F.E.A.S.T's Around The Dinner Table forum

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Seashell Show full post »
Thanks for advice. It is a major concern for me too. She had bloods and ECG last Tuesday and obs done in hospital every 4 hours for 24h and they discharged her (even though she says she was dizzy when standing up in hospital) saying she was medically well.

I do tell the team every detail and I asked for planned admission today but they seem to think that we should be doing all we can to keep her out of hospital even though DH and I both want her to go in to get eating established again. I think we will have to get to 4 days without food again before they let us in....

Sorry it's so difficult to get the care you need.

Hang in there,

2015 12yo son restricting but no body image issues, no fat phobia; lost weight IP! Oct 2015 home, stable but no progress. Medical hosp to kick start recovery Feb 2016. Slowly and cautiously gaining weight at home and seeing signs of our real kid.

May 2017 Hovering around WR. Mood great, mostly. Building up hour by hour at school after 18 months at home. Summer 2017 Happy, first trip away in years, food variety, begin socialising. Sept 2017, back to school FT first time in 2 years. [thumb] 2018 growing so fast hard to keep pace with weight
  • Swedish proverb: Love me when I least deserve it because that's when I need it most.
  • We are what we repeatedly do. Excellence Recovery, then, is not an act but a habit. Aristotle.
  • If the plan doesn't work, change the plan but never the goal.
  • We cannot control the wind but we can direct the sail.
It can be so hard to get good care.  It is always a worry that sometimes it appears as though the "do everything at home" is not necessarily in the patients best interest but more about beds, bed availability and "protocols". 

When you mention that your D was assessed in hospital I trust that they were doing appropriate monitoring for medical instability. The most important thing when testing for stability with respect to dizziness is assessing lying (must lie down for 5 minutes) followed by standing blood pressure and pulse. 

In those who are unstable there is often a significant drop in blood pressure and a significant rise in pulse. It is a sign of high cardiac risk. 

I worry that if you mention her observations were normal these tests may not have been happening. 

For your help these are UK based risk assessment guidelines. It is worth printing them out and having them on hand so you can see if any assessments are being done correctly.

I know that for my D there were frequent incorrect assessments by GP's of blood pressure and pulse. In particular they often did them in reverse order - standing then lying which doesn't prove anything. 

D diagnosed restrictive AN June 2010 age 13. Initially weight restored 2012. Relapse and continuously edging towards recovery. Treatment: multiple hospitalisations and individual and family therapy.