was so much better at 6 months after diagnosis) 
However we allowed it but still pulled the plug when she had not eaten well the day of soccer games or practice. And the coaches were told she had a medical condition that prevented her from double shift or running the track to warm up. If I felt necessary and she was doing too much that day, I took her off the field for a few minutes to rest again. 
Like everything you will find what works for your situation. For us at the beginning, I had to ensure she could not burn even one calorie - as I said above, my d stood all the time( I still feel that is exercise compulsion), and I had to break the compulsion and make her sit, so I could not allow any physical or much anyway, until she was able to sit for 2 hr per day( that was the plan the doctor had for her and if she could not sit for 2 hrs per day then no soccer- and lo behold she did sit well after that too) and eat more just to get 1 hr twice per week of practice or games and even then she would be resting if not on the field.  
IF the exercise is part of ED, then it may need to be extinguished. The point of exercise/movement, is finding the joy and not the obsession about it. I hope the makes sense. If my d could do yoga without being competitive, or she could walk slowly or she could sit, or have a day with no exercise, then that would have been different and maybe she would have had some more physical activity at the beginning, but that was not her- all activity was a competition within her self to do more and faster and harder and that was ED through and through. 
As I look to Sept 2019 and teams/clubs my d wishes to join, she knows as we have discussed, if I feel she is doing too much exercise/sports without refuelling properly or eating well prior then she will not be able to join or participate those days. I guess it is a bit of a contract that I have established with d. 
When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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Yogi13
I am definitely treading lightly with my hands firmly on the reigns.  I think that less is more when it comes to exercise for us, but I do want her to be able to participate eventually.  

Yes. It’s not “one size fits all” here.  Every family is different.  I appreciate you sharing your experience with me, and I hope that one day I can impart some of my own knowledge to a newbie like me.  
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ValentinaGermania
Yogi13 wrote:
Hmmmm....wow!  Ok, but she is currently gaining between 2-4 lbs per week.  I am a little confused.  


First they gain with that intake. Then at some point metabolism increases and they stop gaining and you might need to increase intake again. We needed to do that twice. Now she maintains her weight although she still must eat a lot. They do not gain all the time.
Keep feeding. There is light at the end of the tunnel.
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ValentinaGermania
Yogi13 wrote:
I am definitely treading lightly with my hands firmly on the reigns.  I think that less is more when it comes to exercise for us, but I do want her to be able to participate eventually.  

Yes. It’s not “one size fits all” here.  Every family is different.  I appreciate you sharing your experience with me, and I hope that one day I can impart some of my own knowledge to a newbie like me.  


Back to exercise is a hard question and very individual. Those who had exercise compulsion need to be stopped for a long time. Those who "only" were too weak to exercise can go back slowly after WR. We started with 1 hour school sports a week. She lost weight and we increased intake until it fit. Then we added 1,5 hours dancing class a week (for social contact). She has to eat an extra snack before she can go there up to now.

I am very sure that you can help newbies even now. Every day you survived you made some experience. And even if it is only to say to others "hey, you are not alone, I suffer from that right now too". That also helps a lot in early days.
Keep feeding. There is light at the end of the tunnel.
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Yogi13
Thank you, tina-for your response and kind words. 
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