F.E.A.S.T's Around The Dinner Table forum

Welcome to F.E.A.S.T's Around The Dinner Table forum. This is a free service provided for parents of those suffering from eating disorders. It is moderated by kind, experienced, parent caregivers trained to guide you in how to use the forum and how to find resources to help you support your family member. This forum is for parents of patients with all eating disorder diagnoses, all ages, around the world.

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veggomumx
Hi I’ve posted last year when my dd was in a bad place and sadly I’m back again[frown] Just to give a quick update my dd is now 20 and hit a very dark place this time last year but managed to turn it around. Sadly she’s had a rough time at uni and has relapsed again. She’s now at a bmi of 15.
She decided to go to her GP today to get a reality check on how much she has damaged herself in hopes of kick starting her recovery, however this is the complete opposite of what happened.

All she wanted was blood tests, ecg and blood pressure done. The GP weighed her, checked her chest and completely fobbed her off. She told the GP all the (very worrying symptoms) she had in the past two months which include, sharp chest pains on and off, shortness of breath, unable to digest food, acid reflux 24/7, loss of sensation in finger tips and upper legs on and off. Her stomach looks 6 months pregnant just by drinking a small amount of water. Her GP did not care! Told her she had panic disorder and not an eating disorder even though she is diagnosed with Anorexia! Did not care that she has a bmi of 15!!!! Because she’s had a lower BMI previously told her simply to “stop making yourself sick” after my dd confessed of purging on average three times a day (she clearly has a problem and telling her off won’t help)

My dd has done a complete 180 and gone from wanting to recover to never eating again. It’s so hard to deal with this illness when your child is an adult as you have no parental rights and they are their own person. I was wondering if anyone in the UK has dealt with this kind of disgusting treatment and what’s the best course of action to take?

I thought CAMHS was bad enough I really do not expect medical professionals to further trigger a very vunrable young person
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Kali
Hi
This sounds dreadful. Can you phone the GP and express your concerns, and if you get nowhere with that, write a letter of complaint to someone higher up?

Kali
Food=Love
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teecee
I’m so sad to hear that. Bad help is worse than no help.
In answer to your question I would certainly log an official complaint to the partners of the practice at the very least. If that happened to my D (and she’s under 18 so different circumstances) I would be registering with another practice.

Our GP was lovely to my D and dealt with her physical symptoms well. By her own admission she did not know about AN well enough to offer opinion but I was grateful to her for being honest. She listened intently to the advice CAMHS had given us and complied with all their requests. She clearly wanted to learn about the issues we had had and was a good support in dealing with the suicidal/depressive mood my D was experiencing along with other complications.

I really hope you are able to draw in helpful support rather than rely on your GP. Can you encourage your D to go with you to a walk in centre for the test she was requesting?

Virtual hugs xxxx
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Enn

I agree with the above advice already given. You should document your concerns and if your D is comfortable, she should too. Those concerns do become part of the legal chart. 
I am so sorry that happened. Most GP don't know much about ED. Remember they are generalists and know a little about many things. Some may know more abut Ed than others but there is not general ED knowledge base here in Canada.  I would ask if there is another GP in that practice that has more experience with ED or to see another ED specialist. 

Wishing you the best in this. 

XXX

When within yourself you find the road, the right road will open.  (Dejan Stojanovic)

Food+more food+time+love+good professional help+ATDT+no exercise+ state not just weight+/- the "right" medicine= healing---> recovery(--->life without ED)
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ValentinaGermania
Hi,
agree with the others that no help is better than worse help.
We also had a long way to find a good GP. I contacted 20 and only 2 answered. I checked them first without my d.
One told me that "he has no time for such things". So I told him I have no money for unhelpful people...[wink]
But we found one that seems to be good.

So my advice would be: go and have a new GP!!!
Tina72
Keep feeding. There is light at the end of the tunnel.
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Foodsupport_AUS
I am sorry that you have had such a bad experience with the GP. As others have said sometimes they have little clue or ideas about eating disorders. I would suggest working as a team with your daughter - looking for another GP in the practice if possible or considering changing practices. 

Last year your D was having weekly checks, was that with the same GP or another one? It sounds as though she has gone backwards while being monitored but not really sure if that is the case?
D diagnosed restrictive AN June 2010 age 13. Mostly recovered 10 years later.  Treatment: multiple hospitalisations and individual and family therapy.
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Mamaroo
This is absolute unacceptable, words fail me.

I agree with Tina, find a new GP, 'interview' them first before sending your d to them. It might be a good idea to go along with your d.

It is great that your d now wants to get better. Just keep on looking for a good GP.

Best of luck!
D became obsessed with exercise at age 9 and started eating 'healthy' at age 9.5. Restricting couple of months later. IP for 2 weeks at age 10. Slowly refed for months on Ensures alone, followed by swap over with food at a snails pace. WR after a year at age 11 in March 2017. View my recipes on my YouTube channel: https://www.youtube.com/channel/UCKLW6A6sDO3ZDq8npNm8_ww
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